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More surgery , but not when I thought.😟

Posted , 7 users are following.

mandy35295
mandy35295

Hi, I'm supposed to be having my other knee replaced  end July beginning August , as I hadn't heard, I phoned to see when I might get my appointment through, only to be told I'm written in for 25 September , 😟 I'm sooooo disappointed, I've worked so hard at getting the first one right, which in turn has compleatly messed up the other one, and now I'm panic inning like mad, because I really don't think my knee will hold out till then, that's another ten weeks, . And if I can't do the exercises won't my new knee stiffen up.? I don't understand why they , only last week wrote to my gp , telling him what they have done so far, and what they now need to do in end July beginning August , it actually says that. It's just making me cry now, I wish I could just say , stuff it I don't want it any way, but thing is, with out it being done, my quality of life is about five out of hundred. Sorry if I'm going on , I just can't understand why they said one thing and are doing another. I have asked to go on cancelation list, I'm so worried my knee will start going backwards, I've worked so blimin hard, as we all do. I just feel so let down, I guess, it's like they've done half a job. Am I talking rubbish.😟

0 likes, 54 replies

54 Replies

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  • martinarvelo
    martinarvelo mandy35295

    Posted

    Hope you manage to get a cancellation . . but I wouldn't worry about the exercises. Most of them can be done while lying down or sitting. . .at least enough to keep the 'new' knee supple.  It's a long time to wait when you were expecting late July or early August. . . but hopefully they'll find you space before then.
    • mandy35295
      mandy35295 martinarvelo

      Posted

      I really hope so, my poor husband is having to walk the dogs twice a day cause I can't do it with my knees, they are big dogs, and walk far, and hubby has problem with his achilles heel and is supposed to rest it, it's getting worse and worse, I don't no how much longer he will manage,. What a situation. I really don't no what we ment to do.
  • cecelia70143
    cecelia70143 mandy35295

    Posted

    Hang in there! I experienced disappointment in dates for my surgery also. I went from July to the end of August. But all things happen me for a reason. Don't frustrate yourself! It will only make things worse.💃
    • mandy35295
      mandy35295 cecelia70143

      Posted

      I no your right, I just feel so guilty with hubby having to do such a lot
  • joseph05392
    joseph05392 mandy35295

    Posted

    I know how you feel. I am in same situation, except I am dreading too have it done. I have had and still having problems with my left knee after five months. It's depressing to me because every time I ask questions its always the same answer. "That's normal". I still have pain, not excrusting but pain, swelling and stiffness. My stretching out streath needs about four or five more degrees. My bend is about 118. Dr. Wants 130 degrees. Excersing hurts like theirs no tommorow. Every thing I accomplish I have to push myself to do it. Yes I know where your at. Even though every person is different and will have different problems. It does get better. So head high and look up. It does get better. Oh your wondering do I reqeret having it done, no way.
    • mandy35295
      mandy35295 joseph05392

      Posted

      My knee that's been done isn't perfect either, although I wouldn't let the surgeon no,in case he postponed the other one even more, it just has that horrible tightness as soon as you do anything, and it won't let me sleep, but it is so much better than it was before the op, that was just plain old agony, as is the one that's waiting now,.
    • cecelia70143
      cecelia70143 joseph05392

      Posted

      Joseph if you don't mind me asking....how old are you? You know I did ALL that I was suppose to do, bend @130, leg is straight as a board, up &down the stairs yadda yadda yadda......I just hated the sleepless nights, and the drugs!!!! You know what I mean?
    • cecelia70143
      cecelia70143

      Posted

      By the way, I am 68 yrs old 😊
  • patsyrose
    patsyrose mandy35295

    Posted

    It's completely understandable to be disappointed about the delay.  It's such a big operation and we know that we are going to be out of circulation for some time after.  And normal activities, such as cleaning the house, doing the washing, shopping etc are very difficult...especially if you live on your own like I do.  It's much better if you have notice and can plan for these things.  At least if you have a husband you have someone to share those concerns with...and support.  And you know that you have the support of everyone on here.  Some of us are luckier than others, but we're all different.  I'm facing further surgery on my knee that was done last Sept, so I'm really disappointed that I still haven't got a normal life back, yet, and face more weeks of recovery, no driving, etc.

    It's a horrible operation, but our friends and relatives and the good wishes of all the people on here that know what we feel gets us through.

    Patsy

  • irish_linda
    irish_linda mandy35295

    Posted

    understandable that you are p***d offf its very hard when you gear yourself up for such a huge op and then told oh it wont be done another *wks  im soooo sorry for you but when you calm down in a day or two (hopefully) you will keep up the work of excersising the dud knee as best you can by building up as much muscle as you can dont let this crush you you will be eating christmas pud at 3mths down the road , and happy new year ahead good luck try to be positive
    • mandy35295
      mandy35295 irish_linda

      Posted

      Oh your absolutely right , even if they don't get me in on a cancelation , it will still be all over by Christmas, . The other annoying thing is, that I had actually forgotten about untill my hubby said, we are supposed to to go away on the 25 sep , for a week, it took us ages to find somewhere that wasn't to far, and would take dogs, I'm not sure what to do about that now, 😏 if I do get a cancelation , then we could still go, 
    • irish_linda
      irish_linda mandy35295

      Posted

      not sure about that it might be too soon why not change it and have a week away before op it would take your mind off it (well pain would be sill there)   dogs would love you for it .
  • sarah87162
    sarah87162 mandy35295

    Posted

    No you are not talkilng rubbish, you just want to get hyour knee sorted.

    When did you have first knee done?

    I waited 10 months to have my TKR 3 years ago. That was from first seeing GP about it to having operation.

    My GP basically let me have as many painkillers as I needed.

    I must have been rattling!!!

    Hope you manage to get in on a cancellation.

    Take care and keep in touch

    Sarah

    • mandy35295
      mandy35295 sarah87162

      Posted

      Yes I waited well over a year ,  I had it done on 1st may, saw the consultant seven weeks before, it wasn't due then, they bought it forward because it deteriated so much, and the morphine was having very little effect. My next knee is actually my worse one, but at the time wasn't causing so much pain as the other, but that's a different story now., pria to all of that I had the usual physio, injections , seeing every consultant under the sun. It wasn't untill I saw this surgeon that they even did any X-rays , follower by an mri, they were previously treating me for phibramyalga , which I also have, but not in my legs. What a palarva.😒
    • mandy35295
      mandy35295

      Posted

      Hi, guess what, I'm so excited, the hospital called today, and after all that , they've given me an even earlier date, I'm now having second knee done in 21 St July hurrayyyyyy, so pleased. Pre op next Tuesday. 😀😀😀😀😀😀 
    • mandy35295
      mandy35295 kathryn42410

      Posted

      Thanks, I just hope the other one is only a half, still what will be will be, at least it will be done😀
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Excellent news! You'll have the rest of the Summer for recuperating, and before Winter sets in (you are in the UK???) you'll be running around (well, maybe not exactly running . . . ) 
    • mandy35295
      mandy35295 martinarvelo

      Posted

      Exactly, I'm so pleased, as I'm sure you gathered, yes I'm in sunny Sussex , and that's just what I was thinking, by Christmas  I'll hopefully be able to even do the Christmas dinner , maybe with a little help, but it also means that my hubby will be able to have a bit of rest for his acileece heel, it's agony for him now, he must be so fed up with it being all about me. Just got to pray really hard that every thing goes smoothly now. 😇 I'm sure it will. X
    • martinarvelo
      martinarvelo mandy35295

      Posted

      I know how your husband feels!  I have the same thing now, on my 'good' leg, so just as I thought I was waking wonderfully, I'm back to going down stairs one at a time!  fingers crossed they don't change your date again!  Sussex is lovely . . I would LOVE to be in England now . . . Tenerife is OK for a holiday, but when you live here you get a bit of 'island fever'!
    • martinarvelo
      martinarvelo

      Posted

      walking not waking. . .  I am VERY good at waking. . . all night!

       

    • mandy35295
      mandy35295 martinarvelo

      Posted

      Oh I'm sure it's wonderful r heir, I've never been, bu t I do love England rain and all , summers best though, 
    • martinarvelo
      martinarvelo mandy35295

      Posted

      My husband is from Tenerife, so it's home to me.  Home will always be England in my heart though!  Really miss those green fields, faraway church bells ringing in the country, bacon!!!!!
    • mandy35295
      mandy35295 martinarvelo

      Posted

      You would love where I live then  , right by the river Arun , which is tidal , so smells of the sea, and seagulls herons cormorants , every where, a small none chain pub, a two minute walk along the river, and just past that a very quaint little village church, so we get the church bells Sunday mornings, pretty idilic . We love it, which is why I'm so desperate to get my legs back,Mandy get back out there, I can't even walk along the river footpath by my self at the moment cause I keep dealing over, it really is rubbish, . If ever you come over you'll have to come visit.  You'll love it.😀
    • mandy35295
      mandy35295 martinarvelo

      Posted

      I feel I already no you, from being on here so you would be more than welcome to come visit if your over. I was always told to share.😀
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Same to you in Tenerife! We live in the north of the island. . very beautiful, as green as it can get on such a hot island. . . would love to visit England again, but husband is over eighty now, and doesn't want to fly . . or travel . . sad  valerie martin arvelo on facebook!
    • mandy35295
      mandy35295 martinarvelo

      Posted

      Ah , that's the trouble with flying , I personally hate flying , I'm not saying I'll never do it again, but I only did it once eleven years ago to Majorca , I cried mostly all the way, and worried  about coming home again for the whole week, . I'm not saying I'd never do it again, but I don't like it.if I was in my eighties , I don't think I would bother either. A shame for you though. But you would be welcome. How is your knee anyway, haven't heard you mention it lately .?
    • martinarvelo
      martinarvelo mandy35295

      Posted

      My knee is really pretty good! Still a bit stiff above the knee, still uncomfortable going down stairs. . but now the painful thing is my ankle on the other leg!  I haven't found the time to go to the specialist, but it is very painful and I've had it now over a month . . How about you???
    • mandy35295
      mandy35295 martinarvelo

      Posted

      Yes I think I'm about ten weeks now, still over do it regularly , unintentionally , very difficult to know how much is to much , that band of tightness we all seem to get, is awfull, always makes me think my knee cap is gonna blow off, with pressure , horrible feeling, I'm thinking that when the other one is done shortly, that this one will feel really good in comparison , could be wrong. 😀 how long since you had yours don e?
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Over six months!  I really thought I would be totally normal by now. . . but. . . 
    • mandy35295
      mandy35295 martinarvelo

      Posted

      But didn't you have a full knee? Reading on here it takes an awfull long time, I think we all thought before we had it done , that it was gonna be just a small blip in our lives, when actually, it's huge, . I used to work with elderly people, in nursing homes, and in there own homes, and many of them had had knee replacements , but even helping them through with daily chores ect, I had absolutely no idea what they were going through, . I feel quite guilty now, it's so hard some days, it would be so much easier just to stay in bed. But people are very quick to judge, and as I did think it's something we should get over quick,. Well it isn't , is it? 😀
    • mandy35295
      mandy35295 sharon52158

      Posted

      Thank you Sharon, I'm so pleased, I'm sure though that in a few weeks I shall be on here moaning about this that and the other, , but ha ho that's what gets us through, lol
    • martinarvelo
      martinarvelo mandy35295

      Posted

      How right you are!  I didn't really do any research, just jumped into it when the specialist recommended it. No information, no nothing. . just I can fit you in next week . . .No time to think about it. I had totally ridiculous ideas about what recovery was going to be like, expecting it to be a bit worse than the arthroscopic ops I had already had.  Stupid or what!!!!  Well, I soon found out!  My sister in law, who has had both done, told me Oh, it's not as bad as you think . . ' etc. etc. until the day after the op, when she said 'Oh it;s terrible isn;t it. . .I have never cried so much in my life!  Perhaps it was a good idea not to know too much beforehand. . but I would have made some adjustments in the home if I had realised!  Once it was done, I was stuck . husband can't drive now, so couldn't even get to the chemist or orthopaedic shop to buy things. . . Still, survived!  Just . . . 
    • mandy35295
      mandy35295 martinarvelo

      Posted

      No what you mean , I now have a separate bed, a frame around the loo, gel packs at the ready, at least this time I no what's gonna happen, that's if it's just the fall knee, if it's the full, well expect tears.😀
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Is it really much different? I mean, to do apartial they have to cut all the muscles and nerves and things. . and that is what seems to cause more problems than the actual knee joint. . . I wish I had thought of the loo frame . . it was SOOOOO difficult getting up from the loo, as there is nothing I caould hold on to . . 
    • mandy35295
      mandy35295 martinarvelo

      Posted

      I no, my sister has rumatiod arthritis and had already got the loo frame, and as they had just given her large dose of steroids , she didn't need her loo frame , so I'm borrowing it, it's brilliant, I would have broken the sink and every thing by now with out it, also my husband fitted a grip bar over the bath, as my shower is in the bath, all these things although small, make such a difference, I also got a perching stall for the kitchen, so I can do the veg, and a bit of light washing up. It all helps😀 the joys, lol
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Indeed!  I did have a home help though . .that was such a help! . . tOff to bed now. Always so tired since this operation . . .and still don't sleep without tablets!  Have a good night!
    • mandy35295
      mandy35295 martinarvelo

      Posted

      We must have gone to sleep at the same time, I'm on pain killers still, but not sleeping tablets, . I've been awake since 5.30dont sleep very well nowadays, have to keep moving, hopefully that will improve as well after the next op, hope you got a good night too. It's a  Beautiful sunny day here again, always makes you feel so much better. Good game of scrabble we got going on, so clever to be able to play with people from everywhere,😊
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Terrible night! decided not to take a tablet, but at quarter to three I gave in and took a quarter of a tablet. . then slept until half past eight . . lovely!  But feel dizzy this morning.  A bit late to take the tablet!  Love the scrabble, and even more when you know who you are playing with!
    • mandy35295
      mandy35295 martinarvelo

      Posted

      Yes knowing who your playing with does make a difference,. I was on sleeping tablets when I had my hysterectomy, and got m.r.s.a. For free, took a long time to get over it . But the sleeping tablets were a gods send, I'd never had them before that, but I found although I slept, I never felt very refreshed like after a good normal nights sleep, so after about a year, I saw the doc, and she said, don't just stop, take half for a week , then half every other day for another week, then stop, so that's what I did, and my sleep pattern , up until this knee at least, went back to normal, I never sleep well now, always one or the other knee hurts, but I'm hoping that will eventually settle once the other ones been done. I no I don't want to go back on to sleeping tablets that's for sure, I tend to play scrabble on here or talk to people on here, or even do a puzzle  again on here, God only knows what I'd do with out this I pad, I even take it in hospital, lol. I only got it in April .😀
    • martinarvelo
      martinarvelo mandy35295

      Posted

      Hard to remember what it was like before the internet took over!  Glad you survived mrsa . .that is a real beast of an infection!  I only take a quarterof a tablet, but even so I feel a bit 'spaced out' in the mornings!

       

    • mandy35295
      mandy35295 martinarvelo

      Posted

      It wasn't untill after I'd got over m.r.s.a. That I was told how bad I had been, it was awful , my whole wound reopened, pretty disgusting , but I survived, my left knee seems to have decided that as it's going to be replaced in just over a weeks, it's going to give me as much pain as possible before its evicted. 😏 out of order if you ask me. Did you only need the one done?
    • martinarvelo
      martinarvelo mandy35295

      Posted

      At the moment yes. . my right knee did niggle a bit when I was using it too much in the early days after the op, but no pain at the moment. . Hope it stays that way, but once one has gone, I imagine it is ony a matter of time???  About twenty years ago I did have a sudden flare up in the knee wich has been replaced, and I sometimes wonder if that was the root cause of the problem!
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