My subclinical hyperthyroidism annd patients discussion forum

I am really sorry to know that you got RAI even though no relief that's why I feel myself very lucky to find out this forum and opinions and understanding of experienced forum-members.

But be don't be disappointed. keep finding out different ways and means to treat yourself . Life is the name of straggle and fighting back. The GOD is great will help you.

You may want to ask your doc if he or she is willing to prescribe natural dessicated thyroid replacement.  Most patients are given Levothyroxine which is an artificial Thyroid hormone.  You can find out more about this by Googling a search like Natural thyroid medicine alternatives to Levothyroxine.  Or you may want to add Cytomel (T3) to your Levothyroxine.  I was on a very lose dose of Cytomel to boost the action of another drug and I felt good on it.  However, my gynecologist added a T4 medication and then I did not feel as good as taking the Cytomel alone.  There is a natural thyroid drug called Armour which combines T3 and T4.  At least 50% of patients have said they feel better on natural thyroid hormone replacement compared to Levothyroxine so I would head in that direction.  

Hi! Linda187.

Thank you very much .

Your reply is very much appreciated. Here my question to you is" is it hashimoto or grave or both"? Because non of my doc indicated it till now. They didn't order any specific lab test to determine it whereas all above tests were requested by me privately after reading your many old posts except RAI uptake test. There is very long story about endos from here in Oman(where I am working ) and to India (my native land ) non was fit to understand my condition even there were many endos who didn't know that L-carnitine and acetylcarnitine could be used to treat hyperthyroidism and so on. I am still struggling to find out an endo/doc who can understand my condition and work with me to treat it. I got some relief only after applying your protocol but not due to endos that's why there is hope in your carnitine/aclcar research. I know that we are not a doctor but we understand our bodies hence we can exchange our experiences and try it. As a thyroid suffer, you understand better than anyone so please provide me all the informations you have in this regard .

Lavothyroxin (T4) is for hypo or hyper thyroid?

What would be safe dosage of amour and cytomel in my case?

Just give me a rough idea so I can work with the above medicine .

Thanks a lot.

Levothyroxine is for HYPOthyroidism.  So is . Armour.  Cytomel is T3 and usually is given in cases of HYPO thyroidism,  I mentioned this to the lady who had RAI and her thyroid was destroyed so she is not producing thyroid hormone at all and needs thyroid hormone replacement unlike we HYPERthyroid patients who need thyroid hormone blocking drugs.  (So these are NOT the drugs for you).  My thyroid lab results were all normal when I was put on Cytomel 5 mg.  I was put on this in order to boost the action of an antidepressant I was taking at the time so I could have the benefits of it and not the side effects.  I was on it for about 9 or 10 years and the doc who prescribed it told me he never heard of anyone on that low a dose getting Graves or hyperthyroidism.

In your case, I don't think you have Hashimoto's because Hashimoto patients usually have their TSH go up quickly when on Methinazole but others like myself and you have not had that pattern and would not have gotten our TSH to rise unless we took the supplements (at least I know this is true for me).  By the way, no doctors I know of will tell their patients to take supplements because that is not accepted medical practice to treat this disease.  An endocrinologist did publish a study on the use of L-Carnitine in hyperthyroid patients and the beneficial results but despite publishing this in a valid Medical journal and presenting the results at medical conferences, most Endocrinologists did not pick up on this because it is not the usual medical practice to treat this disease and they are slow to change.  I always told my Endo what I was taking though so he knew what improved my results and he did do some reading on it but I do't think he would treat patients with it.  But we have a good cooperative relationship and he does the medical stuff like prescribe the meds and order the lab tests.  I think you have subclinical hyperthyroidism and this has led you to get Graves Disease.  I don't know if you are on any other medications for other conditions and this might be one cause.  Other common causes of subclinical hyperthyroidism are an adenoma which is a non-malignant tumour in the pituitary gland.  Because your FT4 was just under the normal range on #13, you need to lower or stop Acetyl-L-Carnitine altogether to get it to rise again.  Of all the supplements I used, Acetyl is the most sensitive and can result in hypothyroidism if the dosage is not adjusted as the TSH rises.  I think you need to ask your doc about the possibility of having an adenoma and also ask him if any other drugs you are on for any other conditions could cause this.  I have rambled on here and I hope this isn't too confusing for you.

 

It was confusion but now understood. By the way at present I am not on any medication for any other disease . From very beginning of carnitine protocol I began with 250mg aclcarnitine and gradually increased it upto 1000mg but no change in my TSH result when I added 2.5mg methimazole my TSH went up to 1.112 & T4 came down below the lower rang that's why I have methimazole on alternate day. I think I should start taking aclcarnitine on alternate day and methimazole daily? To see whether it can be effective or not.

I am looking for an endo hopefully would be able to see him shortly and ask about pituitary adenoma.

Thanks for correction. And, please keep replying.

The Acetyl when combined with Methimazole will raise your TSH quickly more so than if used alone.  When used with meds it carries everything you are taking across the blood brain barrier.  That's why I always caution people on this Board who want to try it.  When my results got like yours, i.e. T4 too low, I either stopped or lowered Acetyl or just used Regular Carnitine.  At one point, I did have to use alternate days.  I played around a lot with these supplements to keep my labs where I wanted them.

When you get an Endo, ask him if a thyroid ultrasound will show up an adenoma if you have one.  I had an ultrasound as part of my work up for Graves, as well as the scan uptake. 

Hilinda 187!

Thanks for your valuable guidance. I too should do some experiment like you did.

In my lab result no14 my tgab,trab & tpoab antibodies are in normal range. Do you think it still the matter of concern in my case? Please reply.

Thanks

The antibodies seem to be in the normal range so they are not concerning right now in your case Kalim.  

Thanks linda187

This is very relaxing to hear from you that antibodies are no concern at the moment.

Of course should pat on my back but due to you and this forum only that I come to learn and understand something to treat myself . There might be superior treatment available with someone in this world but nobody share with public as you are doing selflessly that's why first credit goes to you only.

God bless you.