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I have "Bad Bones" and the pain takes my breath way.....

Posted , 7 users are following.

erela
erela

Hi......  I am a 60 year old woman that has had "sick bones" since childhood.  My father was a doctor and was very worried about me. In 1986 I had a total non cemented right hip replacement up at UCSF thanks to my father's affiliation with the teaching hospital.... that was when the doctors discovered that their was something wrong with my bones but they did not know what it was..... after the hip replacement I have had severe thigh pain..... then a few years ago I fell and hurt something in the hip...... my father had died and I was terrified to seek medical attention for anything without him as my buffer......

I went to a hip specialist last week as now both of my hips a killing me and I can barely walk to the bathroom..... I was suppose to see the shoulder specialist the next day as both my shoulders are killing me.  I was told by the Hip Doctor that my total hip replacement was not just broken but in fact was worn out..... my other hip is shot and also needs replacing...... He had read my records and read what the shoulder surgeon wrote when she attempted to repair my left rotator cuff.  She could not put the anchors in to reattach my muscles as when she put tension on them they broke out of my bone!! ?????  she didn't bother taking a "biopsy"....... if only she had...... anyway..... now I also have a bad heart...... I need a total body replacement!! lol..... I would be a lab rat for that procedure if only it was available......

Everyday the pain gets worse..... the pain meds only take the edge off the pain.....they really don't take the pain away........ I pray everyday for the Lord to end my miserable existence....... my prayers have yet to be answered.  I checked into the "Assisted Suicide" laws.... which only apply to those diagnosed with a terminal illness which will end their lives within 6 months to 1 year.  If I was to commit suicide my husband or doctors could in fact be held responsible for what I did...... so that option is out for now..... I am going to write my congress woman about my situation as the last doctor I saw understood when I told him to send me to a "Veterinarian"...... I would never let my dog suffer the way I am forced to suffer waking up every day.......  I try to watch lots of comedies as they say that laughter is good for the soul.......  I am grateful for this site's allowing me to vent........ my heart goes out to everyone that shares my predicament in any extent...... I Pray for all of us.......

Erela

1 like, 17 replies

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  • hope4cure
    hope4cure erela

    Posted

    Erla, 

    Thank you for your reply.  Those cold rainy days I can tell you when it’s coming. I am  A weather forecaster of a different value. Keeping your distance from the new mud slides In calif. I hope. I grew up in LA. area.

    I use microwave warm heat packs wrap arounds for all my joints with Velcro closures. I am trying to get thru this last cold snowy winter. I love the snow it’s so beautiful to look

    at . How life changes us for the many adjustments we have experienced thru life and more to come. Sorry  the alternatives mentioned in my previous post cannot help you. My next brainstorm would be to ask for a pain block . Had to have those for some time due to scoliosis ankling spondylosis disc issues. Pain and depression tend to put us down a negative path into what I call thoughts of desperation and exhaustion.

    I use mindfulness techniques to help on those days when it’s over whelming. My pets bring a lot of joy and make me laugh 😂, and studies show say laughing is the best medicine.

    In many ways I have been fighting a bad hip replacement for years which left many injuries ,.its was revised last year. Cobalt and chromium poisoning from the components left in for 6 years causing heavy metals in my blood stream .

    Will sent you a private message on cobaltizm form the doctor who has received US grants to conduct the study . The side effects from heavy metal contamination and how it has affect my body.

    I do the fist 🤜 pumps never allow the grip. Even hugs are out just a word hugs to you and thats it no explanation needed. 

    Have a great day!

    {GENTLE HUGS}

     

  • erela
    erela

    Posted

    Dearest Gentle Hugs....

    the trigger point injections didn't work for me either...... I don't know what I did to deserve this brutal pain but I guess it is my cross to carry...... and I know people carry much worse...... I have to learn not to complain.....

    I do  mindful exercises....meditation.....music....comedies...... Laughter is good for the soul but sometimes my bones hurt so bad  that laughing hurts! lol.....  I look forward to your messages.....Erela

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