I have carcinoid cancer can you help.

Posted , 3 users are following.

Was diagnosed Aug 2013.

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10 Replies

  • Posted

    Hello Valorie,

    Aug. 2013 is a long time ago.  Where is the cancer and what treatment have you had so far.

    Wish you well,  Daffs

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    • Posted

      The first surgery was aug 8 2013 and the Dr. removed blockage and 20 inches of small intestine. My next surgery was at OHSU in Portland and the Dr removed 36 tumors gulbladder and moved things around. He said the cancer had gone to my liver inside 72% of my liver was consumed with carcinoid and he not going to mess with it. I would like to chat with some one who has carcinoid cancer to see what my future is going to be.
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    • Posted

      Hi val  just read your message you been having a rough time !   Sandy has mets on his liver and has also had to have kidney stents   put in  they have only done one at the moment and he has a nephrostomy on his other one  He is waiting to have some chemo in the next month ,His monthly injection has helped with the diarrhoea and hot flushes  The uncologist was hoping he would only need the injections   He was very positive about carcinoid  gave us lots of hope .Please stay positive if you want to chat anytime  message me I may not be able to help but some times its just good toknow someone there  when you in pain and feel down .
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  • Posted

    Hi Valorie,  Well you seem to be in a pretty bad way and I wont be able to help you.  You are much more advanced than I.  I hope someone else from here will come forward and help. You'd be better to go to the Macmillan Cancer Support forum.  They are solely cancer and of all types and stages and then there's Beating Bowel Cancer forum, also strictly cancer. Both these sites will be able to help. Cancer Research also has questions and answers forum.

    When you say Portland, is that Portland Oregon and where are you now?

    Wish you some satisfaction. Don't despair there are other forums that can help because they are much bigger.  Godbless, Daffs

     

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  • Posted

    IH ave carcinoid tto
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  • Posted

    Please excuse my typing errors, I have carcinoid cancer too
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  • Posted

    Can anyone see my reply?
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  • Posted

    I have been struggling with cancer since 2009
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  • Posted

    I have cancer & I'm wondering if someone can read this 

     message

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    • Posted

      Larry08623, it might be better if you make your own discussion as a new one then it's more likely people will see it and be able to help. Especially as this discussion is very old. I only happened to stumble across this one by looking for something in particular.
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