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Mono need help

Posted , 34 users are following.

christy32934
christy32934

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

2 likes, 733 replies

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  • ashley44325
    ashley44325 christy32934

    Posted

    Hi everyone, did anyone have high blood pressure from this? I never suffered with it previously 
    • craig07920
      craig07920 ashley44325

      Posted

      Hi Ashley,

      I'm guessing that could be very possible that high blood pressure could arise from mono, but that can be a very temporary thing I really hope and believe - worry and stress definitely contribute so that makes sense, I know it can change because my blood pressure was borderline high before a few years ago but has since returned to normal after a few changes with eating habits.

      Craig

    • MonorailNick
      MonorailNick ashley44325

      Posted

      Hey Ashley, I did. I’m a well trained athlete in my twenties and have no idea why else my blood pressure would read high. I’m 8 months since having mono, i feel about 85 90 percent. I’m not going to bother with taking my blood pressure till I’ve felt close to 100 percent for at least 6 months or so. I also heard from another person on this forum they had high blood pressure for a year from mono and then it went back to normal on its own. Don’t worry!
    • lisa29739
      lisa29739 ashley44325

      Posted

      Hey Ashley.  I think mono can definitely screw up your blood pressure.  I have the opposite problem- mine has been very low.  Which comes with it's own problems. 

      I believe it'll return to normal once my body stops fighting this virus so hard.  And I think yours will too.  

    • craig07920
      craig07920 ashley44325

      Posted

      You're welcome Ashley, just remember take things one day at a time can't look too far ahead with this thing, coping with the present is all we can do with it - hang in there and remember you WILL get better, 100% better - I fully believe that, trusting in God with that.

      Craig

  • christy32934
    christy32934

    Posted

    Hi everyone, how’s everyone doing ? Hope all is well. Just writing because I realized that I’m about 2 days it’ll make a full 10 months since I’ve been sick (the day I started feeling unwell). I don’t think I’ve had much improvement. I kinda just complain less and I’m not as anxious therefore everyone thinks I’m better. Is this normal to be sick with ebv for 10 months and still feel the same amount of crappy ? 
    • Mono_too
      Mono_too christy32934

      Posted

      Hi Christy,

      It was 11 months before I started feeling better, hope you are feeling better soon.

    • 40with.gf.
      40with.gf. christy32934

      Posted

      Hi Christy,

      it was 11 months for me too but really at 12 months was a massive difference...I still feel weak at times and have slight symptoms sometimes but far better than previous year. I am so utterly fed up. Fed up of not having much resilience, I just want to be my normal self.....just time xx

    • craig07920
      craig07920 christy32934

      Posted

      Hi Christy,

      It is good to see a post from you, I know you've been through a hellish time with the virus just sorry to hear things are still such a struggle. As Mono and Christine says you are definitely coming into the zone where recovery often takes place, for me it was about 10 months before I seen a real turning point and I was so weary by then it was unreal. I know you must be feeling that way but just want to remind you there is hope and there is recovery still for you - I truly believe that. Hang in there and thinking of you.

      Craig

    • christy32934
      christy32934 40with.gf.

      Posted

      Hi Caroline , I can totally relate with the fed up feeling ! Hope you’re 100% back to normal soon ! Thanks smile 
    • christy32934
      christy32934 craig07920

      Posted

      Hi Craig, thanks for the encouragement always !! Hanging in here through all the kind words !! Thanks so much ❤️
  • tiffany45198
    tiffany45198 christy32934

    Posted

    Hi Christy,

    Your note could have been written by me! It takes a longer time to recover from mono than the doctors would have you believe. I have been mostly down since Jan. Every time I get back to my regular schedule, then the sore throat, fatigue and general unwellness washes back over me. Just know you will recover! You will start having normal days soon, then backtrack, then more normal days. Be kind to yourself. Say no when you are tired- this has been the hard part for me. I found acupuncture to be a godsend and Epsom salt baths seem to really help. You will get through this.

    • christy32934
      christy32934 tiffany45198

      Posted

      Hi Tiffany , oh no I hope you start feeling better soon. It’s such an awful virus. But thank you soo much for the advice ! So will you - we will all get through this ☺️
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