Loss of confidence
Posted , 9 users are following.
i would like to know if anyone else has lost their confidence. I am now 18 weeks post tkr and have been driving and going out with my friends and family but just want to stay at home rather than get out by myself. I used to go on holiday by myself but cant book one now and would like to be in the sun with all of this snow and ice.
carol scotland
1 like, 45 replies
gloria29023 carol38467
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jean95756 gloria29023
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I know you didn't mean it ....I was joking ...
but you are so right about the body and the mind not realising they belong together
Jean
Tucks carol38467
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susan20089 Tucks
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jennifer86104 Tucks
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I hope you too can enjoy your social life again, Tucks. As time goes on we should get better not worse 😊 Take care, Jen x
suzanne64053 jennifer86104
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jennifer86104 suzanne64053
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susan20089 jennifer86104
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Tucks susan20089
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Tucks jennifer86104
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Tucks susan20089
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jean95756 Tucks
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y personality has changed too
I used to go for a wander round the shops most days and have 3 holidays abroad every year in the Sun...now all I want to do is stay in the comfort of my own home where I feel safe.
i play scenarios in my head about not being able to climb the airplane steps very quickly and holding everyone up.
Live also lost my appetite and only eat because I should do.
any other time I'd have gone shopping and bought some smaller clothes but I just can't be bothered.
i think that about sums it up (can't be bothered)
Old Misery
Jean
jean95756 Tucks
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EileenH jean95756
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When you fly you can ask for assistance boarding the plane - which really just means getting on first before the hoards pushing and shoving. I can't climb steps fast either - stuff the, they have to wait! Even better - you can ask for help getting round the airport!!!
And if this lasts much longer do go to your GP and tell them. You do sound as if it might be clinical depression - neither unusual or surprising and a bit of help might get you really back on your feet in every sense. There are a lot of reasons to do so - and it will make your "twilight years" as you call them far less dark :-)
jean95756 EileenH
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i must admit I have been wondering about depression...something I've never in my life suffered from.
i've always been a ...get on with it....sort of person.
i do see my Surgeon on the 25th of this month as he said if the knee is no better he will investigate further.
fingers crossed things will get better.
Jean
EileenH jean95756
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Some 40 years ago a load of Marines in Arbroath in Scotland participated in a study. They did a fitness assessment on the Friday and then spent the entire weekend in bed in a hospital ward. They had no treatments of any sort, certainly nothing like an operation to cope with. Then they went back to their normal routine. It took them 6 weeks to get back to the same level of fitness as before that weekend in bed.
Think what you have been through - way more than 2 days in bed. Does that put it all in a bit happier perspective?
jean95756 EileenH
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i expected to fly through this op and recovery as I'm such a positive person.
but the recovery hasn't been as quick as I expected.
plus no information was given before the op
i visit for pre op where they did tests but no explanation about what to expect.
a group of us were shown a knee prosthesis and told it was like getting hit by a bus.
if that's never happened to you (thank goodness) then how do you know what to expect .
the nurse who was in charge of the group said... It's selective surgery...you chose to have it ...so get on with it.
Lovely bedside manner.
i wish I'd found this Forum before my op then I would have been better
prepared.
deep down I knew things were not right as I spent 9 days in hospital as opposed to the usual 3 ..with no explanation why
Tomorrow is another day and hopefully a better one for me
thank you Eileen you've explained more to me than the doctors ever did
Jean
suzanne64053 susan20089
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suzanne64053 jean95756
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Yorkyrebel EileenH
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EileenH jean95756
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That nurse needs a smack! She obviously doesn't know the difference between "elective" and "emergency" surgery. Elective does not mean YOU made the choice to have it done, it means it was something that needed to be done but in the meantime you weren't going to become seriously ill or even die without it and it could be fitted in where possible, not in the next couple of days. That's why they are so often postponed when a road traffic accident fills the ortho beds and theatres. Surgeons are not in the habit of subjecting people to TKRs for the fun of it for a whole range of reasons - the benefit must outweigh the downsides or they won't recommend it at all. Particularly given the state of the NHS - though are you in the UK or the USA?
And it isn't entirely up to you to "get on with it" - you should have the right support in order to recover. Some hospitals are better than others at that it has to be said. Ask your surgeon when you see him why you were there for longer, if it wasn't because you didn't have the right back-up at home - because that DOES make a vast difference.
And I would write to the complaints department at the hospital and tell them about the rude and unsympathetic nurse. It would be interesting to know how many other patients she has hurt psychologically with her unprofessional attitude. Telling patients it is "like being hit by a bus" is NOT acceptable preparation for any form of surgery.
Yorkyrebel jean95756
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When I was 31 I had colon surgery where they removed a cancerous tumor and resected the colon. 6 months later the cancer had moved to my liver so they surgically removed 2/3rds of the liver. Then I went through 5 weeks of daily radiation therapy where the nearest location for this was 100 miles away. So every day for 5 weeks I traversed a 200 mile round trip for radiation. Then 5 years later the cancer moved to my lung and the right lung was surgically removed. Within the last 2 years I have had 3 surgeries on my left foot. The first surgery was to correct a hammer toe and the positioning of the other toes. 6 months later the surgeon announced that the first surgery didn't work so we went in for a 2nd surgery where this time he fused every toe and placed pins in each. That surgery led to continued pain so they decided to amputate one toe and the related joint.
I tell you this just to analyze the different major surgeries I have experienced. I bounced right back from the three cancer surgeries, but not from the foot surgery. Now, 10 weeks ago I had a complete replacement of the right knee. Compared to the foot surgery, the knee has been great. Now, the knee still stiffens and swells, but I am able to go about normal daily routines. I am unable to do that with the foot due to extreme continued pain.
The things we endure!!!!!!
EileenH Yorkyrebel
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Many of these professionals have no idea what it is like to be on the other side of the hospital sheets! It should be part of compulsory training - because the ones who have walked in our shoes are definitely better at empathising. And the VERY good ones understand.
EileenH Yorkyrebel
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When a foot or leg hurts you cannot do anything without a struggle. But I imagine you are also just a few years older than with that first lot of surgery? ;-)
I can only say - thank goodness I haven't got your surgical history! On the other hand - they seem to have done pretty well by you one way and another. My husband had cancer 20 years ago and had a lung removed. Not lung cancer but the tumour was all mixed up with lung tissue. 7 lots of chemo to shrink a football sized tumour (lungs are very compliant, he had a cough!), surgery and then a month of radiotherapy. He's deaf and daft - but still very much here!
Yorkyrebel EileenH
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Tucks jean95756
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jean95756 Tucks
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i too have never been a moaner ...I've always been the one that everyone leans on .....but now I've learned to say ...NO I CAN'T DO IT....
i understand your fears about Cyprus ...why don't you just take a small hand luggage on the plane which will tuck under the seat in front so you can get to it when needed.
i've done that on my last few flights and found it much easier.
and I will pay for extra leg room if I ever decide to fly again sometimes you can get offers on the price ....anything for extra comfort.
i daren't even think about booking a holiday until I've seen my Surgeon on 25th this month
maybe my holidays from now on will be in the UK.... I thought of coach holidays... But then the travelling could be a nightmare.
ladt year I had a wonderful coach trip round the west coast of Scotland it was wonderful but it entailed a lot of coach travel.
sigh.....I want my life back ....
Jean
jean95756 Yorkyrebel
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you have been through the mill ..but thankfully you're still here to tell the tale
what a brave person you are and an inspiration to us all
Jean