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I would love to hear from anyone who has personally experienced, or knows someone who has experienced an attack consisting of this set of symptoms.
I would also be extremely interested in hearing from medical professionals who have witnessed this in patients, or are able to provide insight for diagnosis or research.
Starting around the onset of puberty, I began experiencing recurring episodes of extremely foul 'rotten egg burps', along with severe nausea, severe abdominal pain spanning from middle of ribcage down to lower pelvic region, severe vomiting and bile diarrhoea. The attacks last around 6-8 hours each and are unabated by anti-emetics or prokinetics. These 'attacks' usually happened a few weeks to a few months apart.
These attacks are considerably more severe than traditional gastroenteritis from common 'stomach bugs' or infection.
I've been to hospitals, doctors and gastroenterologists multiple times for this, however it seems no medical professional has ever seen or heard of this happening. The gastroenterologist who assessed me during an attack once described it as "I've never seen anything come close to this in my 40 years as a doctor.". I also have asked all family members, and there is no family history of this occurring.
Pathology tests of vomitus and stool return negative for H. Pylori, Giardia Lamblia, Campylobacter, Salmonella and Shigella. LFT is within range, with no elevations for WCC.
Endoscopy screenings show no notable dysfunction, including gastroparesis. Acid reflux disorder was diagnosed early on and treated with PPI however attacks commenced during PPI treatment.
Noteworthy: These attacks began a few weeks after introduction of Ritalin 10mg and Fluvoxamine, and continued to occur for many years after discontinuation. There was no medication being taken at the time of attacks.
I'm currently in the stages of collecting data on this curiously under-represented 'condition', in the hopes that it may be presented for professional research.
My biggest concern is that this condition can prove fatal by leading to asphyxiation or heart attack, and is very often mis-diagnosed as more common and non-threatening issues like GERD or typical Gastroenteritis.
With that, if there is anyone who can help, I would be extremely grateful. This has admittedly been quite a traumatising condition to deal with, but with other people experiencing this too. Feel free to comment below, or send a private message to me. If you are interested in providing info on your experience with these attacks that may help, I would be very interested in doing an interview.
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