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My Get up and go has GONE!!!!!

Posted , 5 users are following.

Maley_Bear
Maley_Bear

im using my wheelchair in the house at the moment, I said to myself that I would only use it outside but needs must. As in the title my get and go has really GONE! In my head I go through what I want to do but never get started. Not only is my FS playing up but my back is killing me from an operation that I had to have but to top it off my IBS is really playing up. I know my IBS will settle but how do I get started doing anything? I want to do things but can't. I plan it in my head but that's as far as it goes. I'm sabotaging myself somehow. Any ides on how I can help myself there's so much I want to do but just can't get started any advice welcome

2 likes, 11 replies

11 Replies

  • christine26761
    christine26761 Maley_Bear

    Posted

    You just have to do what you can do and try and relax in it..really feeling for you right now .I was also stuck in a wheelchair once...not nice at all..the Fibro will also calm down in time..as the IBS..I guess my advise is to look after yourself, do not beat yourself up over this..it will improve..just go with it..make you great plans for when you can do it...time taken on planning things are such an essential,,just think of this time in the chair as your planning time...praying for you Marley Bear..mmm what a strong name...be strong ...and blessed..:-) xx
    • Maley_Bear
      Maley_Bear christine26761

      Posted

      I know you are right, looking after myself is a priority, but why has everything got to be so HARD nothing is easy anymore. Even the simplest of things are hard. I keep saying to myself little at a time. I guess I'm just scared because I have to do things differently now. I can't just get up and put the kettle on, I have to work up the motivation to move it takes me five mins to get to kitchen when before five seconds plus getting the things you need to make a cuppa. I know I keep putting myself down or get really angry with myself. But I just miss the old me. The one that played with my children the one that went walking with the dog. I'm sorry I just feel I'm in a tunnel and don't know which way is up, both ways look the same. I just need to keep going and try not to stop😢
    • christine26761
      christine26761 Maley_Bear

      Posted

      That's it just keep on going..I had a high powered job once..it was very hard to leave a settle fir less...so I thought..but I'm still me, yes I'm nit too good at all at thing I once liked to do do, but it did rake me a while..and niw I like the new me..who dies do different things and yes dies them differently..it was a kind of greiving process I had to go through..to apo recuse what I gave got now and hiw I do things niw..it's still me inside but I just do things differently..you'll get there fir syre...you are worth the battle tell yourself..be blessed...:-) the battle might still be around but be encouraged you have already won the war...wink
    • christine26761
      christine26761

      Posted

      Ooops..sorry "SETTLE FOR LESS".  "APPRECIATE" what on earth I'd apo recuse??? 
    • jeanne81532
      jeanne81532 christine26761

      Posted

      Hi Christine, I don't know if you are familiar with the TVs show 'Allo 'Allo'? If not, you won't know what I'm talking about! I just love the typos in your posts! They make  me laugh. I use a (don't know what it's called.) it's like a pen but with a rubber end to it, for typing. But don't get one, if your typing was perfect, it wouldn't make me laugh! Love you. x
    • christine26761
      christine26761 jeanne81532

      Posted

      Awwww, yes I do know about Allo Allo. It's not on at the moment, but we both really love it..(I've just got that sentence all muddled and it does sound a bit like Allo Allo...your sooo right..I even had a laugh myself..yes I have a couple of stylus pens too..mainly use them on iPhone-very small keypad,,,but I don't really like using them on this, I must find  a way of putting certain words in my iPad so when I type them out,,they will come out correctly,.,and not the way iPad wants...!! ,it will do it on our home computer, but not this...so I'll have to manually do it..or maybe not..be blessed :-)lol
    • jeanne81532
      jeanne81532 christine26761

      Posted

      Good morning Christine, I've woken up to a beautiful Spring morning here in Eastbourne. From my bedroom window I could see the South Downs just beyond the houses opposite, and to my left, across the town to the sea. Lots of birdsong when I opened the window. I feel very blessed. 

           Yes re: Allo Allo, it was the policeman who says 'Good Moaning' that your typos reminded me of. I do hope you weren't offended. x

    • christine26761
      christine26761 jeanne81532

      Posted

      Soooo funny really, my husband and I sometimes play like that with words...especially the " just passing through" I won't swear...lol wink wink..:-) xx
  • tiswas24537
    tiswas24537 Maley_Bear

    Posted

    if you have had an operation recently then your proberly having a pain and fatigue flare ,this would also account for the  i b s , playing up.

    i also find if i have anathesic it takes a good while to get out of my system more so than non sufferes , i dread needing surgery because i know what will follow .

    so please do not be hard on your self ,remember an op is trauma to the body , and our condition is caused by trauma and stress so is also made worse by theses . sad

    try some colloidal gold . on line   and some colloidal life trace minerals ,source naturels. help boost you .hope you feel better soon .razz

  • Carinaeta
    Carinaeta Maley_Bear

    Posted

    Bless, I really feel for you, this is the hardest bit of fibro even without being in a wheelchair. I make lists, very, very detailed lists "things I need to do this week" or "today". I make it a rule not to watch TV in the day and to be honest, I dont watch it in the evenings either except for specific programmes. The list will include "eat lunch" and "stop for a break" and i count these as must-do's whereas anything else on the list is a bonus. If I decide to sew or knit or read a book, then that over rides the list, but the food and breaks stay. Everytime I do something on the list I tick it off, honestly the ticking works for me, even if i only do a couple of things it works as an incentive for me. You mustnt feel like you should be doing everything u used to, things on my list will include stuff like "wipe that dusty shelf" a small task but it feels bigger when I have ticked it off. It also means i forget less and keep on top of the fibrofog so something urent goes to the top of the list with a star against it. I agree with the others, u do sound v stressed and that will be whats triggering the IBS. I would also say (for the future) that people in wheelchairs can and do walk dogs and the children would probably be a big help doing this and find it fun. Wishing you the very best, things will get better xxxx
  • jeanne81532
    jeanne81532 Maley_Bear

    Posted

    I agree with the others, it sounds like a flare up. I love Carinaeta's ideas re list making. Lists are good. But I also share your frustration. Usually in the evening I think 'oh yes, tomorrow I'll do this,this and this.' Then the next day, I'm too fatigued to do any of them. The hoovering hardly ever gets done! 'Be kind to yourself' is my mantra, and that is especially so during a flare up. Take care. x
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