Nearly 3 years of strange symptoms after unprotected sex and no diagnosis
Posted , 10 users are following.
Hello,
I got drunk one night 2 and a half years ago and stupidly had unprotected sex.
I noticed a bit of a burning sensation in my penis shortly after and clear discharge at the tip of my penis the next day.
I did an at home std test which came back negative, but the symptoms continued. I've also visited a sexual health clinic a few months back to validate the at home test, but they also came back saying I was all clear.
About a year ago then developed hip pain, burning eyes and ankle pain. I saw a rheumatologist and he diagnosed me with reactive arthritis.
Here is a list of all my symptoms and all the tests and specialist I have seen... I'm getting desperate now as I feel like I'm getting nowhere with the constant visits to the Drs :
For the past 2.5 years:
Discomfort when passing urine (after sex, can last for a few days)
Unusual smelling urine
Fishy smell around penis even after washing
Burning pain after ejaculation
Instances of blood in semen
Have noticed clear discharge at tip of penis
Frequent upset stomach
Tiredness
Frequent sore throats
For around a year:
Hip pain
Eyes can become red and painful
Ankle pain
Cracking joints
Symptoms over the past few months:
Tingling in arms and legs (frequent pins and needles)
Hip pain on the left side has significantly reduced.
Intense hip pain on right side has developed.
Tests I’ve had:
Seen rheumatologist - diagnosed with reactive arthritis (the cause for this has never been diagnosed)
Seen Ophthalmologists - told I had dry eyes and to use drops.
Seen a neurologist and had an MRI + CT scan: came back clear with no further action
Had nerve conduction study: all normal
Had an STD check : told all clear
Numerous blood / urine and stool tests : low infection markers. Told low vitamin d levels, been taking supplements.
Had prostate examination. Told all fine.
Had an ultrasound of kidneys and bladder: all clear
2 likes, 40 replies
garvin36901 Guest
Edited
I'm experiencing similar symptoms to you, mine started out as a uti. i had stress event at work and that same night i had uti symptoms appear. This symptoms turned into testicular/penile pain and reactive arthritis and then 6 weeks of migraines/fatigue. At this point i started panicking as no doctor could culture anything no stds, herpes, cmv, ebv and i then jumped to the hopefully incorrect conclusion i had a rare strain of hiv. After more testing and seeing urologist, rheumatologist and 3 ID doctors I'm still no closer in resolving this mystery disease... I honestly feel for you, I lost a relationship over this and was put into mental hospital for health anxiety for a month. I currently don't have any other suggestions on how to cope as now I am just taking day by day hoping one day it'll disappear myself. Hang in there... I read alot on these forums with others experiencing problems 3 years ago but no one has updated how they are doing or what worked to find/eliminate reactive arthritis?
roman35852 Guest
Posted
this could be undetected Chlamydia
johnfigs19xx roman35852
Posted
why would that go undetected ? he was tested twice ?
roman35852 johnfigs19xx
Posted
What tests? Are you sure they are/were 100% reliable?
The symptoms are much more important than stupid test results.
Only doctors need to see positive tests to give you the pills, but my life experience with chronic prostatitis (triggered by chlamydia) and with lyme disease are different.
Not every test is reliable, believe me and trust the symptoms.
johnfigs19xx roman35852
Posted
im not doubting anything i was just asking ive been tested for std literally 5 times this year with no new sex partner but i still have many std symptoms !
roman35852 johnfigs19xx
Posted
and how/when all your symptoms/problems started? do you think it could be related to sexual intercourse?
johnfigs19xx roman35852
Posted
well i recieved oral sex about 11 years ago and had the same symptoms im having now then they subsided but now there back and getting bad
symptoms are - burning foreskin,burning urethra,stomach inflammation,swollen neck glands and my mouth is always burning with lesions too and i feel like im going crazy !
roman35852 johnfigs19xx
Posted
and what test did you make at that time (11 years ago)? What was the results, what medicine did you take, etc?
kim12266 Guest
Edited
why are comments being deleted ?
jay888 kim12266
Posted
I have no idea , i simply suggested he should test privately to be sure .
The nhs is great but there is no harm in having a 2nd opinion .
kim12266 jay888
Posted
pointless putting anything it just gets deleted no matter wat u put 😂 cannot even put a comment without it being removed
jay888 kim12266
Posted
Its a site where people seek help , btw , my local gum clinic have sent my oral swabs away to get tested to get to the bottom of my thrush .
They said they will ask for " cultures " is this where they check for the bacteria and hopefully put an end to my oral thrus with the correct treatment ?
Hope you can help with this kim .
kim12266 jay888
Posted
the swabs will just determine if it is thrush or not an they will treat it probably with nystatin or fluconazole
kim12266
Posted
u would need to have blood tests done to see u u have a virus thats comprimised your immune system if there normal then it may just be one of them things and no cause for
jay888 kim12266
Posted
Hi Kim
Actually my GP did a blood test and found nothing this was in mid January , all good she said .
Today at the clinic they decided to take an oral swab .
ive tried Nystatin drops 14 days course some benefit but still have some thrush in the centre .
hopefully het some news good news from the clinic .
kim12266 jay888
Posted
if it comes back yeast again they will probably try a different medication if u have had previous blood tests an alls come back ok then theres not underlying cause probably one of them things