Just diagnosed 2 weeks ago

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

it's been years trying to get to the bottom of this its so hard 

so glad I found this group to join , to share with other people I keep a diary of everything , consultant wants me to go for flexi sigmoidoscopy to see how bad it is bit scared about that 

0 likes, 6 replies

Report

6 Replies

  • Posted

    Hello Julie. No one likes medical procedures but I have had a flexible sigmoidoscopy and it is more uncomfortable than painful. It took about 15minutes and showed the diverticular pockets very clearly. Good to finally have an answer but, unfortunately there seems to be very little medication that helps. Like many people, I have tried every thing possible including natural cures and complete change of diet. So grateful to have everyone on here to talk to. Good luck to you Julie x
    Report
  • Posted

    Hi Julie. I went for the flexi but when I got there my bowel was so empty they did full colonoscopy. Like the other person said it was not painful just odd. It reminded me of when I was pregnant and fell the baby kick and move under my ribs. I'm four weeks diagnosed here and I have had more support and insight from this site than the doc who diagnosed me. He also said my symptoms were ibs too. He told me I wasn't going to die. Not sure if he was being sarcastic or not. Welcome to our little family xxx Lisa x
    Report
    • Posted

      thank you lisa yes it's took 4 years nearly to get this diagnosis glad I found  this group learned so much from you all xx
      Report
  • Posted

     Hello Julie,  I have posted this on here before so you may have read it before....but the following has helped me over the years......:-    I expect you have read some of my replies to folk on here.  I have had Diverticular Disease since 2006.  There are a few rules to follow - NEVER have seeds, nuts, pips or skins (not even dried fruit as the seeds and pips are still there; only smaller and dried) as these bits of nut; seed and pip can lodge in the DD pouches/pockets.....and the first you know is when they have festered away for several days and suddenly you get hit with the pain you have just had; yes - you think you are dying......and left untreated; you likely would.  I am not scaremongering; but his is a serious condition we have; and we need to make life changes to reduce the bouts of infection. Also avoid veg and fruit skins as these can get stuck; that means sweetcorn and peas and pulses generally are a no; no.  Find your own way with the "windy" veg like cabbage; broccoli; leeks and onions - I am fine with them; some are not.  Likewise garlic and spices - I cannot tolerate them; others eat them and are fine.  These windy veg and spices do not cause infections; but our guts react to them quickly with pain that is a response and reaction; which can be as painful as an infection.  The other thing to remember is NEVER to get constipated.  Take something like Fybogel to keep things in that department regular.  Straining a gut that has weak points; can created new pockets/pouches (and we do not want any more of them than we already have!!!) Even following all the "rules" on diet; I was ill more than I was well from Nov 14 til July 15 - but then from advice on here; I began taking high dose acidophilus from the UK Holland and Barrett health stores (20 billion) which are healthy bacteria for the gut.  I have been well since July 2015.  It is a JOY not to be in pain.  I wish you well with all the changes you make...I can have red meat, pasta; pizza with no problems. Some say red meat gives them pain.  While your gut is inflamed; keep your diet light, bland and LOW fibre - as you get better and the gut pain goes; increase your fibre intake.

     

    Report
    • Posted

      hi Christine 

      thank you yes I have seen your notes they are very helpful I got them from Holland and Barrett 

      had 2 bad attacks at xmas gp was rubbish just left me basically so insisted he referred me to specialist and have changed my gp so glad I found you all and thank you for talking the time for me xxx

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up