just had first visit with endo
Posted , 2 users are following.
hello everyone
i ve just had my first endo visit . i was very worried but i must say now it was nothing to worry about but im left a little confused.
they said i have overactive thryroid with graves disease but from what i can gather graves disease is to do with your eyes but ive not had any problems with my eyes. can anyone tell me how they know if you have this?
thanks Deb
0 likes, 6 replies
Jane1
Posted
I have graves but not graves ophthalmy. Graves is just all of your thyroid making far too much thyroxine than you need which eventually poisons your body. Some people get it so bad their heart is affected others not so bad at all that its not such a big deal for them .The opthalmy affects some but not all of us, apparently you have a bigger chance of getting the opthalmy if you smoke but again not all do.
A few of us on graves part 3 have had graves for a long time ( not me) so they may be able to tell you more.
What I do know is it does get better with treatment, as I feel a whole lot better than I did at the beginning of the year when I was scared to death and worried sick. But it's not all plain sailing it's a bit of a rollercoaster ride.
Jane
marigold
Posted
We're all on Graves part 3 and your welcome to join us. We have a bit of a moan now and then, but we all help each other.
Marigoldx
debs18
Posted
thank you jane and marigold
i was confused as i thought graves was a diff thing, im starting to understand a bit now . ive had my results as well and my i think its t4 has gone down from 41 to 34 in just under two weeks so i assume thats good.they have told me to stay on the 20 mg of carbi till i go back in 6 weeks, is that normal to leave it 6 weeks? i will have a look on the graves part 3 , thank you Deb
Jane1
Posted
I've been going every 6 weeks since january, only since I've gone hypo this last time they are leaving it longer. You can go to your GP in between if need be but mine is a bit worried to tread on the endo's toes to change much but they're all different.
I've never done T4 so I'm not sure about that result I don't think it's too bad, marigold will know for sure.
Jane x
marigold
Posted
Take care.
Hi Jane. I hope you're enjoying your holiday and feeling ok. Are you managing to keep your dog out of the river?
Are you feeling a bit better Kat? Once you get on the right dose of thyroxine and you're not hypo you'll be fighting fit.
Thinking of Sue, Dave, Bess, Barry and everyone.
love,
Marigold
xxxx
debs18
Posted
i phoned my doctors today and he said to go to the surgery in a month for a blood test, im just worried in case they leave me to long and it goes the other way. my sister is underactive and she always sleeps and doesnt feel well,mind you i wouldnt mind a good nights sleep .
jane i think im very lucky to have a good doctor, when i first visited the doctor with this they didnt seem to care so i changed to another and he told me his wife also has thyroid problems and he would make sure i get better,im assuming if his wife has it he would have done his homework on it,when i got back from the endo yesterday he rang me to see how i was and was not happy because he wanted me to be on 40mgs of carbimazole instead of 20mgs but i decided to stick with what the endo told me to take. its nice for a change to have a doctor that cares .
marigold im trying to read up on the graves part 1 to catch up but theres so much to read so i might have to just skip it and go to part 3 :lol: .
i hope your all feeling as good as can be , thanks Deb