Just received Graves' diagnosis, thinking radioiodine next, help!
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I had a thyroid scan and was diagnosed with Graves' disease yesterday! I've had hyperthyroidism in the past a few years ago and was treated with Carbimazole however this made me nauseous and eventually it made me actually sick a few times so I was put on Propylthiouracil. Eventually with a combination of Propylthiouracil and Thyroxine my T3 levels went back to normal and I was able to come off of all medication.
Then in late Spring, 2013, I started experiencing what I feared were over-active thyroid symptoms. I went to the doctor and they tested my blood and my thyroid T3 level was at the high end but they said they thought it was stress and I had to try stress management techniques. They gave me beta blockers for the palpitations but the sweats and emotions being all over the place continued so I went back to my own doctor who referred me to the Thyroid Clinic.
After a visit to the thyroid clinic I was sent for a thyroid scan yesterday and the doctor talked through the pictures taken of my thyroid explaining what a 'normal' thyroid should look like and that due to my age and gender etc (29 year old female) he was certain I have Graves' Disease.
The doctor explained that I really have two options which are Radioiodine treatment or surgery but as I have Graves' it's likely that they would have to remove most of if not all of my thyroid and I would be on Thyroxine for the rest of my life. With the radioiodine there's at least a chance I won't go hypothyroid and have to take thyroxine for the rest of my days.
I keep reading so much mixed information. The way i see it if I go for surgery then I'm resigned to being on Thyroxine for the rest of my life but with radioiodine there's a chance I won't have to be. I can't imagine what it'd be like not being able to be in the same room as my partner for 2 weeks but I guess in the long run it would be worth it.
I was wondering about any fertility issues and whether either radioiodine treatment or possibly being on thyroxine would affect my chances of having kids? It's not my primary concern right now but my partner and I do want kids in the future although not quite yet. I'm 29 so I'm aware that its something I have to consider.
Can anyone shed any light on things for me? I'm struggling to process everything especially since I was only diagnosed yesterday. I've been feeling so awful, just generally exhausted. I'm managing to keep going to work but that's about it, i go to work, come home, eat and sleep. I was wondering about other people and if they've managed to keep going with work / life as normal? I keep thinking about taking some time off work but then I think that realistically I'm not going to feel any better so wouldn't I end up off for ages. My brain is just a buzz of too many thoughts right now and I'm struggling to focus on anything.
Also I've been gaining weight recently which is really odd for me especially when my thyroid is overactive. Has anyone else experienced this?
Any help, advice, experiences welcome. It's a tough one because a lot of people don't understand how bad you feel because they can't see anything physically wrong with you. Thankfully I have a very supportive partner, family and friends so can't complain there but just feeling so bleh and eternally exhausted and my emotions are all over the place.
1 like, 12 replies
Maggie1960
Posted
lynsey83
Posted
I couldn't stay on Carbimazole as it made me physically sick so I'm on Propylthiouracil which makes me nauseous but not sick. I'm currently looking into things I can try like cutting out certain foods and seeing if this makes a difference to my health and energy levels. It's all a bit of a minefield though.
Maggie1960
Posted
Now .im only 4ft11 . I can't let myself
Get any heavier . It's the tiredness that getting
To me more than anything else and the waking
Up at night sweating too.not much fun getting
Older is it .
lynsey83
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safia22954
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Maggie1960
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jane32290
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Maggie1960
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jane32290
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Maggie1960
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jane32290
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Maggie1960
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