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Just diagnosed, scared & depressed.

Posted , 5 users are following.

sue_71800
sue_71800

Last week I had pelvic pain, off & on sharp, & bulging where there shouldn't be bulges. Went to gyn, diagnosed w/cystcele. He said unless it bothered me it could just be left as is, if bothersome he would do surgery. So I was relieved & figured it would get better.Wrong! I feel like something is irritating my urethra and still have intermittent abdominal & vaginal pain. I figured the surgery would be out patient, quick & easy recovery. But I found this group, thank God & realize that's not the case. Has anyone had these symptoms? I have a long history of UTIs, but feel no burning when urinating so don't think I have developed Uti, but have pressure on urethra that comes & goes. I am scared to leave the house. I'm overweight but in good health. I'm 67 years old, retired & live in the U.S. As I have told my husband & my doctor, Women & horses are poorly designed. smile

0 likes, 9 replies

9 Replies

  • chris00938
    chris00938 sue_71800

    Posted

    Sorry to hear this has happened Sue.  I am NOT a doctor and am only guessing, but I'm wondering - are you able to fully empty your bladder when you go?  This doesn't sound like a situation that should be left to me and my personal opinion is that you need to go back and find out exactly what has happened, and if it can right itself.  I wish you luck.  I had an anterior repair when I had a hysterectomy and the repair aspect was bliss - no pain or anything.  BUT it only lasted about 8 months and then I was back where I started!
    • sue_71800
      sue_71800 chris00938

      Posted

      Hi Chris. Thanks for reply. I feel like I'm emptying bladder okay

      Some days are OK. I've had one day that I felt normal, but mostly have occ vag pain.

      Feel like my pelvis is held together with string & the strings are being pulled.

  • patricia82655
    patricia82655 sue_71800

    Posted

    Hi Sue

    I can't offer you help with the on and off sharp pain, but I just want to say dont be scared. I was diagnosed a year ago and I to have found friends on this site. I thought I would have surgery to get it over and done with BUT having found this site I soon realised it wasn't a quick thing to have done. I have no pain and both my waterworks and bowels work well. I do however make sure I dont get constipated as that is the worse thing you can do. I refused the surgery and went for  pessary. I tried several and have had a shelf pessary inserted for the past few months. It was ok but a week ago after a holiday it just fell out. I have a support garment that was designed by a nice lady on this site and I used to wear it when walking or working in my fields. I to have horses and find it really helpful. I intend not to have a pessary fitted again and just use this support and get on with my life until such times as this change. I hope this is helpful to you and I agree with Chris go back to your doctor for more investigations. Good luck and keep in touch. The ladies on this forum are an amazing help

    Regards patricia

  • lynn53651
    lynn53651 sue_71800

    Posted

    Don't be scared to leave the house Sue. You do not have a life threatening condition. You have a weak pelvic floor that has caused you a slight prolapse it sounds like. It is important you have good bladder flow and maybe wouldn't hurt to drink cranberry juice. It helps keep the urine from getting UTI infections. As well you should try to do some pelvic floor exercises to strengthen your pelvic floor. They are not difficult to do and you can watch them for free conducted by a pelvic floor physio therapist. I will private message you with further information on those exercises etc.

                                       Lynn

  • nickie54687
    nickie54687 sue_71800

    Posted

    Hi Sue,

    First I can understand you're being scared and depressed.  I think we all are at one point or another.  I am 71 and in Canada.

    Since you are in the US, if you have insurance, I would ask to see a uro-gynocolosit  ASAP.  There are fairly simple tests which take about about 1 to 2 hours to complete where the specialist can see exactly what is wrong both with your water works and your rectal issues and recommend the best course for you.  3 months ago yesterday, I had a hysterectomy with anterior and posterior repairs (they removed he uterus and tied down the bladder and fixed the rectum which had a large tear from the weight of the prolapses). 

    There were rough patches in the first 2-3 weeks mainly to do with constipation and urine leaking and a blood clot passing  but these cleared up just like the people in this forum told me they would.  The doctors rarely tell you of any of the "bad" things that MIGHT happen in case they don't.  For some people, they actually don't - I have a friend who had no post-op issues.  But most of us have something.

    Bottom line is that I am now totally back to normal and feeling great.

    Hope this helps in your decision about what to do.  But we don't shoot older women unlike horses!!!

    Nickie

    • sue_71800
      sue_71800 nickie54687

      Posted

      Nickie,

      I forgot to mention that constipation is what started this mess. I tried to eat healthy & this is what I get! smile

      Also I'm more aware about lifting things

      But both of my cats weigh over 10 lbs each!

      So glad you are doing better. I just feel like my pelvic region is held together with strings & something is pulling them.

    • chris00938
      chris00938 sue_71800

      Posted

      Sue, you've just reminded me of when I came home after the prolapse repair and hysterectomy - For the first weeks I sat with a huge tray on my lap because I was terrified the cats would jump on to the pelvis and strain something, then I graduated to a newspaper (they didn't jump on top of a newspaper)!  But protection, if it's needed, is useful:-)
    • nickie54687
      nickie54687 sue_71800

      Posted

      Hi Sue,

      Constipation seems to start the mess for most of us.  It's the first sign (my opinion) that something is wrong down there.

      As to the cat, I had been told nothing over 10 bs for 6 weeks post-op.  The cat was a total wreck - he is 14 lbs - constantly asking to be picked up.  When I mentioned this to the surgeon, she said Snackers could be an exception since he wasn't "dead" weight.  I bent down at the knees and lifted him once - he purred and  promptly ignored me the rest of the time.  I guess it was the principle of the thing that was bugging him - CATS. 

      So enjoy the cats at least.

      Nickie

    • chris00938
      chris00938 nickie54687

      Posted

      I think the '10lb' thing possibly varies depending on how fit someone was.  I didn't lift anything anywhere near 10 lb for quite a while because I could feel a strain well before that point, so my muscles possibly were in a worse condition than some others where 10 lbs was fine.  Just saying - to be careful and not assume that 10lbs is OK - err on the side of caution:-)
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