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Is there anyone else here who has this but is a non smoker? I've never smoked!

Posted , 9 users are following.

caroline79096
caroline79096

I'm age 41 diagnosed aged 38. Non smoker.

Thou I've had Asthma since age 17. Along with spinal problems.

0 likes, 17 replies

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  • craig59387
    craig59387 caroline79096

    Posted

    Hi Caroline

    Yes im a non smoker , still waiting for a diagnosis x-ray with hyperinflated lungs the only positive test that mentioned copd.Its a bit of a long story

    all the best

    Craig

    • caroline79096
      caroline79096 craig59387

      Posted

      Thank you. And good luck. I just go for a spiro test yearly or so. Inhalers and pills but try to keep as active as possible. It helps a bit.
  • aitarg35939
    aitarg35939 caroline79096

    Posted

    Hi Caroline

    If it's any comfort to you, 25% of all kinds of COPD cases in the States are in folks who never smoked. At least that's what my pulmo says. I smoked for a long time but also have environmental causes and health causes, namely a terrible lung infection in the '80s.

    Take care of yourself & keep up the exercise.

  • hypercat
    hypercat caroline79096

    Posted

    Hi you can also get copd from being in close proximity to smokers for years ie parents who smoked.  If you work in certain industries ie the rag trade you can also get it. 

     

  • lori08956
    lori08956 caroline79096

    Posted

    I've never smoked. My lungs were severly damaged from a bone marrow transplant. Rejection is similar to cops. I also have BO. FEVis 20%. O2 24/7. Getting pre tests for lung transplant

    • caroline79096
      caroline79096 lori08956

      Posted

      That's awful. At least it's not just me. Most think it just linked to smoking.x

  • grace96774
    grace96774 caroline79096

    Posted

    I have retired and was sick several time and when i went to the dr. they said that i had asthma.  I had some other family members who wheezed and had asthma, but didn't know or think that i had asthma.  I never smoked and tried to keep our home clean and free of possible breathing issues.  After using the puffers that was recommended by the health care professionals much to my suprise, i found out they made my condition even worse. Now i am wondering what else i could do.  I guess that a lot of people have breathing problems.

    • craig59387
      craig59387 grace96774

      Posted

      Hi Grace

      I was also given an inhaler , which made my problems much worse.

      Im still trying to get my problem diagnosed...had an x-ray which showed hyperinflated lungs and mentioned copd.I think its advanced since then to emphysema..

      I think without the inhaler i would have been in much better health .

      I hope you getsome answers and useful advice

      All the best

      Craig

    • aitarg35939
      aitarg35939 craig59387

      Posted

      Just FYI, COPD is an umbrella term and emphysema is under it's shade.

  • Vee2
    Vee2 caroline79096

    Posted

    If you've not already done so, ask for an alpha1 antitrypsin test.

    British Lung Foundation can offer you more advice, you can email them or phone their helpline.  (search box top right - 'British Lung Foundation' will show page with link to their site.

    If you do not reside in UK contact the Lung Foundation or Association in the country you are currently living.

    • caroline79096
      caroline79096 Vee2

      Posted

      Ok will ask about it as other things wrong. Probably all linked x
  • sue28894
    sue28894 caroline79096

    Posted

    Yes Caroline I have never smoked either and was so shocked when the doc gave me this diagnosis. But my parents smoked and I have had allergies all my life and some mild asthma. He says I have obstructed breathing but nothing shows on x ray or ct scan. I am on Zenhale and have to be careful about not getting chest infection. My lung function is 62%. Hope you get the answers you need.  Sue
    • caroline79096
      caroline79096 sue28894

      Posted

      Sounds much like. Myself. I think Asthma can turn into c o p d after Lon years of damage. At least it's not just me seems a fair few like us.

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