Posted , 4 users are following.
Wow I'm amazed to see I'm not the only one in the world with this condition!
I first noticed (or should I say a friend pointed it out) on holiday in America when I was 14 yrs old, the weather was extremely hot and when I looked at my back I had patchy skin colour whichnlooked like I needed a good old scrub to wash off! I was mortified and thought to myself I must wash my back more than normal.
I'm naturally darker skinned (mixed race), after coming back from the holiday I noticed as much as I had scrubbed and scrubbed the patchiness hadn't gone, if anything it had got worse- more noticeable and had spread to my neck arms and chest!!!!!
By this point I was feeling unsure as to why and what had caused this to occur.
I saw many GPs and dermatologists, they had told me it was hyper-pigmentation, sun damage etc, etc, one dermatologist even called in a colleague to check out my skin like they had never seen anything like it before!!!! I felt like a freak show at this point, was given potions and pills that did nothing at all.
I'm now 28 and the condition has not deteoriated at all, I went to the doctors on monday and thought its been a while since I last asked for any help as I had given up. I lifted my top to show her my skin and immediately she gave me the name of the condition straight away! She told me to research this website and I can honestly say I feel so happy! I literally thought I was the only one in the world living with this! Quite clearly I'm not, I have been so interested reading all the other people with the same condition. My GP has given me a prescription of some formula to apply to my skin everyday, I don't know the name of it but am picking it up from pharmacy tomorrow, I even had to wait a few days for them to order it in as the pharmacist had to explain its not something they normally keep in store, making me feel like a freak yet again! I can't wait to use it and hope it makes a difference.
It will be really nice not to have odd looks or answer the questioning of 'what's that?' all the time.
I hope to get married one day and wear a nice dress that I feel confident in and not have to worry about covering up the patchy parts of my body, I would like to not wear body camouflage make up that one doctor previously had explained I could use!!!!
I know I have written my life story so apologies if your bored but I just can't explain enough how happy I am to have found this website.
Good luck to all you fellow sufferers :-)
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