mixed feelings

Hi Hazel170459 I am so sorry to hear youve been turned down, I would definitly appeal. with all that you have going on in your life health wise as well as the fibro no I would appeal. I real cannot believe youve been turned down I cant understand what their playing at. pip as you know goes on a points system the more points you get. the better it helps you to may be getting it. eg 8 points for needing help to dress  8 points for having to use walking stick. the more help that is needed the more aids you need all that helps including having depression Im afraid.Letter off the dr specialists youve see appointment letters you have to throw everything you possibly can at them.then it depends what the face to face assesment person writes in their report.its unfair how it works you need to be able to get it.it always helps also to have some one with you for not only support. but who knows you and knows your daily difficulties. Its getting tougher to get any help support now a days. I know how frustrating it is and how it makes you feel. take care gentle hugs

Hi Hazel

So sorry to hear about your PIP being refused - Defo appeal - there are lots of people here who can give you advice about it. I can't unfortunately because I have not yet been through the process myself (Have my f2f on Monday) but others have 

This site is a wonderful place to vent, moan or just get support. I had a mini breakdown the other day and the guys here stuck me back together.

I like you am 43, currently into my second month off work and still trying to get used to not being able to do the stuff I used to. I don't know how much longer I can go on working (my employer is arranging homeworking) but it still might not be enough, I unfortunately always think the worst and have resigned myself to the possibilty that I will have to give up.

Fibro is awful, and unfortunately I think sufferers get a raw deal by the benefits system because it is not greatly understood by the nurses who carry out the assessments, but please do appeal

Not sure what else to add except, have a vent whenever you need to on here. There will always be someone to listen.

Keep us posted.

Erykah x    

Hi Hazel, so sorry you've got such a struggle on your hands, no wonder you're feeling down - it's so very stressful, not just dealing with ill health and lack of ability but having to fight for entitlements etc.  I have no knowledge or experience regarding the benefit system - I'm praying I dont have to deal with it soon!  However, it's imperative that you appeal.  Very often in these kinds of matters they decline and then hope you'll just accept it and go away but on appeal they look at it differently or more thoroughly, its a kind of "SOP" - standard operating procedure - and its certainly worth another attempt.  Get support and back up from doctors, social workers, physios, etc., also enlist the help of the CAB who will be able to use expert knowledge in these matters to help you to use the best documentation and terminology etc.  Dont give up hon.  It's hard work and exhausting but try to find determination to win at all costs and use it as a way of getting your adrenalin going in a positive way.  I could rant on about how unfair someone with your difficulties is ignored but in the end it's not my opinion that counts, its the decision making faceless morons in government departments - get armed with the right ammunition and your next shot at them will pierce their cold hearts hopefully.

You have my great sympathy. I have nobod to talk to. Yet from outside to most I seem fine. I have fast paced job of 55 hours a week and look after sick parents I need to write important things down at work as always forgetting things and laughed at when I do and mumble at meetings. I live on painkillers my body anand hands get swollen and put on loads of weight as too tired to exercise. Need to close my eyes at work when no one Is looking. Really dont know which way to turn and think may run one day

fight every step of the way hazel dont give up how ever hard.get as much amo as you can to throw right back at them. CAB can help and advise. x  

You must be going through hell with all the stress you are under and no wonder it's affecting so much. Perhaps you could try to get support to appeal...with advocacy involved...where someone could be there who is used to these PIP's?

Even non-fluctuating symptom sufferers of conditions do not get the the PIP's they deserve! Anyone who is curtailed in any way by health conditions; should get it. I am not being ridiculous, just passionate;...because it's not on and so much more!

Please appeal if you can cope to, because you deserve this and have a right to it. Keep applying and appealing until you do. They have recognised the disability and you have completed the assessment, so try to take a deep breath and appreciate all the hard work you have done to get here. This energy is not wasted, because you need the support and have done your best. The system is not helping people as it should and there are so many it has failed. SO please keep your head up high and apply.

Being so incapaciatated that you cannot complete care tasks or even speak sometimes, puts your well being and life at risk, therefore;...you should be seen as an exceptional case. I know so many people are this ill, but statements to this effect, may need to be made at minimum.

You are regularly being debilitated, to a severe degree. Contact whoever you can at a high enough level. I hope you get your treatment soon. They shouldnt be calculating on miracles and I do not see how you can work like this-can you apply for ESA?

You are an inspiration and amazing. It sounds so tough, you're being so brave.

You deserve the recognition.

N

Thank you every one for taking the time to reply, I felt like giving it up and not appealing but you are all right, just the boost i needed. HUGS xxxxxx

You vent all you want..there's empathy here..also lots of knowledge learned through experience...have a lovely weekend...hope you get some answers that will help..be blessed Hazel....:-) xxx