I'm completely lost

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Hi everyone,

I've been following this thread for a little while and after this week I thought I would share my story.

Two and a half years ago I was in a car accident, I was driving. After the accident I had a few pains, lower back and neck but the worse pain was in my heels, both were bruised but X Rays show nothing - after a couple of weeks the pain persisted, I was getting cramps in my toes and shooting pain in the soles of my feet. I went to Physio where they said that due to being hyper mobile I had stretched all the nerves and tendons in my feet. I have since been to a orthopaedic surgeon, two pain specialists and a Hypermobility specialist who are at a loss as to what is wrong (they have ruled out CRPS) at first they were thinking that perhaps it was psychological but my feet swell up and change colour. I've looked at the symtoms of CRPS and I have a lot but it's been two and half years now and even though I get a lot of symptoms they aren't present all the time. I have also been to a psychologist who doesn't believe the pain is psychologically.

I have taken a number of pain killers Lyrica, tramadol, nortryplene but they do little to help. I've also had an MRI which was clear, so far I have been told that I have idiopathic chronic pain

I was just wondering if anyone had any advice or ideas as to what to look for in regards to getting a diagnosis. I feel like I'm running out of options.

Thanks for reading

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4 Replies

  • Posted

    Hi Wendy I to have the same diagnose only I was told that it can be with the cause of trauma as has happened in your case. Mine just came on with no cause and has been painful the last 3 years. I have tried everything and have been told just to control it with pain management. I have good days and bad days but have found that I can not do without my medication and have also found it is better when I am in a hot climate. Hope you find something just trial and error really.

    Carol

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  • Posted

    Hi Wendy my pain started in the balls of my feet. It was pediatrician (foot doctor) to find I had neuropathy. He recognized it just by symptoms. It is like other reply trial and err for right meds. Oh and a lot of patience. I know some days I want to cut off both feet,been told that is worse pain I don't know sometimes. Prayers and best wishes
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    • Posted

      This is not a criticism. Just so you know, a foot doctor is a podiatrist.
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  • Posted

    sorry too say but if its nerves that are damaged there's no cure for nerves had my pain since last year and the nhs have gave up on me wont give me any test all they say is pain clinic which do not offer any cure only a better way of life which is a joke more postive outlook on life hahaha 
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