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Is Esmya available on the NHS? Where?

Posted , 5 users are following.

m51
m51

I have posted about being prescribed Esmya by my Consultant.  This has been denied through the NHS in Oxfordshire, apparently it is not formulary.  I have appealed.  So far I have paid for my first month privately. That is £150 per month.  

Has anybody been prescribed Esmya on the NHS?  And where?  

Please help me gather information that can help with an appeal and for future cases.  

0 likes, 15 replies

15 Replies

  • jeanette09923
    jeanette09923 m51

    Posted

    Hi m51. I got mine from my GP. Consultant wrote to him and asked him to prescribe it for 3 months. 

    As regards its effects the not bleeding was great until the end of the tablets then had period from hell. They were unmanageable before. Beware and ready for that. Had severe fatigue whilst taking it but not much else. Did not have any effect in reducing pain once tablets finished so back to square one. Would never consider UEA just personal decision. Wanted final over and done with. Now 6 weeks post op and feel so good. Try your GP you should only pay prescription charge. Good luck

    • m51
      m51 jeanette09923

      Posted

      Hi, thanks for your comment.  I have tried my GP, they told me that NHS Oxfordshire hasn't approved it, so could only give me a private prescription.  Where are you based?
  • jeanette09923
    jeanette09923 m51

    Posted

    I am in Bedfordshire. I took it last year from Oct to Dec. I am also in my 50's but had no sign of menopause. It is very expensive medication and its effects if good can last you 6 months. Better than injections as if side effects are too bad you can stop taking it. You can't take the injections out. 
    • m51
      m51 jeanette09923

      Posted

      Thanks again.  I am seeing my GP again next week.   I am going to go with a list of where Esmya is available on the NHS.  And it would be even better if someone here replied that they got it somewhere in Oxfordshire.  It is so unfair that I have to pay for medication that has been prescribed by a specialist, for something that is an approved medication.  
    • mandy79780
      mandy79780 m51

      Posted

      I am in Oxforshire and had it prescribed free by 2 surgeries, i moved house a few miles after i started it and the second surgery did comment how expensive it was but i still had 2 packs of tablets from there before i finished with it and had my surgery. Please private message me if it helps to know exactly where i am
    • m51
      m51 mandy79780

      Posted

      Thanks you, I will private message you.
  • jeanette09923
    jeanette09923 m51

    Posted

    Yes I agree and if you feel well on it and it shrinks fibroids well enough for other treatment to work it has to be cost effective. Our wonderful NHS. We have all paid our NI but when you need something out its not so easy. Hope you get some more responses. I believe the injections are not much cheaper so it seems very silly to penny pinch.
  • m51
    m51

    Posted

    Hi, thanks to all of you, I am pleased to report that the next two packets of Esmya have been prescribed by my doctor on the NHS. I had to put up a fight, but a result nevertheless. After some heated discussions, the doctor said that he would agree now as the second letter indicated I was having an operation, and not on the first one, which only mentioned to go back to see the consultant after the first three months of having it. I hope this may help others.

    I am now almost half way through the first packet, the period was very light the first few days, and has now stopped. In general I am feeling much better than in previous months.

  • jeanette09923
    jeanette09923 m51

    Posted

    Very pleased for you M51 well done for sticking to your guns. Hopefully no bleeding at all next month. I wish you well.
  • jeanette09923
    jeanette09923 m51

    Posted

    Very pleased for you M51 well done for sticking to your guns. Hopefully no bleeding at all next month. I wish you well.
    • m51
      m51 jeanette09923

      Posted

      Thank you Jeanette, I hope so too, as I will be on holiday. Fingers crossed.
  • patricia27802
    patricia27802 m51

    Posted

    Hi I have been prescribed Esyma through Lancashire NHS and paid for a standard prescription charge for 3 months of Esyma so do appeal as that is a disgrace. Good luck
  • patricia27802
    patricia27802 m51

    Posted

    Hi I have been prescribed Esyma on Lancashire Nhs for a standard prescription charge and have had 3 months of Esyma so do appeal. Good lick
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