MY DECOMPR.SURGERY IS ON THE 16TH OF MAY ADVICE PLS

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Hi All,

I finally got the letter of confirmation from Q.E hospital - date I have been dreading and looking forward to received. My surgery wil be on the 16th of May nd my pre op. is on two weeks before....I was the end of my tether then..I have been crying last week as this aining in my head is just getting stronger and stronger and my balance is just keep getting worse...is there anyone can advice me..what should I bring..what should I do now..to prepare for this operation..I am glad I finally get the date...on the other hand I am also scare to death not knowing what to expect...???? Thank you in dvance for your advice

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  • Posted

    So pleased you have your date now. As you know from people on here it isn't a pleasant experience. But after your operation rest and drinking plenty liquid.. Button up pajamas are best so your not having to pull anything over head. I didn't have good recovery, it took months of antisickness tablets and I still use them after 18mths, but some have been fine after a few wks. Everyone is different. My speech was effected but came back as the nerves healed.its good to talk to people on here who know what your going through. My hair grew over the scar in no time, but I made sure I had photos to show off my scar, Lol
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    • Posted

      Thank you Helen, any idea..how many set of pyjama I should take with me? any medication at all for while I am at the hospital and after?
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    • Posted

      Good advice on the constipation side, and although op isn't a cure it relieves the pressure on the head. It's natural to be scared, but we will all think of you on 16th x
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    • Posted

      I can only say my experience was about that%, but I have more nausea and dizziness that has subsided over the yr but I'm working part time which I didn't expect to be able to do. It's light domestic work in a hospital. I can't do curtains as get dizzy. But that is me and not everyone gets that. The one thing I will say is look at what people's experiences have been on here. I didn't know about this site and it would have prepared me when I lost my speech for a while and the nausea, as I was scared it hadn't worked. . But as said before everyone is different before and after surgery. Im sure you will be nervous but think how much this operation is needed to stop things getting worse. X
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  • Posted

    I don't think u need anything with u but strength and patients I don't remember my 9 days in the hospital so I guess i hope yours goes the same it's better not to remember ....
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    • Posted

      I hope everything is going good with u ...I didn't want to answer your question cause I'm one of the unlucky one still bad headaches and if I turn my head a certain way I get seizures dizziness and fatigue the same just have to do little work at,a time but my doctor refused me to go back to work so I'm home bound..
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    • Posted

      If you don't mind me asking when was your operation, I suffered dizziness and nausea for months and still have it but on a smaller scale.
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    • Posted

      March. 2015 I am what they say is a case of Pandora box they fixed one thing but my head took differently to the pressure relief and cause a bad effect instead of a good one
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  • Posted

    Hey....

    Try if you can & see the positive in it all that you can have this op with the hope of stopping all these nasty symptoms you are having!

    It is a tough recovery, but, each day after the op is one day closer to feeling well again.

    Things to take to hospital...

    plenty of positivity.....

    Also, as previously mentioned, button up pyjamas, take several lots.

    Dressing gown & slippers that allow you to put your feet in without bending down to do it!

    Bring a bottle of squash so you can make the hospital water taste better!

    wipes to freshen up with when you don't want to get out of bed!

    headphones for music to block out noise on the ward.

    Laxatives!! Your anti sick pills & pain relief WILL make you constipated, be forewarned! Not what you want! 

    Positivity....lots of it! We are all here if you need us, let us know how you get on.

    Sending lots of speedy recovery vibes your way- take care x

     

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    • Posted

      Dear Hayleybell, thank you - you all always been so supportive, I will put every thing ready, I just so scare...but I definately keep you all posted..at least the waiting is now done...just like you said an ample of positive attitude...just pray for me on the 16th remember..me..the operation will be a successful one..
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  • Posted

    Things you will really be thankful for while in the hospital that helped me had a lot to do with comfort.

    -Clothes that you DON'T have to pull over your head. Loose button up shirts, or zip up jackets. You have no idea how much this will help. Loose pants also, you're going to have a catheter and want thin loose pants or sweat pants.

    -Courage to tell people "hey, I'm in pain. I just had freakin brain surgery. Please give me space but thank you for supporting me"

    -Don't be afraid to ask for extra days at the hospital. You won't have the constant help at home like you do at the hospital no matter who is there.

    -Mouth wash, trust me.

    I hope this helped. I had my surgery two years ago now. You learn as you go.

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    • Posted

      thank you, I add this mouthwash on my list , I have three sets of front fastening pijamas , I think that would be enough won't it? so after a year..how do you feel now, I know I keep asking people this..just to re-assurance for my self..are you still on medication..do you enjoy the quality of life to the full now?
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