In agony please help me get a bit of release

I also take nureofen every four hours.

Hehe, I mightn't be the right person to ask because I'd just take as much pain relief as was required,, fcuk this tiny measly dose, what's the worst thing that can happen except feeling a bit stoned ;D If your GP moans tell them so what what do you expect I'm in flipping agony you jokers

Endometriosis grows in the presence of estrogen. I have been treated 6 x with a drug called depo Lupron. It is an intramuscular injection that you get once every month for 6 months. It turns off your ovaries and some call it "chemical castration" it puts you in chemical menopause and you have all menopausal symptoms like hot flashes. But it turns off your estrogen allowing the endometriosis lesions to die.

I was infertile because of the endometriosis but after the 4th course I got pregnant. 9 years of infertility. I was thrilled. Pregnancy also helps with the lesions but after about a year after delivery the endometriosis flared again. 2 more rounds of depo because I wanted one more child. My doctor said I should just have a total hysterectomy (including removal of my ovaries, which again turns off the estrogen).

Now days there are birth control pills that make you only have a period 4xyear. Wish I had this option. My endometriosis caused the worse pain during my period when the extrauterine lesions would slough causing peritonitis. Oh the pain was horrible. During my lap they found lesions on my bowel, bladder and the peritoneal wall.

I went ahead with the hyst and now am completely pain free. Kind of sad that I didn't have a third child but guess it just wasn't in the cards for me.

Hello there,

I know exactly how you feel, I am currently undergoing tests due to lower abdominmal pain, and by this I mean excrutiating pain. My GP believes I have endometriosis and has beleived that since the start of my problem!

I have been backwards and forwards to the GP and each time I have been prescribed stronger and stronger pain killers, this has lead to me now being on OraMorph and a 25mg Fentanyl patch.

I saw Gynaecology 3 months ago as I was referred by my GP, basically I was told I hadn't been in pain long enough and I had to give it another 2 months before they would reconsider doing a laproscopy. You can imagine how I felt about this, already have been in pain for 3 months and taking a concotion of pain killers, including Tramadol before I saw the consultant for the assesment.

Anyway, I have waited the 2 months I was told I would have to wait and I have been up to A&E twice... once to be told that I had a urine infection and was treated with antibiotics, which by the way didn't do a thing and the second time I was told that I am imagining the pain and I need to come off all the pain medication!!! Needless to say once again I wasn't very happy with the outcome so went back to my GP once again.

I have been to the GP 100's of times over the past 6 months and I feel I haven't got anywhere at all! I have been signed off work for 6 weeks as I am unable to function without the strong opioids! Which as you can guess have the added side effect of making me feel high! And not even a nice high! My appointment for review with the gynaecology has been moved back to the end of November, I have personally tried to contact them and move the appt, explaining my situation and that I am now on the strongest of opioid medication, I was told yet again that I couldn't be squeezed in and would just have to wait. My GP has now written to them and is yet to receive a reply as to whether or not my appt can be experdited.

I am discusted with the service I have been provided, despite my GP trying to do everything she possibly can for me the NHS is shocking!!

I hope that you get sorted soon. It is terrible that people have to go through so much pain, both physically and emotionally.

Hi, I have been suffering from Endometriosis for 4years now. I had Endo in my bowels. I had to have emergency bowel operation as they were blocked. Since then I have had keyhole surgery to remove Endo and adhesions, and last year I had a partial hysterectomy. I'm still suffering a lot of pain each month. I am seeing pain management team and they gave me a TENs machine to help cope with the pains as painkillers were not helping at not. I don't know how to cope with the pains. Sometimes when I go for a pee it feels like my insides are on fire, burning, stabbing pain. I hate going to the toilet. I have lost interest in eating foods, I have to force myself at times to eat. Can someone tell me how they manage on a daily basis with the pains?