I want my life back

Posted , 8 users are following.

I just recently got diagnoised with possible fibroid.

Transvag U/S tommorow will confirm it. Dr told me I have a 12 week uterus. Ive never had any problems other than heavy periods and clotting at times but virtually no pain. I went to the Dr with freq urination and pressure and since then ive had more pain. Last period was worse pain I had, so bad I was vomiting and doubled over. Gyno last week suggested hysterectomy however ,im only 44. Im not ready for menopause symptoms and she told me symptoms could be amplified after surgury. Ive been told fibrods are like spiders, they latch onto things and are sporus which causes them to keep growing back. Gyno said she would refer me to urogynocologists that specilizes in bladder dysfuntion and hysterectomy which means until then I continue to suffer. I havent slept in weeks. Its hard to get comfortable when fibroid putting pressure on bladder. I have to use heating pad for comfort and even then i still have frequency.

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14 Replies

  • Posted

    Hi there. Just saw your message. My first thoughts are:  You have not had an ultrasound yet , to confirm what fibroids you have and where they are and there is already talk of hysterectomy.  It is scary as you are in pain and that option is so easily used. I had an awful year last year with fibroids, and this year things are more settled , I never had a hysterectomy. I had a resection for a submucosal fibroid, and left the others. I took two course of eysma , 3 months course a gap of 2 months and then another 3 months of them.   If the symptoms can be minimised with other treatments then it may be possible to avoid surgery. Everyone's case is unique of course. If they could scan you and see where the fibroid is that is putting pressure on the bladder, maybe there is an option to reduce that fibroid or take that one out. I hope you can ease your symptoms with some other treatments soon when  you get the scan results. I know how awful it is going through it when you cannot see the light at the end of the tunnel and the pain is really acute. I took so many pain killers last year.   Best wishes and good luck. It is good to find out out how others get on , on this forum. 

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    • Posted

      My symptoms started a year ago with freq urination where my Dr put me on Detrol and told me it was due to anxiety. The detrol would work and aftertwo weeks id be off it. However, the symptoms would come up again. I went back tosame Dr who then put me on anti anxiety pills. No test were ever ran. 2 months ago, i got diagnoised prediabetic and my symptoms happen to amp up again, i startedtaking Detrol again with no relief. My father passed away last month and the symptoms got worse. I now think Ive had fibroids all along and stress just made them more symptomatic.

      I went to a urgent care three weeks ago thinking maybe I had a uti, the dr did u/s and reffered me to gyno which im seeing now.

      After confirming fibroid(s) today, she will talk to me about my options. But at the last appt she suggested hysterectomy. Im leaning torward a partial leaving ovaries so i dont go into menopause quickly, but i know there could be more options. Will keep you posted, thank you for answering my post.

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  • Posted

    Sorry to hear your situation, dont go down the hysterectomy route until you have looked at all your options. There are optons ranging from taking tablets like Esyma to shrink your fibroids for a few months to give temporary relief or myomectomy, where fibroids are removed surgically or the non-surgical route of UFE, which shrinks the fibroids. Once you have your ultrasound results look into all the options and then make a decision. I had multiple fibroids and suffered for over 10 years, in January I went for myomectomy and now have a better quality of life. Also be aware that some fibroids are fast growing and some are not.  The older you are the less likely the fibroids are to grow back.  Once fibroids start leaning on other organs like the bladder and cause problems its best to find a solution.

     

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  • Posted

    No suggestion of other alternatives?  Hysterectomy is not the only option.  Is your gynae a man or woman?
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  • Posted

    Hi sorry to hear you are in pain fibroids are nasty arnt they i hope you get everything sorted soon im goung in for hystorectmy in december after suffering 4y pain bloating heavy periods clotts im 49 so im readt to get this out of me
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  • Posted

    The same thing happened to me. Without even doing any tests, on my first visit, my FORMER gynecologist was pushing a hysterectomy because of my age and the fact that I would not be having children. As shell69386 stated, that shouldn't have happened....especially after I told her of my past medical history and that major surgery should only be done if it's a life or death situation. She totally ignored me, and like your doctor, sent me to a specialist for a consultation and to "schedule" my surgery. I wasn't going to be forced into anything, but I was in so much pain, that I was willing to hear him out but wasn't going to proceed with anything without the approval of my hematologist. The specialist told me it would be risky, but he's done risky, successful surgeries. However, I shouldn't rush into anything and to go back to my gynecologist and tell her she needed to consider a less invasive route. Now, he is the best in the state of Georgia. She was shocked!! Shocked but still not willing to let go of the route of a hysterectomy. She wanted to send me to another specialist, stating, "(Smiling) Three opinions are better than two, right?" I told her 5 doctors have told me I shouldn't have surgery unless necessary. Her response..."You'll be alright." I talked to my hematologist. Without hesitation, he quickly said, NO. Needless to say, I dumped her and got another gynecologist. My new gynecologist suggested a UFE and sent me for a consultation. Because it was minimally invasive, my hematologist approved it. I had it 5 weeks ago today. Don't let them force you into doing anything that you don't want to do and that is not necessary. Be your own advocate. Best wishes.

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    • Posted

      Hi Dedarnix,  have issues with my blood but never seen a hematologist yet though I think it should be on the cards re my blooding being sticky, clumping together, more likely to clot. I've just had bloods re-done this week to see if it's still like this & am hopefully due to have a UFE in November for my intramural 12x13x10 fibroid. Can I ask why your heatologist had to approve it, is it a clotting issue with you too re major surgery? So now that you have had your UFE your hematologist was happy re the possible complication of hysterectomy? You can private message me if you prefer.

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    • Posted

      I was diagnosed with a rare blood disorder 8 years ago...which is why I see a hematologist. I've been in remission for 6 years. However, it is a possibility that it can come back at any time...6 months, 10 years, or it may never come back (my doctor feel pretty good that it won't). I'm claiming my healing 😊. For me, though I have other health issues, this is the one that could take me out. So, that is why his approval is more important to me than my other doctors. The blood disorder is complicated. There are risks for bleeding and clotting (weird, I know). But, besides that (because I'm in remission), I have a history of blood clots on my lungs and I take blood thinners. Plus, a major sickness (risk of infection) could possibly bring me out of remission. My hematologist didn't think twice about saying no to a hysterectomy. LOL. He didn't want to take any chances.

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    • Posted

      But he was fine with the UFE, but you got sick? But they gave you antibiotics because your White Cells were taking over? That happens to me. I'm awaiting my tests back about rouleux next week as last time it was ?? unexplained abnormaility. Fingers crossed this time is ok, nurse shook the samples to stop them clumping so test would be more reliable she said. If it comes back wrong again I've to see a dr re going on blood thinners but I think I should see a hemotologist in person if there is still an issue. Good luck with a good result after UFE. xlol

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  • Posted

    I agree you may find relief with taking Esmya to shrink the fibroids, or UFE to kill the blood supply, surgery is definitely not your only option. I have been suffering for nearly 10 years with them and can't help wondering what things I might have done if I didn't have them, but I have resisted a hysterectomy. 

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