Just been diagnosed with FMS

Posted , 6 users are following.

Dr today has told me that I have Fibromyalgia, this diagnoses has taken 10 years to happen! I have been through so much constantly thinking that I'm going mad!! But every makes sense 

 

0 likes, 6 replies

6 Replies

  • Posted

    I have had fms since january 10th 2014 and its still driving me mad you never know each morning whats going to happen to you nexts i have sufered with a realy bad headache for 6 months now and none of my drs will help me. I started of with an op in 2005 on my spine then in 2006 i had another op on my spine again then later on in 2006  i had an injection in my spin which was so horrible it hurt like crazy but low and behold it bid nothing for my pain. But the surgon said if my back went again there was nothing he could do. Then in the begining of 2014 the pain was unbearabull so on the 10th jan i went to see my gp and he said i had fms and it was all down hill from there he didnt tell me anythimg about fms so i googled about it and thats where i found out all about it. I have an appontment on oct 15th to see a pain specilist to see what he has to say so hun i know what you are going through its so anoying having fms and ibs 
  • Posted

    hi there, I know exactly how you feel

    im fairly new to all this too, my GP told me she's pretty sure I have FMS but I'd have to see a rheumatologist to confirm. My appointment is on Tuesday and I can't wait! I know confirmation won't suddenly make me feel better but just knowing I'm not dreaming it all up will be brilliant!

    everyday I wake up in huge amounts of pain, I never feel refreshed from sleep as I never really have a proper sleep, I can't roll over in bed, I have to have pillows under my knees as I can't straighten my legs and I have to keep my arms and hands in a certain position to avoid cramps and pins and needles. I'm still working but have had to reduce down to 28 hours and even that is killing me.

    this is a horrid cindition, it causes so much disruption to our lives and yet most people think we are just hypochondriacs. I'm hoping the confirmation will prove to everyone, and myself that what I'm feeling is real.

    i wish you well and although I feel sorry you have it I imagine you're feeling much better in knowing what's causing you such a hard time xxx

  • Posted

    I was lucky I guess it took me only a year for a diagnosis but I was just glad at the time that I knew I wasn't going mad cos I was begining to think I'd lost my marbles. It took my job from me. Medications help with the pain and symptoms somewhat. Are you on anything for it? 
  • Posted

    It took 10 yrs for me to get THYROID support..... so much FM and thyroid are connected.....

    Get the thyroid fixed and things may not be as bad for you. I've posted about this connection elsewhere here...

  • Posted

    Hi there, join the club with us lot on here. I were diagnosed 3 years ago now, and I feel worse now, although i am still having different checks as they think I may have ME as well. Great news.. Regards Anne
  • Posted

    How do we get out of bed??? Finding it so so hard to do this in the mornings? I know we all suffer this same affliction but how.... Oh I'm sorry I'm having a moan!! I'm new at this diagnosed thing. Just having hard time with kids and sorry men my husband too!!! I know nothing really has changed for me over a few days of being diagnosed but it's almost like my family thinks I'm fixed just because I have a name to the problem well I suppose they need to get come to terms too just wish they would let me sleep!!! When I can that is! 

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