Macular Degeneration/Bests sufferer. Can IOL/phakic make it worse?

Posted , 3 users are following.

Hello, I am 27 and 3 years ago I was diagnosed with MD, specifically Bests disease.

I have recently found out about IOL/Phakik which I qualify for in terms of perscription. I wanted to check what the risk level would be for making it worse in terms of macula degeneration if I had the implantable contact lense procedure?

Thank you

0 likes, 3 replies

3 Replies

  • Posted

    I empathise also as my Dad has MD also.

    Please research stemcell repair also.

    Kind wishes

    Sue

    • Posted

      Thank you Sue. Yes stemcell looks hopeful for the future, there are also iol implants already available which may help people with macular problems.
  • Posted

    Hi

    I have also recently been diagnosed with bBest's disease (although I am 68). I wasn't aware that there was an implantable contact lens available on NHS. Apparently I am okay for the next 5-10 years, but would be interested to hear how you get on with with lens if you do decide to have it done

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.