Im in remission but scared to flare up. Anyone here in remission any advices for me?

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June 1.36 to July 1.18 TSH

TSI 5 2014 then in July is 1.4

T4 1.1 in July

T3 95 in July

I was going to be OK with taking 2.5 mg per week or every other week but endo said no need.  but im still taking vit D, L carnitine, multi vitamns no iodine, and krill oil.

Which test should i always be concerned with now?  How often?

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  • Posted

    Hi hypnocool, According to your numbers, I assume you are now euthyroid from hyperthyroidism/GD (don't know if you were diagnosed with GD before and don't know what 2.5 mg med is). However, I am not sure you are now in remission. For what I know, remission from GD means passing one year without taking med and still keeping test numbers in normal range for the year and going forward... If you are in remission now (meaning you haven't taken med since at least 1 year ago), then just do the same tests (TSH, T4, T3, TSI..) every 2 to 3 months should be ok (I think). But you can always ask your doctor/endo. My question for you: it seems that your TSI was/is quite normal, so were you diagnosed with GD or just hyperthyroidism, or something else? 

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    • Posted

      My test were thru the roofs TSI, TSH undetectable, t4 t3 screwed up in 2014.  I have Grave's and TED during first diagnosis.  I am in remission since June 2017.  my endo checked my TSI and said its good enough to get you in remission and stopped taking methimazole.  my endo got me on TSH every 3 months for 2 months then 6 every 6 months....still keeping me monitored.... i told her i dont want it to be too late we have to keep an eye on it.

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  • Posted

    My test were thru the roofs TSI, TSH undetectable, t4 t3 screwed up in 2014.  I have Grave's and TED during first diagnosis.  I am in remission since June 2017.  my endo checked my TSI and said its good enough to get you in remission and stopped taking methimazole.  my endo got me on TSH every 3 months for 2 months then 6 every 6 months....still keeping me monitored.... i told her i dont want it to be too late we have to keep an eye on it.

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    • Posted

      I think you are just in euthyroid now and just took off med few months ago. Look good. I surely think you don't need to worry too much (anxiety is no good). Just enjoy your recovering life. I hope I can be like you in recovery from GD soon.

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