Posted , 5 users are following.
I was diagnosed with over active thyroid just over 2 years ago, I had most of the frightening symptoms (very rapid heart beat, palpitations, anxiety, shaking hands, heat intolerance, fatigue, insmomnia, double vision, thinning fly-away hair and rapid weight loss). My GP put me on Carbimazole straight away and arranged an appointment to see an Endo. I saw the Endo about 4 times and my medication of Carbizamole was adjusted as necessary by him. At the last appointment with him he started me on block and repeat - everything seemed to have settled down by this point and I was feeling fine. He said my GP would now start arranging my 6/8 wekly blood tests and adjust medication as and when needed. So for the last (approx) 12 months, I have been taking 75 micrograms of Levythyroxine and 40 mgs of Carbizamole. I had my last blood test on 21st July - I initiated this blood test as my GP hadn't arranged a blood test for me since January and for the last few weeks I had been experiencing some anxiety and breathlessness again and thought I my meds may need adjusting. My blood tests were "normal" but I arranged an appointment to see my GP to discuss it further. At the appointment I told her that I felt the thyroid wasn't under as much control as it had been as I was experiencing anxiety, breathlessness, such tiredness and was always feeling so so cold. She again told me that my blood results were completely normal and said that I should now stop taking the Levythyroxine and Carbimazole with immediate effect and go for a blood test in 4 weeks time. I stopped taking the meds that day and felt fine for the first 3 or 4 days but since then I am again experiencing rapid heart beat, anxiety, breathlessness and generally unhappy with the whole thyroid problem. I'm a 60 year old woman and this debilitating condition has taken away any confidence I ever had - the loss of weight has made me look older than my years, the thinning, flyaway hair that I can do nothing with, the panic attacks over such small things, it's even made me afraid of the dark because I relate the breathlessness and gasping for air to going upstairs to bed at night - I have torches all over the house just incase there is a power cut because "if it's dark I can't breath" - it's so irrational and yet it's how this condition has made me feel. I don't know whether anyone else has been told to just stop taking their meds instead of cutting them down step by step? I also have read on many forums that even though blood tests may come back "normal" people are still suffering some of the horrible symptoms. I have also read that GP's don't really have any answers and it's all just trial and error? Any responses will be gratefully received. Thank you for reading this.
1 like, 9 replies