large ovarian cyst ca 125 at 228 any hope?

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i have had ultrasound.huge ovarian cyst found. bloods normal but ca125 at 228. has anyone else had this high level and not had cancer?

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4 Replies

  • Posted

    Hi Vivian.

    Please don't despair because your CA 125 has come back as elevated. It can be elevated due to many benign reasons such as the cyst itself, endmetriosis etc. My own CA 125 is elevated and I have 2 complex cysts also which Im currently being scanned for so I know exactly the worry you are going through. The CA 125 is not a reliable test to check whether someone has OC - its used more a tumour marker. If you read up you will find there are many, many women whose results have been elevated whose cysts have turned out totally benign.

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  • Posted

    Don't worry!

    Ca125 could go up for many reason.

    Also 228 is not too high, people with cancer have sometimes 6000-24.000.

    Periods, ovulation, endometriosis, etc can bring it up !

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  • Posted

    Hi Vivian

    I'm new to the forum and read your post- hope you are still active on the forumsmile I have a complex cyst and a CA125 of 330 so I know exactly how you feel. I see the consultant this week (and its scary that he's a gyne oncologist) but I guess if there are symptoms that might indicate cancer its best to get it sorted asap. Have you found out what yours was? Doing research online it seems lots of people with OC never have raised levels of CA125, while 97% of women with raised levels don't have cancer. Its a test that is most useful for people already diagnosed to see if the tumour is responding to treatment and although they are desperate to find a good screening test for OC this has been ruled out because its so unreliable. But the amount of stress this result has given me has been horrendous, so in a way I wish they didn't do it. I've read that levels can be raised by the presence of a benign cyst but in my darker moments I wonder if I'm clutching at straws. Anway I do hope you are feeling better now

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  • Posted

    Vivian, Chrissie just wondering how things are going for both of you? Ive posted an update on my own situation in the forum x
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