1. Community
  2. Women's health
  3. Lichen Sclerosus

I was diagnosed with LS in December

Posted , 4 users are following.

mary2908
mary2908

I had had acute discomfort on and off when passing urine for some months and was finally referred to a consultant in Dec who diagnosed LS and presribed Clobetasol.When I was applying it every day (month 1) and then alternate days (month 2), my symptoms disappeared - BLISS! This month, I am on twice weekly applications and my symptoms have returned. I don't go back to the consultant till May (have a further month of using Clobetasol weekly to come).  Would you fellw-sufferers advise trying additional, non-steroid treatments?

Thanks

0 likes, 4 replies

4 Replies

  • AZM
    AZM mary2908

    Posted

    Hi Mary

    I had a very similar experience and was able to call my gynae.  She advised me to use what is most comfortable for me until I see her again in May - that is a "smidgen" of clob applied every evening. It is really a case of using a minute amount of clob that does the trick for me. Have you tried rinsing after each toilet visit?

    Hope this helps

    AZM  

  • renee77108
    renee77108 mary2908

    Posted

    I have been doing a ton of research and have found some interesting information. I have the crazy itching it's been driving me insane...so have been looking for solutions. Here are a few things that I found.

    Use a solution of organic castor oil (4tbsp mixed with 2 drops lavender oil and 1 drop lemongrass oil) (Do not use essential oils straight...you must use a carrier oil like castor oil) This gives instant relief of itching and burning.  Tears heal and skin will regain it's healthy pink color again. Castor oil is very thick and odorless so it stays on the skin well throughout the day.

    Here's another recipe I found for a itch relief spray:     Itch-Be-Gone Recipe

    Fill a 2 ounce spray bottle to the shoulder with witch hazel.

    Add the following essential oils (not fragrance oils!):

    5 drops Lavender

    2 drops Frankincense

    3 drops Tea Tree

    Label your bottle, shake it up, and use – that’s it!

    Why these ingredients

    Witch hazel makes for an awesome base since it’s naturally astringent and soothing.

    Lavender – Lavandula angustifola, not Spike Lavender which is Lavendula latifolia, or Lavandin – due to it’s analgesic (pain-relieving), anti-inflammatory, cicatrisant (cell-regenerative and scar-healing), anti-infectious, wound-healing, and skin-healing properties.

    Frankincense – also analgesic (pain-relieving), anti-inflammatory, cicatrisant (cell-regenerative and scar-healing), and skin-healing properties.Tea Tree – anti-inflammatory, antibacterial, antifungal, antiviral, and anti-infectious.

    Also have read that many are seeing incredible results with diluting apple cider vinegar with water as a spray...and also drinking it.  I'm starting with 2 tablespoons once a day in some non-citrus juice as I've not researched yet what the recommended dosage is...but will get back here with any new found information.

    Try baking soda baths or compresses.  A cup or two of baking soda in a warm bath...sit in it for 15-20 minutes (or use a sitz bath). Or a couple of tablespoons of baking soda in two cups of warm water...soak gauze or clean cotton strips of cloth in the solution and apply to the affected area for 15-20 minutes.

    Also, pure aloe vera gel really helps with the itching.

  • hanny32508
    hanny32508 mary2908

    Posted

    Renee already mentions the baking soda.  I add to that my coconut cover after the rinse; cutting out sugar and gluten.  Try to avoid stress as much as possible.  

    Globetasol is fine, but don't overdo it.   

  • mary2908
    mary2908

    Posted

    Thanks, everyone - this is all SO helpful! I wish I'd found this site earlier.There's great solidarity in knowing I'm not alone and you folks have offered sound advice here which i shall take on board.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.