I'm too scared of endoscopy side effects, should I still do it ?

Posted , 18 users are following.

Hello,

I'm new to the forums but I've been reading a lot of discussions about this subject but I can't shake the feeling that something might go wrong during the procedure or after!

I'm a 21 years old female (I live in France) and I've never had this procedure done before but I've been feeling sick for at least 6 months (it all started back in beginning of July after I vomitted violently in the morning because I ate too fast and I was scared for an exam) and I immediately felt my throat was burning and I started having trouble breathing. I've done many tests for my lungs since that day and they all were normal.So I started to think that it might have something to do with the oesophagus and reflux. 

My symptoms are:

-sometimes pain on the right side of the upper chest (associated with a pain in my back but not always)

-difficulty filling my lungs with air as if I had asthma

- reflux (not always acid, sometimes it's just what I eat that makes its way back up)

- hiccups and burps everytime I eat or drink something

-chest tightening after eating and when I wake up in the morning

My doctor sayed it would be better for me if I did the endoscopy so I said I would do it and I also chose the local anesthatic over the general anesthesia because I want to be aware of what happens and also because I would like to be able to resume working right after.

I've done a lot of research and what scares me the most about the endoscopy isn't the procedure itself but rather the side effects that may potentially result from it. I'm sorry if this sounds stupid but I can't help being terrified that these will happen to me:

-allergic reaction to the local anesthetic product 

-heart issues (I'm not sure why this can happen!)

-breathing issues

-I'm also scared of choking with my saliva when my throat will be numbed

-coughing blood in the days after the procedure

-infections 

-throat ache and not being able to swallow normally anymore

-irritation of my oesophagus or even perforation in the worst case scenario

Does anyone know what might cause these potential side effects and who are the people who are the most at risk ? 

Is it common to see appeat some side effects even days or weeks after the procedure ? Does the anesthesia have an effect on the heart (heart rate for example) ? 

Thanks!

 

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  • Posted

    Hi lavender blue.

    I'm due to have my scope tomorrow and I know I won't sleep

    tonight and my anxiety levels are sky high right now. I was

    encouraged by your bravery and others on here too about your

    experiences. I was all set to go for sedation but I'm not sure I

    fancy the idea of not being in control and possible side effects. I have been suffering since Xmas with a gnawing burning feeling in my stomach, both sides are sore and backache too. Lost a few pounds when it first started as appetite was non existent.

    Once on ppi meds i could finally eat much better. Also get

    acid occasionally but not all the time. When you google

    (not a good idea) everything always leads back to cancer of

    some sort so now I have myself convinced, so tomorrow is

    twofold. Petrified of the procedure and petrified of the results. Well done lavender blue for bringing this to the forum.

    • Posted

      Hi Carole

      I am with you, the option of doing sedation or not. I cough a lot so I am not sure to do awake or not. I have heard good and bad on both ways. I have mine on Mar 1st. Please reply to me to let me know which way you did yours.

      Thx

      Robin

    • Posted

      Hi robin. Just wanted to say that I did it and apparently was

      awarded the best patient of the morning too lol ! After reading

      these posts I was very aware that relaxing and breathing were

      the key factors in this being as easy as possible. The team

      could not have been nicer and sympathetic to my nerves which

      had gone haywire by the time I went in. I decided to go for the

      throat spray which was banana flavour but nasty at the same

      time. The effect was immediate but my fear of not breathing or

      coughing was unfounded. You can still swallow and this is key

      to staying calm and not panicking. I lay down on my left side

      and they put a guard in my mouth. The nurse just told me to

      close my eyes and follow her instructions and breathe and

      swallow when asked to. The doctor talked me through the whole procedure. I felt the tube on my tongue then the back of my

      throat, then he asked me to swallow twice and then it was down. There is pressure in your tummy and some air and you burp a

      few times then when biopsies were taken you feel a slight pinch. Then he told me the camera was on its way out and that was the only time that I gagged. Results were negative h pylori but mild Antrim gastritis but nothing nasty. Go back onto meds straight

      away. I asked the doctor if the pain I was experiencing would be right with only mild gastritis and he said yes that is very possible so .......my throat a little sore but not too bad, slight discomfort

      in tummy but used to that and for the time you are in the

      procedure I wouldn't bother having sedation. I really hope my

      experience will help you to decide which way it will be for you. Good luck and please let me know how you get on with yours xx

    • Posted

      Hi Carole

      I am so happy for you... I think if you did it and you sounded nervous and had anxiety I could too. You didn't feel you had to cough or clear your throat?

      When the throat spray took effect immediately did you not panic from what I hear and felt restricted and not breathe.

      So no gagging going in.... how long would you say it took.

      Did you see others with sedation how were they .

      No mention on why you have the chronic cough and the gastritis what causes this in your situation?

      One more thing did the nurses speak to you before, here they spend an hour before but maybe that is for monitoring for sedation.

      Bottom line did you start to cough again after the procedure and how long was your throat numb and you were able to eat?

      I appreciate your time with me .... my fear mostly is if I can't handle it I will get him to remove it and he won't do what I have been waiting for on my symptoms these past 15 months sad

      Robin

    • Posted

      Hiya Robin.

      Yes I think you can do it. I didn't feel the need to cough when the throat spray was done. I didn't have any gagging at all until the camera came back up and then it was only the once. The fear of not being able to breathe is just that....A fear. I could breathe normally and still talk and swallow. The doctor said he would time it for me and the whole thing took 4 minutes from the tube going in to coming out. I did see other people after sedation but they were a little out of it and lying quietly. No reason given for why I've got it or the cough except that I produce a lot of catarrh which is an irritant. The nurse took me in for an assessment took blood pressure and talked me through everything. She also made the endoscopy team aware of how nervous I was. Once finished I sat in recovery and the feeling came back pretty quickly. The taste isn't pleasant and my throat was a bit tickly which made me cough for a couple of minutes

    • Posted

      I was able to eat and drink 30 minutes later
    • Posted

      Thanks for your understanding and info with me. I was told from my GI that he takes 8-11 mins depending on how many biopsies he does.

      I am not sure I would want to go through 10 mins of the tube in me. lol

      So your not coughing now or back to coughing also what meds are you taking. I was put on lansoprazole ( Prevacid) don't think it really does anything cause I cough on the meds or notsad

      I did see an ENT back in Oct and he checked me for a post nasal drip causing the cough.

      He sprayed my nose same spray as endoscopy uses he said. He went through my nose behind my throat to my neck to my vocal cords. I managed that and watched him actually. I am going to think now as if I am doing no sedation, but keep in my mind maybe I will change it. Think of me on March 1st. Again thanks a bunch !!!

    • Posted

      Thanks for your understanding and info with me. I was told from my GI that he takes 8-11 mins depending on how many biopsies he does.

      I am not sure I would want to go through 10 mins of the tube in me. lol

      So your not coughing now or back to coughing also what meds are you taking. I was put on lansoprazole ( Prevacid) don't think it really does anything cause I cough on the meds or notsad

      I did see an ENT back in Oct and he checked me for a post nasal drip causing the cough.

      He sprayed my nose same spray as endoscopy uses he said. He went through my nose behind my throat to my neck to my vocal cords. I managed that and watched him actually. I am going to think now as if I am doing no sedation, but keep in my mind maybe I will change it. Think of me on March 1st. Again thanks a bunch !!!

    • Posted

      You are so welcome Robin. I'm also on Lansoprazole and also

      ranitidine (zantac). Both of these seem to work together for me.

      I think different meds work for different people. I will be thinking of you on 1st March. Please let me know how it goes and what

      you decide. I was definitely having sedation until I read

      comments on here and thanks to you all, I was able to make an

      informed decision on my treatment. You will do what suits you. Take care and keep us posted xx

    • Posted

      Hi I have tried both the same meds as you they get rid of my little heartburn it its this coughing and constant clearing my throat.

      That is my concern!

      Your dr didn't tell you how to get rid of your coughing? Did you go back to coughing after your throat was normal.

      I will keep you posted 😊

    • Posted

      Hi Carole!

      I'm sorry I didn't check your message earlier but I'm glad you finally did it!

      Going with the throat spray is a very good idea because you remain aware and in control of what happens and it happens so fast that you don't even have time to think about it! 

      If I had to do it again I wouldn't hesitate doing it again with local sedation only. The procedure isn't painful and I guess the gagging reflex is different for everyone. I kept gagging badly throughout the entire procedure but it's not that bad because your stomach is empty so nothing will come out except maybe a little bit of acid. I too was surprised to see that I could still feel myself swallow despite the throat spray. Breathing was also easy. 

      I also had a sore throat for 2 days after the exam and I also had a pain in my back but it all disappeared in a week. Now I feel fine and everything came back to normal and I finally know what I have so I absolutely don't regret doing it!

  • Posted

    Thanks Robin I will do. I also cough a lot and always seem to be clearing my throat which I've done for quite sometime but I have a friend who is a nurse and she said that sometimes these are

    classic signs of h pylori so will be interesting if this is the case.

    Every time I lay down to sleep tomorrow is running around in my head so the brain is not switching off lol ! Never mind will soon

    be done and then will know what I am dealing with. One thing is

    for sure, I will not be researching Dr Google for medical issues

    again, not these forums though coz these comments have been really helpful tonight. The Internet in general has brought me

    nothing but stress and worry since Xmas because of researchin gastritis which is what they have been treating me for . My GP is not suspecting anything really bad like cancer but it doesn't stop you worrying all the same It's only a few minutes so onwards

    and upwards. Will hopefully come back tomorrow and let you

    know how it went. Cheers

    • Posted

      Thanks... are you in the UK? I will be where you are next Monday. There is another person on this forum that has a scope on Feb 29th.

      I also have suffered from Hpylori in Oct 2014 that started all this feeling nauseated / slight headedness and coughing started Feb 15.

      I had been treated for Hpylori and redo breath tests every 6 months . I am negative to it. I too clear my throat and cough at night and in the day too. I have been tested for my lungs, heart, and everything in betweensmile

      I am curious what is causing the cough and what caused the nausea. I don't have that anymore but it was with me for a long long time.

      I will see how I feel when I get to the hospital and talk to the nurses that do this many times over . My dr doesn't mind he said its my choice. He will stop if I want the tube out but then I think I waited for so long .

      I too see so many horror stories on the net, I like this forum. I have seen s few outrageous statements on it but not too manysmile

      Try to relax ... how old are you ?

      I'm in my 50's !

      Robin

    • Posted

      Lee I think it's the same sedation as they use for a colonoscopy. You are alert after the procedure just a little groggy for some.

      Since you are sedated you need someone to accompany you home.

      Well that is what I was told by my GI, colonoscopy has a bad prep for the emptying and stuff you have to drink where has an endoscopy there is no prep.

      Thx for sharing , still thinking which way to do my scope smile

      Robin

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