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Need help

Posted , 4 users are following.

Ajb003
Ajb003

I was diagnosed hyper in May, and have since been on methimazole. When I started, all levels were normal except for my TSH - it was a .08. After first blood work, it was at a .66. Two weeks ago, it was at a .86 with free t3 at 3.63 (range is 2.77-5.27) and free t4 at 1.35 (range is .78 to 2.19). However, I still don't feel good. Still hungry all the time and fighting to maintain my weight. Still don't sleep well. Still have heart palpitations. I wake up anxious and in a fog. The dr says I should be feeling better because I am now "in range". Does anyone have any thoughts or advice?? I would LOVE to feel like me again. 

0 likes, 7 replies

7 Replies

  • elisa15387
    elisa15387 Ajb003

    Posted

    Hi

    How long have you been on methimazole?  I have Graves disease and had a bad flare up 3 months ago and have just started to feel better. It's taken my body that long to take to the medicine. 

    In addition to the medicine, I'm on a low carb, low gluten high protein diet.  I cook my vegetables and I'm on a very low sugar diet.  I'm also taking vitamin d, b12 and magnesium which has helped me with muscle strengthening and movement as I was having a hard time walking and was needing a walker.  

    I hope this helps

    • Ajb003
      Ajb003 elisa15387

      Posted

      I started in May. I'm also on high protein, low gluten, lots of fruit and vegetables. I've been a health nut for years, but can't workout or do much more than walk these days because I'm afraid of getting my heart stirred up. I'm on propranolol, which keeps it maintained, but it just feels too risky to push it. Just hate this feeling of "when am I going to feel right again" looming over me day after day. 

  • arlea13920
    arlea13920 Ajb003

    Posted

    I really don’t know as my numbers are as far out of whack as yours are and I saw my doc July 24, he drew my blood and said to come back in 2 months for a bone density test, and I hurt all over, and have also gained weight. I am fighting a losing battle as I am also hungry all the time. I am not on any meds.i have trouble sleeping, and get up tired.  Also I try not to do too much as the heart palpitations are not good on a regular basis. We don’t want to do damage by overdoing it. If it’s any consolation, you are not alone. My best advice would be to get a second opinion. Life is short, and this is a hard way to live.

     Wish I had better answers. God bless, and hang in there. 

     

    • elisa15387
      elisa15387 arlea13920

      Posted

      No that's right, you're not alone.  I still.have symptoms and I wake up tired too just wanting to nap.  It is frustrating.  It is better that you're not working out.  I had a physical job and tore muscles from overdoing it.  If you're wanting to get some exercise just go for short walks and/or light swimming.  That's what my endo told me but to be honest, my endo may not have all the answers either.  It's hard finding what to do what's right for our bodies.  

    • arlea13920
      arlea13920 elisa15387

      Posted

      I know. I worked as a nurse, and did a lot of hauling. I also have COPD which also complicates things. I do know it takes your body time to level out. Time is on your side. You have to remain positive. That’s the hard part. No matter what we will get through this!

      Stay positive!

    • arlea13920
      arlea13920 Ajb003

      Posted

      The doc I went to wants to see how I am doing on my next appointment. He stated he is not sure that I have Hyperthyroidism. He thinks it might be something else . My blood results took 48 hours before I got them. I have 3 that are abnormal. He wants to see how I am doing on my next appointment. If nothing is done, I am done with him.
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