Need advice :(

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Suffering my 6th flare up (each time been hospitalised and given IV antibiotics) normally after about 3 days I start to feel better. This time I was on IV antibiotics for 4 days and given a further 4 days of tablet antibiotics. I have been feeling awful (weak and feeling dizzy) started to have a bad tummy 2 days ago (running to the toilet) and so I went back to docs as also still having tummy pains. Temp was high and pulse way too fast. Why are the antibiotics not working? Been given a further 5 days

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  • Posted

    Sorry you hear that Michelle, once your start feeling better are you eating things that can cause a flare up to soon. You may need to be on a liquid diet longer to let yourself heal a bit more. Are you taking any probiotics or supplements to help.
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    • Posted

      I'm always careful not to say anything that could cause a flare up so not sure what causes this one- been very stressed so could be that. Eating next to nothing at the moment as I also have dioreah everytime I eat sad never had one this bad before sad

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    • Posted

      I know it's very temting not to eat anything ,but you have to keep your

      bowels active ,scrambled eggs are good, they don't sit anywhere to cause

      problems, just eat little and often, smile Cheese is good ,protein and all .

      that Put your feet up,and read a book, and don't stress about ANYTHING. It will go away.

       

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  • Posted

    Hello Michelle,, nothing worse in the whole world than a bad flare. Most important

    thing for you to do is not to get stressed about it. Take Paracetamol for the pain.

    rest, and drink lots of non fizzy drinks Lots of us take Acidopholis probiotic

    capsules ,good bacteria fights the rat bags in your colon. Sound as though

    there is still some infection there.  Do watch what you eat most important 

     

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  • Posted

    Each time you have a flare the condition of your bowels gets worse and worse and the antibiotics do not have the same effect the more they are used.  At some point the doctor will suggest surgery.
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    • Posted

      The thought of surgery terrifies me sad each consultant I have seen have been reluctant to suggest surgery because of the risks involved however one consultant did say that as I have got the disease so young I would need surgery at some point sad

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  • Posted

    What antibiotic have you been given? Some antibiotics can make it more likely that a c.difficile infection develops. Others such as the fluoroquinoline class ie Cipro can cause very bad side effects.You need to try to restore your good gut bacteria between flares. Antibiotics destroy all bacteria good and bad and will lead in the end to compromised general health.
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    • Posted

      Yes you are right, but first you need to fight the infection and then work on good gut bacteria.  I have used cipro and flagyl in combination, by mouth and in two cases intervenious.  It can takes months to restore the gut with bland easily digestiable food gradually working your way back to a more high fiber diet in combination with a probiotic pill everyday. Even with all this you can get a flare - and  I have found it usually flares with food I have thought was a little "suspect" when eating out, so I try never to eat out and prepare my own food. Hope this helps. Good luck and hope you get better and stay well. 

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    • Posted

      The more times you take a fluoroquinolone antibiotic the more you approach the limit of your individual tolerance for this class of drugs and the more you expose yourself to the possibility of being floxed. Augmentin works just as well and is less risky.
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    • Posted

      There is a whole range of antibiotics they will try, trying to determine what might work and the word here is "might", as there is no cure. Once the bowel is damaged it is damaged and tends to get worse over time with other flares until a perforates or striated and becomes very narrow with scar tissue. You can only do your best and consult with your doctor regarding his choice of treatment.

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    • Posted

      As a floxed person I can only say that having floxing symptoms on top of having to manage my diverticulitis has simply made my life far more difficult. It is bad enough having to restrict one's diet to try to avoid flares without struggling to find meats that have no antibiotic residus in them as these can rset off floxing flares. To say nothing of having to cope with tendonitis throughout the body as well as gut pain.Cipro / Flagyl combo is too often given as the standard treatment with very little thought for the consequences. In Scandanavia they very rarely give antibiotics at all for diverticulitis but use bowel rest . They have determined that this is as effective .

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    • Posted

      A floxed person is someone who has had an adverse reaction to an antibiotic of the fluoroquinolone class . There is aforum here which gives good info on this. Look up fluoroquinolone toxicity.
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