Posted , 4 users are following.
Hi, I'm really hoping I can get advice. An ENT referral 12 months ago for balance problems led to an MRI of my brain and the report said I had Tonsillar Ectopia at the Foramen Magnum. No ENT cause was found. While I was waiting I deteriorated and was very dizzy and had difficulties speaking and coordinating my mouth to swallow properly. I also had recurring shoulder pain making using my arms away from my body very difficult. That led to an Orthopaedic referral. after a 12 week wait the outcome was I may have pinched nerves I was given 3 pages of exercises and told if any hurt don't do them. Meanwhile I was seen by a neurologist who agreed to do full spine MRIs. I had cervical and thoracic scans Jan 12th. On top of all of this I v had an occipital headaache and low back pain for about 13 years. The headache wakes me up every night after about 2 or 3 hours sleep. The lower back pain feels like my head, very localised not like I imagine nerve pain.
My question is, does full spine not have to include Lumbar and Sacral?? I have battled to get another appointment with neurologist on 9th march, but received a letter yesterday that said Cervical and Thoracic results are normal, no syrinx and the Tonsillar Ectopia IS NOT a Chiari Malformation, and definitely isn't causing my symptoms.
I have done DPA access request so have my brain scan on a disc. It looks like a Chiari to me, also on the Coronal back view both tonsils are outside my skull and squashed, but the right one is lower. All the head ear pain is worse on the right. Like everyone on here I am just trying to work absolutely fed up of feeling like this and with no joined up medicine. Now waiting for another ortho referral about my lower back, they couldnt discuss it at the shoulder appointment, needed to start again via Go.
ook low and squashed
0 likes, 15 replies