I've suffered with pityrasis lechionoides chronicafir many years I've tried some treatments am on gg
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Its embarrassing I have no quality of life I'm always single I've had looks where people have noticed it n treat it like I had the lurgy its sooooo frustrating I'm not a dirty filthy person
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charlotte1989 michelle99949
Posted
Hi Michelle, have you tried phototherapy? I found that it really worked for me. The sessions took away 90% of he lesions but I did have a few (albeit not as severe) flare ups. I really think there is a link between stress and having flare ups.
I have been on holiday recently and the sun cleared all of the 'spots'. I was diagnosed with PLC a year ago now and I think it is something that I will live with for the foreseeable. You have to find something that helps to manage the flare ups and that includes lifestyle choices! I notice a correlation when I am run down and it getting worse too.
Avino bath oil really helped me too when it is particularly uncomfortable!
I wish you all the best!
Charlotte