I have just been diagnosed with hyperthyroidism 4 days ago
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I am scared and anxious. My symptoms: sweating, anxiety, not sleeping and unbelievably itchy skin I put down to menopause symptoms. My doctor has put me on carbimazole and propanalol. I went back for another blood test and my full blood count has come back as abnormal. i feel I am left high and dry with all these horrible symptoms and have to wait for my referral to a consultant to go through. No idea how long that is going to take! I have been sitting up most nights unable to sleep and feel I am going mad with this itching. Can anyone tell me how long they had to wait for consultant appointment. How long before your symptoms started to get better? Did you gain weight? Really any advice would be welcome as this is all new to me
0 likes, 21 replies
Screwball21 ariadne43
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emmaj43 ariadne43
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You will be fine. X
lukeylou ariadne43
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lukeylou ariadne43
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vicki85018 ariadne43
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lukeylou vicki85018
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acd ariadne43
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Sorry to hear you are not feeling great.
I think you will start to feel better when the Carbimazole starts to kick in, it does takes a few weeks for this to happen but once it does your anxiety, sweating, not sleeping should all improve. You may start to put on weight as the Carbimazole slows down your metabolism, it need not be a problem, just be a bit more concious of what you eat.
From my own experience I believe it was Carbimazole that caused my itchy skin plus I had other problems with it too, I used to feel like I would faint at any moment, I couldn't focus on anything & felt foggy! On reflection I believe I was prescribed too high a dose to start with and it was too much for my body to cope with. Given these issues I too was switched to PTU but unfortunately, this drug caused other side effects, swollen joints & heartburn were the main things but again I think the dose was too high initially.
All I would say is Graves is a complicated condition and in my experience the endos are pretty useless at explaining anything, none of them explained to me the real reason the thyroid becomes overactive, it is not because the thyroid is not functioning correctly it is as a result of your immune system not functioning correctly. Endos are only interested in treatment of the thyroid, essesntially they treat the symptoms not the cause.
My advice to anyone with this condition would be to research as much as you can about the condition and don't believe everything your consultant says. There is an awful lot of info on the internet some good, some not so you have to research carefully. I think it is important to try to understand yourself what is happening to your body then you are able to talk with some knowledge when you see your consultant and don't be afraid to question what might be recommended.
Most endos will advise you there is no cure and you will only have 2 choices, have radioactive iodine to kill off half your thyroid or have it removed all together. Don't get pushed into making any major decisions until you are ready.
I am currently trying alternative ways to improve my health but this is by no means easy, its not for everyone and as yet I don't know if it will even work.
Let us know how you get on & I wish you well for the future.
Ann
emmaj43 acd
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What are you trying?
Thanks
Emma
acd emmaj43
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I just re-read your post, did your doctor really say you were stupid to get Graves, was he joking?? Believe me you would not want to get this condition through choice!!
emmaj43 acd
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ariadne43
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lukeylou ariadne43
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ariadne43 lukeylou
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emmaj43 ariadne43
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ariadne43 emmaj43
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emmaj43 ariadne43
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My results were TSH receptor antibody significantly elevated at 12.5IU/L (0-1.5), TSH <0.01, ft3 33, ft4 92, vitamin d 61nmol/l.
ultrasound thyroid was a little enlarged with the right lobe measuring 49 x 15 x 17mm, left lobe 49 x 14.19mm. it had mild nodularity and the doppler showed diffuse increase in vascularity with no lymphadenopathy.
ft3="" 33,="" ft4="" 92,="" vitamin="" d="" 61nmol/l.="" ultrasound="" thyroid="" was="" a="" little="" enlarged="" with="" the="" right="" lobe="" measuring="" 49="" x="" 15="" x="" 17mm,="" left="" lobe="" 49="" x="" 14.19mm.="" it="" had="" mild="" nodularity="" and="" the="" doppler="" showed="" diffuse="" increase="" in="" vascularity="" with="" no="" lymphadenopathy.="">0.01, ft3 33, ft4 92, vitamin d 61nmol/l.
ultrasound thyroid was a little enlarged with the right lobe measuring 49 x 15 x 17mm, left lobe 49 x 14.19mm. it had mild nodularity and the doppler showed diffuse increase in vascularity with no lymphadenopathy.
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