I have been diagnosed as hypothyroid and have been takin...

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I have been diagnosed as hypothyroid and have been taking thyroxine and/or liothyronine for two years. I always feel ill and very breathless. I cannot lose weight no matter how little I eat. I think there needs to be more research into this condition.

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  • Posted

    totally agree with views. i am unable to get rid of any excess weight and i find that the scales are creeping up no matter how hard i try and cut down on my intake.

    i am constantly cold in in my fingers and toes, and the tiredness is very wearing.

    i take 175mcg levothyroxine daily - i have heard that here are other treatments available but cannot find much info on them - my GP is happy that i am 'stable' however i do feel that the ciinicians dont give enought attention this as the condition is so easily managed

    I would really like to see some research as it appears that there are not many people receiving treatment feel 'well'

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  • Posted

    i had an op, and had the glands removed .the weight just piled on i look as if im pregnant,is there anybody the same, luv to hear from yous.

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  • Posted

    i also had the op at the ripe old age of just 21. i was not put on medication untill 5 years later when i had to under go more surgery to remove what had been left behind. I havent really put much weight on so i consider myself to be very lucky, however i havent felt like myself since befor my first op. nobody seems to really listen to how i feel i tell my gp that im so tired all the time but my blood reads within "normal" well what is normal,, or should i say what is normal for me... whats normal for me may not be for you.. who decides what normal is... i could go on asking questions about this illness all day. now i have just found out that im 4 weeks pregnant, im worried that my levels will now start to dip as the baby will be taking thyroxine from me aswell as me needing it for myself. on top of that my neck has started to swell again just like the other two times i was pregnant, how can this be if i have no glands left.

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  • Posted

    I was diagnosed for the second time in 1992, and have never felt completely well. As for dieting it is impossible and nobody really wants to know.sad

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  • Posted

    Twelve months ago I went to the doctors with the following symptoms: swollen ankles and hands, puffy face, weight gain, dry skin and small swelling in the neck. He prescribed 50mcg levothyroxine. I took the tablets for about a week but stopped taking them because I felt so ill with side effects of massive headache, heavy pressing feeling in my chest and an increase in appetite. However, a few weeks ago I returned to the doctors because I felt so ill with extreme tiredness and shortness of breath as well as a worsening of the original symptoms. I was put back on levothyroxine initially 25mcg which has now been increased to 100mcg. Although I have been taking them for 5 weeks now, I cant say that I feel any better. Prior to taking the medication ,although am over weight, my weight was stable, now I have gained 4lbs.

    Iwould like to know if other people have experienced weight gain whilst taking levothyroxine and would really appreciate any help that can be suggested.

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  • Posted

    Hi, I've been diagnosed with underactive thyroid since April 05 after going to the Doctors with piles and happened to mention my other symtoms of sever tiredness, very dry skin, hair loss and not being able to shift my baby belly - I'd put this all down to having two babies under 2yrs and thought I was just run down. I got put on 100mcg Thyroxine straight away which helped with my dry skin and hair loss. The last couple of months though I've started feeling really irritable and angry so the Doctor has perscribed propranolol a week ago which is used for anxiety and overactive thyroide (even though my blood results say 'normal') so needless to say my skin is painfully dry and I don't feel myself. In short I agree that more research needs to be done as far as underactive thyroid is concerned. Goind back to the Drs this week!!:headhurts:

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  • Posted

    I was interested to read so many negative comments about thyroxine treatment.I have taken increased doses over the past three years, currently 150mcg.I have never felt well, my weight continues to rise.I am now suffering symptoms of over active thyroid although my blood results show it is still under active.Many of the over avtive symptoms are similar to the menopause i.e sweats flushes irritability, however i had never had any of these before taking medication and as i am now in the later half of my 50's i find it hard to believe they have just started.I also considered i might be allergic to the ingredients in the tablets but that seems unlikley.I have today decided to stop my tablets with a view to perhapes just taking one 50mcg to keep me ticking over.I am so depressed at constantly trying understand this condition or why my body does not respond,given that i was told i would be back to normal in a few weeks of starting treatment. sadsad

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  • Posted

    search ..TPA-UK....IN YOUR BROWSER JUDY. THIS GROUP MAY HELP. DO NOT STOP YOUR PILLS:ok:

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  • Posted

    so glad i,ve found this site, everyone here has the same problems as myself. i thought it was just my doctors not listening, i was diagonised with an underactive thyroid about 5 years ago, took the tablets for 3 1/2years but never felt any better the doctors kept saying levels were normal,so stopped taking them. weight gain stopped but still haven't lost any, but now the numbness has started in my hands and have just been put back on the tablets, now waiting for the mood swings and weight gain to start. lots more research needs to be done, lets hope someone will listen and help us all.

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  • Posted

    Hello. I was diagnosed hypothyroid around two years ago. I was first prescribed Thyroxine (T4), which I had to interval through about 5 dosage levels very slowly -- and still felt no improvement. I surfed internet. Visit **** if you have not already. Many good links which are helpful. Also, you may wish to explore taking T3 (Cytomel) as well as T4. Thryoid makes both naturally, but traditional doctors will only prescribe T4. I located a wholistic doctor who works with T3 regularly and was able to get it prescribed (ask a local pharmacist for Doctors name who prescibes it frequently). I found it very helpful & I snapped back to the old me fairly quickly. I continue to take it and all is well. Still struggling with the wieght gain through diet and exercise - slow progress but it is working! Best of luck to you all.

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  • Posted

    I haven't been diagnosed as yet, although I know my body well enough to know something is not right. Have been through the 5 doctors at my practice and the responses range from 'antidepressants' (To which I reply 'no I'm not depressed, just angry that I have put on 2 stone in 18 months for no reason whatsoever!'), to more blood tests (all of which come back 'within the normal range' or for thyroid 'at the low end of normal'. How on earth do they know what MY normal is??? Ok history: I exercise 4 times a week and have done for years - 2 aerobics classes and 2 gym sessions. I eat healthily and I am utterly fed up of well-meaning people advising me on what to eat, not eat, cut out, include, reduce etc in my diet. I started putting on weight just over 18 months ago ... and it has crept up and NOTHING I do will make the scales start to go the other way. I read Marilyn Glenville's book 'Fat around the middle', which is really interesting and makes sense. I stuck to the diet rigidly for 2 months and paid £50 for supplements. Nothing! I put on half a stone. I have just entered 'The Race for Life' 5K run in July and have been training for the past 2 weeks, thinking this HAS to kick start something. Guess what! I have put on 5lbs! It's got to the point where nothing in my wardrobe fits me, I don't want to go out, I don't want to socialise, I hate mirrors and I really hate myself. My poor husband is wondering what to say or not say and to be honest he is better saying nothing because I don't want sympathy or placating ... I just desperately want ME back. I liked me and I miss that so much. I have to pull myself together for the children and work is my saviour as I can throw myself at it and forget. The summer is looming as a nightmare ... holidays ... at the moment I'd rather creep into a hole and stay there!

    Reading the comments about things not improving after the medication has compounded my feelings of despair. I have an appointment at the endocronology dept in May and am now not confident with what the outcome will be. I have paid to see a homeopath who was perplexed by what was wrong. I have had accupuncture - relaxing but no difference. I would and will pay anything to get this sorted ... but as so many people here have said, nobody seems to really understand or care.:?:?

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  • Posted

    hey, i take levothyroxine but have never heard of liothyronine, any info on it?:D

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  • Posted

    Yeah, I was diagnosed with hypothyroidism in April of 2004, 2 years ago. When I found out I was a bit releaved to know that I wasn't going crazy. I had something to blame my fatigue and decreased labido and weight gain on. I started right away on Levothyroxine, 75 MCG. Before diagnosed I had gained a strange 17 pounds in about 1 to 2 year period. In the past 2 years of taking the medication, doing Jazzercise 3 days a week, and changing my eating habits I have gained 18 more pounds (and it isn't muscle). After buying new big clothes last summer I have to go out and buy newer bigger clothes this summer. Everytime I go to the doctor and get it checked they tell me my dosage is "fine", everything reads Normal. BS!!! I am currently looking for alternatives, I am into natural remedies, but I am scared to stop taking the medication. Oh this is such a pain! I don't think it is fair, I am 24 and my life is nothing like it was 5 years ago!

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  • Posted

    I was diagnosed with ununderactive thyroide 11 years. Even though i had been unwell for over six months, and gaining weight inexpicably it only came to light when i came off the pill to try to conceive and my periods stopped. I was put on thyroxine 100mcg and have been on this level ever since. even though i feel unwell again and have done for the past 3 years and have similar symptoms to before, every time I have a test done it shows the levels I am taking are correct. I am now gaining weight despite sensible diet and exercise (1 stone in the last 6 months infact). Doctors swear by the accuracy of these tests, is there any way round it/

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  • Posted

    hi can anyone tell me if they have ever heard of a person loosing weight with an overactive thyroide, only a friend says that is it happening to her which seems highly unlikely .Is this possible?

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