Much needed advice
Posted , 9 users are following.
I was diagnosed with diverticulitis a week ago at the ER when I was having excruciating abdominal pain. I was put on Cipro, Flagl, zofran and Vicodin. Since then I have dropped the Zofran and Vicodin and I was having some very dizzy spells so dr stopped Cipro and Flagl and replaced with Augmentin.
This is all new to me. I am still having a small amount of abdominal pain, and a moderate amount of back pain.
So let me get this right.... I have diverticulitis if the pouches on my colon are infected. If not, I have diverticulosis?
And I am on a high fiber diet. What does that mean? I eat bran cereal in the morning and I have a granola bar for a snack and try to eat an apple with peel and/or a banana a day. Is that enough? But I eat dinner with no regards to fiber. Should I get something like Benefiber to put on my dinner?
I am getting confused! And frustrated!
Thanks
0 likes, 21 replies
susan95516 tammy49176
Posted
I have fybergel mabevarine and a probiotic tablet everyday. This helps me a lot. If you eat apples take the skin off No seeds skins corn red meat isn't good for me I do eat chicken and fish I try to stay away from vegetables that gives wind. No fizzy drinks or chocolate if I have tomatoes I take the skins off and de seed them I love salad but i can't have cucumber pepper unles I roast them and peel them After all this Don't for everyone is different. Good luck hope you feel better soon
pwk tammy49176
Posted
Usually you ease into a high fever diet after your symptoms resolve. Yes duxeryicultis only refers to when the sacs are infected when they are not you have diverticular disease. I take bebefber three times a day and a probiotic. The secret is being sure you can empty your bowels everyday. I was diagnosed last sept and have had 5 hospitalizations😔 I think I am finally getting a hold of eating small amounts, keeping fiber up etc. but it’s been a battle.
susan95516 pwk
Posted
I was diagnosed last September I am lucky I have only had one really bad flare never been to hospital touch wood. I make sure I take branflakes and fybergel plus a brobiotic every morning. I try not to eat skins nuts seeds because they can get cought in the pouches and course infection. I also stay away from red meat eggs tomatoes and bananas plus chocolate these all set me off. I would love a burger and can of coke but can't
tammy49176 susan95516
Posted
You must have a lot of willpower. But I get it, that pain is horrible! I love a good steak but I think I've had the last one. And I love berries. But not sure I'm ever going to chance that again.
I guess I'm just going to have to find my triggers.
Thank you
maxime03336 tammy49176
Posted
angela91414 tammy49176
Posted
I was diagnosed after a colonoscopy 4 years ago and luckily only had 3 flare ups since then. My specialist told me to carry on with normal normal diet and not to cut anything out as it's now been dispelled that pips seeds etc can bring on an attack so that us what I have done.
He did say not to get constipated and to eat enough fibre so that this doesn't happen. Also if you do have a flare up then cut out the fibre and eat a very bland diet until it heals. Almost 80% of older people have diverticular disease without even knowing it it's only when it flares up and gets infected it becomes a problem. When I go on holiday I phone my GP and she gives me anti biotics to take just in case and for peace of mind but I have never had to take them on holiday yet.Everyone is different so it's a bit of trial and error. Good Luck
tammy49176 angela91414
Posted
Thank you, Angela. I am 54 and thought only older people got this. But I wasn't even sure what it was until last Friday.
And that's what 2 different drs told me also. That I can eat anything in moderation if I'm getting enough fiber in my diet.
But nobody told me to eat a bland diet until it got better. I was eating a lot of canned chicken noodle soup for the first few days. But that's because I was so nauseous.
It's good to hear from ppl that know how I feel and that the pain is real.
Thanks again
christine63572 tammy49176
Posted
tammy49176 christine63572
Posted
I will try chewing my food carefully. Makes sense.
And I am now staying away from red meat, although I love a good t-bone on the grill. But those days are gone.
Thank you for the advice.
Guest tammy49176
Posted
Hi Tammy
I've read through the advice given by others here and it is all good. As you are USA based the soluble fiber equivalent to Fybogel is Metamucil. It should be taken daily mixed with 12oz water and chugged down quickly before it thickens. It will bulk and soften your stools and make them easier to pass. It is important to keep your bowels well emptied each day, so nothing gets stuck in the diverticula pockets, which can lead to infection and diverticulitis. It is also important not to strain - that doesn't help your bowels either. You may find your number of bowel movements increases.
As for fiber, the best kind of fiber is soluble, not insoluble. You can get lists of which is which online. Some people can happily eat skins like apple, potato, tomato or pepper, and others cannot, and have to remove them. I peel apples and tomatoes, but eat potato an pepper skins. The best kind of fiber I find is cooked vegetables chewed well or blended into soup. Some people find bran cereals like All-Bran very harsh on the stomach and instead have Bran Flakes. Or sprinkle some on your cereal of choice.
However I find my diverticula are irritated by gluten/wheat products and full fat, so I have gluten free bread and pasta, and low fat or non-dairy substitutes. The point is, everyone is different, and you have to find out what affects you and what does not, by trial and error. I advise keeping a food diary and noting what affects you. And getting the fiber balance right is important - there can be too much of a good thing. If you are eating plenty of vegetables with your dinner, and taking Metamucil, I would question whether you need Benefiber as well. No doubt other forum members will have their opinions.
You seem to be recovering from your attack, but should be aware that the pain can linger for weeks or even months. I does not necessarily mean you are having an attack of diverticulitis. If you think you may be starting an attack, just switch to a liquid only, no fiber diet for a few days to see if things settle, then slowly reintroduce soluble fiber, although if you are worried it is best to consult your doctor. The medications can have really nasty side effects as you have discovered. I hope you are one of the lucky people who recover quickly and get things under control. I went 6 years between my first 2 attacks, then a further 4 years, so it can be managed. Good luck.
joe70507 tammy49176
Posted
Hi Tammy, You would think ? I do , with all the prescriptions the Doctors hand out-----a little" layman's" explanation could be had to help us from being confused.
I have a severe case of Non-Inflamed DIV- Here is what helps me the most , Water , water, and more water and I do not like water-Tuna in oil--straight out of the can-- No red meat Unless shredded to smithereens, no pork-no seeds, pecans/nuts. That's just me.. Good luck and invest in Charmin" and Advil.
tammy49176 joe70507
Posted
Hi Joe
Yes, I have increased my water intake a lot. I am being very aware of what I eat, although 2 different Drs told me that I can eat anything in moderation IF I am getting enough fiber in my diet to " push things through". But after that excruciating pain that sent me to the ER, I am willing to do anything to never feel that again, including not eating seeds, popcorn, etc... and not a fan of seafood, so that leaves me with chicken and ground turkey.
I just get confused with this newly adjusted diet.
And, lol, I own stock in Charmin. Lol
Thanks for your advice.
ruby05542 tammy49176
Posted
tammy49176 ruby05542
Posted
ruby05542 tammy49176
Posted
Yes. Internet has a lot of information on diet for D, which is to let the body heal.
angela91414 tammy49176
Posted
Hi
When I was diagnosed my cosultant said to eat my normal diet but to make sure not to get constipated. If you have a bad flare up (I get blood and mucus stools) go on a liquid only diet for a couple days (you probably won't have any appetite anyway) if it's milder and you get that familiar pain go on a low fibre diet i.e. Crackers, white bread, baked potato (no skin) Jelly (think you call it Jello in USA) ice lollies, white chicken etc until it heals. So fibre normally and no fibre when it flares up. Paracetamol for the pain (don't know the equivalent in USA) and a hot water bottle on tummy area helps. Hope this helps. Best wishes. Angie
tammy49176 ruby05542
Posted
Oh yes, Ruby, I've been reading up on this for two weeks. I just get overwhelmed with so much info. I'm now trying to learn the difference between insoluble and soluble fiber. Lol.
Thank you
tammy49176 angela91414
Posted
Hi Angela
Thank you for some very helpful info. I do feel a lot better but I have had that "familiar pain" since my hospital episode.
Where are you from? It appears the majority of ppl on this forum are from England. Which is where my dream vacation is.
angela91414 tammy49176
Posted
Yes in England but in USA on holiday at the moment. Was in USA when I had my first diverticulitis episode.