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Hello. I'm a 22 year old female. I apologize in advance for the length of this.
Ever since I was a baby, my parents called my Pebbles because whenever they changed my diaper, my stool was hard rocks.
I've had stomach issues for as long as I can remember. I remember always complaining about feeling sick. We tried going Lactose Free when I was a kid but it didn't help.
In the 5th grade (10 years old), I got really sick. I dropped weight. You could see my ribs from my front and back. People would look at me and think I was dying. I was put on medical leave from school for 6 months. I ended up having an endoscopy which showed a large scar on my esophagus they believed was caused by a Stomach Ulcer, but they were never certain.
We tried to go Lactose Free again, Gluten Free, Pepcid, Zantac, everything you could think of. Here's a brief list of what I experience constantly
Nausea (sometimes barely noticeable, sometimes debilitating)
Stomach pain
Dizziness/Lightheadedness
Constipation (Can easily go 5 weeks without going)
Fatigue
Inability to burp (I burped once that I can remember and it freaked me out)
Rapid Heart Rate (probably just my anxiety)
Acid Reflux
GERD
*Have NEVER vomited from any of this*
I can go weeks without these issues being that bad, but I will get hit by it and I can't even look at food. I will sleep on the bathroom floor because I'm so nauseous. This will last for about a week. Sometimes less, sometimes more.
The constipation can get very bad. My record is 5 weeks without going. (Except for a small amount of hard pebbles)
Not often, but occasionally, I wake up with my throat and nasal cavity burned by stomach acid. I can't drink alcohol because it makes me so nauseous and gives me acid reflux, that I can't sleep.
There are nights where I can't sleep because of the nausea. Or I can't go into work. There are days/weeks where I can't even look at food without feeling sick, and days/weeks where no matter how much I eat, it's not enough. Which causes my weight to fluctuate like crazy. Plus, my weight goes up when I'm constipated. Which is all the time.
I was on Pepcid for 12 years and recently took myself off, which has actually given me some relief.
I feel dizzy/lightheaded every day. I feel nauseous (to whatever degree that day holds) every day. Pain isn't as much of an issue, but it's definitely there.
I'm 22. I should be out having fun, but I can't. I constantly have to cancel plans because of how s****y I feel. It affects my job, my social life, my family life, my mental health, everything.
I have had 8 different gastroenterologists in the past 12 years. No one has been able to figure it out.
I've had 2 endoscopies and a colonoscopy. I've had food allergy tests. A Gastric Emptying Study. Blood work. Ultrasound on my Gallbladder. All fine.
They have thought it has been Celiac, GERD, Gastroparesis, IBS-C, Acid Reflux, and so many other things.
I currently take Zofran for the nausea and Senna for the constipation. We tried Pepcid, Zantac, Fiber, Protonix, HCL with Pepsin, nothing helps. The Zofran is even starting to not help.
They want me to schedule another endoscopy since the last one I had was 7 years ago, and showed nothing. And the endoscopy I had 11 years ago, only showed the scar.
My aunt recently had hers removed with close to the same symptoms. We think it may be that, but the doctors don't think so.
I want to have a HIDA Scan and a Hydrogen Breath Test, as well as do the FODMAP Elimination Diet. But my doctor's keep changing their mind with it.
I don't know what to do anymore. I have no quality of life. I've had 6 different Gastroenterologists since I was 10. Why can't any of them figure it out?
What could be wrong me? I'm at my wit's end. I can't keep living my life this way it's all I've known more than half my life. Please help. Anyone.
I also have a benign, inoperable brain tumor. It was treated with 2 Brain surgeries and 20 rounds of Chemotherapy. They don't think it's linked, but I figured you will need all the I formation you can get.
I have an anxiety disorder including hypochondria/Health Anxiety. Probably because I've been dealing with various health issues with no answers for my entire life.
Thank you.
0 likes, 2 replies
Leni75 mattie93885
Posted
Hi I know exactly how you must feel having to deal with so many health issues and at such young age.
I feel very similar and fear I also suffer now from health anxiety after years of health issues. But did you talked to a professional first?
I can't tell you whats wrong with you but have you ever been tested for H.Pylori? I mean it might be something like this its causing those symptoms . Cure from this is not simple but its a step to know what is the cause.I really hope you get a solution and feel better to enjoy life x
Leni75 mattie93885
Posted
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