I've been put on the watchful waiting list and am not sure if it's best.

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Basically, from the start - August 2013 I was suffering with bad period pain/cramps, bloating and extreme tiredness. I then had my implanon removed and had the Mirena coil inserted in November 2013. I suffered with heavy discharge, countless infections, thrush and bacterial vaginosis which resulted in weeks of antibiotics. The pain was really bad following the months from the insertion of the coil, therefore I went sent for an ultrasound scan at the hospital in March/April. I was told after months of waiting that they had found a tiny cyst, that it was physiological and that women get them all the time, it was nothing to worry about. After this, the pain gradually got worse, and it became a part of my daily life being in pain and suffering with back ache, sickness, dizzyness, extreme fatigue, and my legs would feel like they'd lost their function to walk if I worked too hard or stood up for too long. The dull ache sensation took it's toll on me most days and would result in me being in bed, having to take time off work. At this point, I lived at the Doctors.

I was told by te doctors that they thought it may be either: Endometriosis, Pelvic Inflammatory Disease, IBS, Primary Dysmenorrhea. I had to go for blood tests, swab tests, Gynaecology appointment for pelvic examinations and another ultrasound scan which I was told everything was fine. I even started paying for acupuncture and healthy eating plans where I started a gluten free diet (which was hell as I'm such a fussy eater!) - I thought it would've been the bread that was causing the sickness and bloating.

I then went recently for another ultrasound scan two months ago, yet again waiting months on end for the scans and the results to follow; for them to tell me that they'd found a 2.7cm long cyst in my left ovary which was haemorrhaged. I then had the contraceptive innjection because I opted to have the coil out once I sorted this cyst out due to the side effects of phantom pregnancies, sore breasts and bloating, therefore I would be protected from pregnancy and haven't had much pain since. Although still am dizzy and feel sick all the time, am completely exhausted and nap every day, my left side is really tender and it feels very uncomfortable. I have been old that despite all the symptoms I'm experiencing, I'm going to be put on watchful waiting and have to wait for another ultrasound scan appointment to monitor the cyst. 

I'm not sure if this is the best option? I just want it removed!

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  • Posted

    Sorry to hear what you are going through. I know what you are experiencing is not very nice as I have similar issues. You did not mention how old you are? If you are young they do tend to watch and wait and see as if the cyst is fluid filled it will probably disappear on its own. I am waiting for my surgery date as my cyst or tumour is in my ovary so it has to be removed incase it ruptures. This means I will lose my ovary and tube which is upsetting as I want another child. Normally one ovary and tube is okay but my other one has scar tissue because of previous surgery. All I can say is you know your body but they will only remove if necessary. I pray your pain goes away I know it's hard. All the best.

     

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    • Posted

      I'm 21 years of age and am a dancer. I haven't been able to do any fitness or dancing - the one thing that makes me happy!.. Due to this. I am tempted to go back and ask to see a different consultant. I would like a second opinion on the situation. The point is is that it's hard to deal with daily life when you're suffering from symptoms such as I am, not to even mention the sex life going down the pan for the time being! Its incredibly upsetting and frustrating feeling sick and tired all the time, having to take endless negative pregnancy tests and it being uncomfortable. I'm just so fed up with it, it being over a year now of all of this. I have two contraceptives in my body therefore I am constantly hormoral, angry one min and then crying my eyes out the next. It's never ending. Just need some reassuring I think. Thank you smile
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  • Posted

    Go and see your doctor and explain how it's affecting you mentally and physically they will remove it but you might have to wait. Just keep banging the door and some one will listen. I was fast tracked and seen by a consultant in two weeks this is scary as you always have cancer on your mind even though they said it's unlikely at 38 but two of close relatives died of ovarian cancer so it does worry me. I have two very young children. I hope your life returns to normal soon try and see a female doctor or consultant as they are more empathetic to your situation. When will you see the consultant again for a check up
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    • Posted

      I bet it was nice to be fast tracked. I've had months waiting for scans, results, tests etc. The more you wait, the more you worry. I am going back to my doctor next Tuesday to ask to see a female gynaecologist instead. Else I may have to think about going private rolleyes
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