Posted , 6 users are following.
I have been reading great posts and information on this forum for a while now and found it very helpful.The information and the knowledge of what is happening with me. I thought I would join and tell you of my experiences.
I noticed during 2012 I was really becoming tired and unable to do the most simple tasks. Im a single bloke , 46yrs old and apart from work I enjoy my bike,fishing and being with friends.
So at the end of 2012 I finally put my hands up and ventured into my doctors surgery thinking all sorts.
Was given my first ever blood test and was left a message, from my doc, when I got home on the Friday night(even though told him to ring mobile). Saying got results , contact me asap... Well after spending the weekend thinking I had everything from tennis elbow to brain disease(I had lost my mum from brain cancer the year before) He told me my thyroid levels were sky high and started me on carbimazole that morning.10mg.
End of December 2012 still worn out ,had appoint with endo and he doubled my dose to 20mg and sent me for a scan and another blood test.Confirmed it was Graves and started me on Block-Replace Feb 2013. He said to have 2weekly bloods at docs and put carbizamole up to 40mg as my levels were still very high. Stating when my levels come down to normal the doc will start me on thyroxzine. Sadly doc forgot that bit or something and in May 2013 endo visit I had gone dangerously under. Even though I had rang my doc twice in the March saying I felt great are my levels ok now for the replacement,???
So spent until July 2013 to get my levels back up to correct level and endo started me on Block+Replace had me right in no time, perfect.So a good few months of life.
Dec 2013 he stopped all treatment and by end of Jan this year levels on the rise again and was transferred to Nucleur Med dept at another hospital and told to start carbizamole again.
Had that appoint in Feb . I did say I knew my levels were still on the rise(Getting used to the signs now) so he did a blood test that day.2weeks after that was really ill with it so rang nuke med dept to ask about my blood results and was told to ring my doc, docs not interested and told me to ring nuke med dept. Well at that point I was beyond dispair and it was all too much, I had to do something so decided to self medicate or go to A+E. Opted to double Carbizamole , I had to take control as between them they were killing me.
A fortnight after deciding to take 20mg instead of 10mg I slowly started to regain my life, followed by a letter dictated 3weeks earlier to increase my dose to 20mg. So glad I took it into my own hands.
Had appoint at Nuke med today and said he would look at RAI treatment end of May, even though he promised to get me booked in 2nd/3rd week of April. My levels are perfect for the first time since my blood test in 2012. So said forget the RAI and I`ll stay on Carbimazole. This week I started feeling fine again, So I am determined to have a life this year and just control it myself, will look at RAI possibly end of the year after I have had a good few months and a good holiday.Both of which I have not had since 2012. Its been a hell of 2 years , really affecting my life.
It now seems to me that as long as Nuke Med Dept and Doc keeps out of dealings with my levels life is great.Sorry to go on but it made me feel a bit better lol.
Thanks again for the fantastic info on here, its a great resource for people in the same boat.
0 likes, 6 replies