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My worst fears confirmed

Posted , 4 users are following.

Jayney84
Jayney84

Hi guys.... After months of feeling dizzy/woozy, intermittent hot feeling in right lower calf, headaches every morning, I finally plucked up the courage to attend my MRI brain. This was a week ago and it has shown "no demyelating features but a 2mm diameter high intensity, oval opacicity in the signal in flair. I work in a GP surgery and my doc says not to worry and that my symptoms (above) aren't typical of MS but I'm going to a neurologist ASAP Because I'm thinking the absolute worst now. The only way I can think of it is that I have a lesion on my brain that is typical of MS. I've convinced myself my dizziness from last august means I've got it and it feels like a death sentence. I'm so upset my biggest fear is turning into a reality. The 2mm opacity found is "unspecific' and my doc said its therefore nothing to worry about. I don't believe this tho and I'm terrified I've got MS. Can people have oval opacities in the White matter without having MS? Help!

0 likes, 3 replies

3 Replies

  • vicky84916
    vicky84916 Jayney84

    Posted

    Hi Jayney,

    I have suffered from optic neuritis and have three or four lesions found on my brain but the doctors are quite sure that it isn't MS rather a virus I had picked up. I had similar symptoms fatigue, dizziness etc but try not to worry too much as this can increase the symptoms further. I have been told the only way to know 100% is a lumbar puncture so if you are concerned see if they will provide you with one.

  • Shazza21
    Shazza21 Jayney84

    Posted

    A Lumber puncture don't always confirm MS

    I have been battling MS symptoms for 3 yrs now still no diagnosis I received a letter ruling out a tumour but stating the most probable cause of my symptoms is clinically isolated syndrome

    I have a demyelination hyper intense lesion and still haven't got any answers I'm so frustrated just waiting to go back to see the consultant in June

    Hope you find some answers xx

  • wendy80842
    wendy80842 Jayney84

    Posted

    hi, i have ms, diagnosed in 2004. it's still much more likely that you don't have ms. should it eventually turn out to be ms, please note: while ms typically shortens a life by a few years, it is NOT a death sentence. lumbar puncture doesn't give a 100% accurate diag. ms is a notoriously tricky condition to pin down. only MRI's taken at different times and a LP along with positive signs on neuro examination will lead to a diag.

    keep a journal of any symptoms/effects, along with when they start and stop and learn some relaxation techniques, these are useful for anyone, and particularly helpful if it turns out to be ms, which it, statistically, probably isn't. do listen to your gp, they're the best person to advise you at present.

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