Just diagnosed with Hyperthyroidism - any advice appreciated!

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To Beryl38883 and others - I'm in the same boat sad

Recently diagnosed with Hyperthyroidism, but no other information has been given to me about what is causing it.  There was a 4 month wait to see the specialist, and my GP has put me straight onto Propranolol and 40 mg Carbimazole. My heart rate and BP were through the roof and the Propranolol has definitely helped with that. I've been given very little information and just sent away with this hard-core drug Carbimazole, but I am taking it as my understanding is that it is one of the few starting options? I am worried that it is a high dose, but would be interested to hear other people's experiences of that.  I would also be very interested if anyone could recommend any supplements to support this process as I do believe in natural therapies as well, to help get the body back on track!  Thanks smile

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6 Replies

  • Posted

    Hi elmt. Do you have any details about your TSH, T4 and T3 levels? 40mg is usually the dose given to completely shut down your thyroid. If your levels are extremely high, then it's often prescribed at that high a dose. My T4 was about 50 and so quite high but not as high as some. I was started on 20mg of carb and started to feel better after 4-6 weeks. Some people are put on what's called block and replace where a high dose of carbimazole is given (40mg plus) and then the thyoxine is replaced with another drug (levothyroxine). I hope you get on well with the carbimazole. Personally, I would probably start on a half dose to test my tolerance of it before putting it up to 40mg, but that's just because I am very sensitive to a lot of medications. I have had no trouble at all with carbimazole though.

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    • Posted

      Hi, thanks for replying. All I have is TSH <0.014  FT4 56.9.

      I'm also sensitive to medications, so am a bit worried now!  There has been no mention of block and replace and I haven't yet seen a specialist, so this is my GP prescribing.  Glad to hear you get on well with this drug though, that's good to hear. 

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    • Posted

      Just take one 5mg pill the first day and if you are fine, take 20mg and then take what is prescribed. I really couldn't tell I was taking anything and as I say, I'm sensitive to meds so I am sure you will be fine.

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  • Posted

    Hi. Don't worry... I was on 60mg at one point. Now I am on 20 mg. So just hope that the med helps you. Keep taking it regularly. That's it.

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    • Posted

      I was diagnosed 6 weeks ago over active thyroid, was put onto 5mg carbamazole, Endo and Doctor said my thyroid levels are going down. (not been told what they are) I have had four blood test so far.

      Though I still feel awful - trouble sleeping, palptations, and no energy, just want to feel my old self again. Like all of us that suffer with this illness. x

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  • Posted

    Hi I don't know if this helps but a few years back I had hyperthyroid no one in my family had it and never heard of it.

    i ended up going to my GP when I became so tired,  exhausted could hardly climb my stairs.

    my GP took some blood and usually check over, the next day I was told to go straight to my doctors who gave me a letter to take straight up to A& E and I would go straight threw.

    I remember having a horrible cough producing a white phlegm it was really getting me down and constant.

    I had to stay in hospital for 4 days my level was 44 what ever that was ...

    i was tachycardia.

    I was given tablets like yourself while I awaited having radio active therapy to kill off my thyroid, which it did.

    i was slowly giving levothyroxine in small amounts till I got to a certain level that suited my body which was 125 mg and started on 50 mg.

    during the time of having radioactive therapy I remember that night after I was pretty poorly my heart was pounding and I was worried but after 48 hours I seem to calm down.

    now a days I get tired a lot my thyriod level is creeping up again after 7 years it went from 44 to 0 then 11 then 15 now a days it's 20 . It can be controlled via levothyroxine reduction I am told.

    i do hope you get sorted out quickly as it is very annoying.

    my consultant told me I no doubt got this through stress.

    my husband got cancer and my daughter was involved in a serious car accident plus I had been through a divorce all in a space of 6 years.

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