I have had rai treatment and take thyroxine. I would lik...

I to have Graves Disease and in answer to your question also have had difficulty swallowing because of feeling a lump in my throat. This is due to the goitre around my neck, but was only when I was on carbimazole and no thyroxine was in my system. At the same time as I had trouble swallowing I also suffered with extreme lower back pain has anyonr else had this?

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i have just been diganosed with Graves , although the endocrineteam have yet tosee me for an outpatients appt, i am struggling with this and feel so alone , i hear that some outcomes are failry positive and yet others seem awful !!!! does life return to normalish, i have apparently had a good blood result my t4 has gone from 60 to 33 in ten days on carbimizole , i also have been able to reduce my stedroids by 5mg sa my eyes have settled a bit , would really like to talk to someone in my posistion as some stuff on the net scary

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I was diagnosed with graves three years ago, my T4 levels were near to 100 when I was diagnosed and it took 12 mths + to get them under control! (I had a reaction to carbimizole which didn't really help matters and had to take Proplyuthyroucil-sorry spelt wrong and beta blockers)I was very ill at first, with all the typical symptoms, once my levels were under control my quality of life improved to near normal. I tried coming off the medication but relapsed, then tried rai which didn't work for me, by now I had a large goitre and was suffering mild eye disease, but generally I actually felt ok in myself, but knew long term staying on the tablets wasn't an option, so seven weeks ago I had a total thyroidectomy. I recovered really well and went back to work after 4 wks but by end of 2nd week the symptoms of being hypo really kicked in and I was left feeling totally exhausted, I am trying really hard to take each day slowly but with a young family and work its tough!!! I've resigned myself to the fact that I'll never be "normal" as I once was, but I do believe you can manage your thyroid effectively to achive a good quality of life. My secret to surviving has been reading as much as I can about the condition and being confident enough to challenge my consultant when my blood results say one thing and I know I feel differently, we can normally reach a compromise now...

Good luck but don't forget doctors are only human, they are still learning lots about the thyroid and you may know as much or more than some of the doctors you go to see as many of them are genral practitioners and not thyroid experts, so they can learn as much from listening to you! :D:D:D:D:D:D:ok::ok::ok:

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hi - im corin and i have both graves and hashimotos thyroid diseases!

this is my first time to this part of the pt uk site - and im surprised that there are not more people logging on to this bit!

if you return to the opening page (the green topped one) and enter 'carbimazole' as your search, press go and enter the pt experience section - youll see that you are in no way as alone with your concerns as you appear to be on this page!!

ive personally found the info shared on the carbimazole pages extremely beneficial - even just realising how many people are going through the same as meis so reassuring!

please give it a try - log on!!

good luck,

regards,

corin x

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