Nearly 12 weeks post tkr surgery

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Hi I am still not sleeping very well, knee gets very uncomfortable, I have now come off BuTrans 10 mg and just taking paracetamol. My knee has gone stiff again and is sore and I am getting lots if cramping pains, the trouble is that my other knee is bone on bone and is now aching and painful too. I want to get over this surgery first before having other knee done. I don't feel ready to go back to beginning again. I have to go to physio again tomorrow, I had been discharged but when I went to have check up last week, surgeon said he wanted me to have more physio to see if it helps. I am still having hot sweats, I thought it was the medication but I am off all the strong ones now, is anyone else having the same problems? I am beginning to get down about it as the recovery is taking so long. regards Jannette

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  • Posted

    Omg, I feel just as u do! I am 12 weeks today post surgery. 

    I am not familiar w/ the drugs u mention. R u in the states or the Europe ?

    I had severe nite sweats and attributed it to the drugs. I have been off strong meds si ce 4-5 th week, but still get them occasionally .

    my other k we is also acting up and I can't even entertain the idea of this surgery again. If I do, I will be next year.

    l am still in physio , as well. I have 2 more weeks to go.

    today was such a down day for me , as I did some housework and haven't felt well since. I can't tolerate meds. Even the anti inflammatory drugs give me problems. I think I am developing  an ulcer from them. So I stopped, and just take Tylenol. I have always been so healthy and have never had to deal with feeling so lousy all the time. I have been fortunate, but because of that I haven't developed the coping skills to deal w/ all this discomfort .

    sorry for the rant, but we r at about the same time line. Let's keep in touch and hopefully bring some optimism.  I keep telling myself that this is not a disease, and then I feel grateful 

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  • Posted

    Oh, I do sleep well now; once I finally get to sleep! Sorry that ur not.🙁
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  • Posted

    Hi Damy , this is the first major surgery I have had too and as you say it's a shock. I knew I would have pain afterwards but wasn't expecting it to carry on. I seem to only sleep a couple of hours then I am awake ,trying to get comfy and the sweats are really getting me down. As you say I keep thinking the same at least it's not a disease and so many people must be going through even worse problems. But just to get a good night's sleep would help. I am in the UK. Sorry you are having problems too regards Jannette
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    • Posted

      Hi, again I'm not familiar w/ the pain meds u take, but since ur taking some I do believe the nite sweats can be attributed to that.

      try to sleep in a very cool room and wear lite weight sleep ware and light covers. I know that when I was on the meds I would wake up soaking wet. Had to wash all the bed linen, even the pillow!!

      im w/ u, can't even think of having the other knee done. If I do, it will be next December, as we r going to Italy for our 50th anniversary in September and my son and his wife are visiting from San Francisco in October. Maybe we'll be forum buddies for the 2nd knee!! 

      Sounds like ur taking the right steps. So sorry u had a set back. Keep in touch,

      best regards, Damy

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  • Posted

    I am 14 weeeks post op today.

    Only in the last 2 weeks have I found  a good improvement.

    Its not as stiff and sore as it was  and the bend and extension is very good now. My whole life is not revolving around my knee anymore, there are actually times when I forget about it!

    I still take painkillers, but only when needed now and first thing in the morning when pain is at its worst. I still do my stretching 6 days a week and take one day off for rest. Walk 15-20 mins each day too. Icing is just a way of life for me now!  Standing or sitting for too long it lets me know it is not pleased!

    Still have trouble with sleep and would only get a couple of hours at a time but beginning to think this is just a habit that I have gotten into now because of the hell of the first few weeks.

    I too need the other knee done it has become worse since the op as I was relying on it more I think. Would I get it done now? No!!!  I'll put up with it until next year.  The recovery just takes too much time out of your life and as we all know that use this forum, nobody tells you this!

    What I am trying to say is I can see the light at the end of the tunnel now and for me its getting a bit  brighter.

    Keep strong you will get there.

    Best wishes

    Ann

    The Irish One

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    • Posted

      Ann. What you have just said reassures me so much. I am only 4 weeks post op, and am thinking, when will I feel better. I knew after surgery would be painful but never imagined it would be so bad. Yes it seems my whole life revolves around THE KNEE.

      I hope you keep posting on here Ann ( I have read your other posts) and believe me it helps me so much, as it must do to other members on this forum.

      Hazel

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    • Posted

      Hi Hazel

      Thanks for that.confused

      Will keep posting of course. I have made so many friends on this forum.

      When we do feel we are doing  well it is important for us to let others know that  there is an end to this hell we have been going through.

      Four weeks is early days for you, and you will despair and get weepy, been there  couple of times! Got so much help here when I was at that stage.  You just think it will never end, but eventually you will get your life back and not have your life revolving around the KNEE!

      Just remember the end game will not happen quickly, as I thought at the beginning. Just keep going (gently, gently, softly softly and it will happen.

      Best wishes

      Ann

      The Irish One!

       

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    • Posted

      Thanks to everyone on this board!!!

      I had surgery Wednesday (3-2-16) and I am mentally preparing myself for the road ahead. Thanks everyone for helping me with that . With my medicine it says take 1-2 every 4-6 hours(Norco). My nurse said take every 4 hours even at night. I set my alarm so I can wake up and take my medicine. I feel like it helps having a constant pain medicine in my system. She didn't say whether to take one or two so I take two during the day when I'm moving around more and one at night. Taking one day at a time.

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    • Posted

      Hi Lydia. Is it Lydia from Leicester ? And did you have your op at The General? If so, I tried to contact you with a private message thru facebook. I had my op the same morning as you, and was in the same ward as you. I messaged you a few weeks ago to ask how you are getting on. I have found the post op pain really bad for the 1st 4 weeks. Just beginning to see The Light .

      I see our surgeon on 15th March at 4.20pm. When is your appointment.

      Lydia I have found this forum most helpful as I too have written a few posts on it.

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    • Posted

      No this is Lydia (54) from Louisiana !! 😝

      I had a PKR, which is not as common as a TKR. I was trying to make sure my pain was on point with everyone else with the same surgery. This board has been so helpful to me.

      Thanks everyone !!

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  • Posted

    My advice to to tell your physio where you feel the main problems on your leg are and ask them to work on those areas.I had private physio twice a week for 3 weeks from week 4 and from 7 now week 11 I have had it once a week and have definately turned the corner now, still use a pillow between my legs at night but sleep so much better. I even forget from time to time I had my TKR until I have a lot to do or walk more than 1/2 hour. I am still taking my meds though as when I tried to cut back I felt worse, I too need the other knee done, but decided to wait at least another 6 months before I decide when to have it done to I can build my fitness back up. Hope you recover better soon.
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    • Posted

      Thank you for your advice I am at the physio this afternoon so I will do as you suggested. The surgeon told me to comeme of the BuTrans 10 mg patch last week and the last couple of days I feel like I have gone backwards. I had my surgery on 14 December and was doing ok till about 5 weeks post surgery when my knee gave way and I couldn't put my foot to the floor and ended up in a and e department, they said I had torn scar tissue deep down and that was the problem and then I was referred back to surgeon and had x rays taken and he said that everything was in place and it was just torn scar tissue. I think it has just put me back a couple of weeks. Thank you for your advice hope your recovery continues, regards Jannette
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  • Posted

    Hi Jannette,

    You don't say how far post op you are. If still in pain ask for a 30mg codeine to take with the 500mg paracetemol.

    I had my second tkr done in January, 8 weeks after the first and couldn't wait. If you are bone on bone ask for the other one done. But you must keep on with your meds. I am still taking the above mix but in one tablet form called Solpodol. This is 4 times a day. I tried to miss one for about 3 hours but realised I wasn't ready yet so back to normal. Your stiffness may be just because you are feeling the pain and therefore not wanting to move it. Get the proper meds, and a paracetamol alone is obviously not enough. You have to be pain free to do the movements, stretches and exercises.

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    • Posted

      Thank you will mention it to physio this afternoon and I have a doctor's appointment tomorrow and ask for something stronger to take. I think you are very brave having your second one done so soon, but I know I must get mine done soon as it's started to lock again and the pain has come back quite bad since I have reduced painkillers. Are you having trouble sleeping? Hope your recovery continues, regards Jannette
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