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Hi.. I was diagnosed two weeks and two days ago on Friday.. I've been really both mentally and emotionally unstable (I guess you could say) since the results were given to me. I decided to join some support groups and came across this one this morning in my seemingly endless search on the topic. I have genital HSV1. I've told only 1 person of my diagnosis and that is my fiancé.. Or was.. Not really sure where we stand at the moment. He's been supportive but he's also hurt and upset and I get that.. I'm towards the end of my first outbreak.. Or so I hope.. Still in discomfort and still healing. I'm really just at s loss for anything. We have 3 small children who I've been terrified to even be around since learning I have this virus. The hand washing is endless. Even though I don't have it orally I don't let them drink or eat after me.. It's all I can do to hug them because I'm so scared to potentially infect them. I give them kisses on top of their heads now.. I just couldn't bare the thought of passing this to one of them. I even disinfect the toilet seat every time I go. Maybe I'm taking it to far.. Anyways, my main concern is caring for my children in a safe manner. Could anyone share experiences with me or offer some guidence as to if I'm being safe enough or if I'm going about this right as far as caring for my kids.. Any other support or information would be greatly appreciated as well.

Also, I'm 3 weeks into this outbreak still in discomfort and have notice my butt and thighs have been aching and also have been having tingling sensations in them. I'm on the tenth day of my 2x a day dose of valacyclovir and will continue a daily dose for a year to help suppress. I've been told my doctors though having gHSV1 is somewhat "lucky" compared to having hsv2 or having hsv1.. Even though I don't see anything lucky about the situation. Anyways.. Thank you..

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  • Posted

    Hi Jordan,

    I have two small children and feel exactly the same as you. I am awaiting cultures back and the last week has been a living hell. My "outbreak" if that is what is was has been mild and is already gone but I am terrified of touching my children. I disinfect the bath, my hands, the toilet constantly. I am so terrified and the mental pain is killing me. My doctor suspects that I self innoculated as I had a recent coldsore and I am in a long term stable relationship.

    I can't offer any advice but just let you know that I am in the same situation.

    • Posted

      Supersad,

      Thank you for your response.. It's somewhat comforting knowing I'm not feeling these things alone. I'm so sorry you are experiencing this too though.. My outbreak was extremely severe. I had a catheter in for 7 days to let things heal. Urinating felt like I was peeing razor blades. This whole ordeal is just completely horrific. It is exactly like a nightmare. Also, the fact that this is for life has really got me down. I've been trying to be positive about things but I can't seem to get out of this funk no matter how I try..

    • Posted

      I am exactly the same. My kids have gone out and I am sat here trying to clean the house but I am in floods of tears. I just don't know how this has happened. I am still in denial as well. I keep thinking that it has to be something else, but it probably isn't. I am back with the Doc on Tuesday and will find out definitively then. I feel ill all the time and I am barely eating. The mental anguish I have had is far worse than any symptom I have had. I only looked because I was a little "burny" down there and it hurt to wipe. The next day I had blisters and went to the doctor. The didn't really itch or were sore, the area was burny. I feel so sick and desperately sad. 
    • Posted

      A natural and understandable anquish you are going through but you will get through it and lead a normal life.

      Keep well and keep posative.

  • Posted

    You can't give your children this by kissing them. If you have HSV 1 down there chances are very slim you have it orally but if you do just don't kiss them on their lips. You can not pass it by a toilet seat. You are just causing yourself more stress then needed. If your soon to be husband cant stand by you through this then you don't want him in your life anyways, that's ridiculous.
    • Posted

      Thank you.. Before being diagnosed I had next to no knowledge on the virus. This has been a learning experience and I would go any distance to keep from passing this to my children.. Even though they can't get it from the toilet seat disinfecting it gives me just a little piece of mind... I agree about my fiancé this is an extremely emotional time and I told him I need him more than anything right now to hold my hand through this.. He's been completely distant. Which I understand because he potentially has this as well and that's a hard thought for him to have.. But i do need him and his support right now. Thank you for your response, I appreciate it very much.
    • Posted

      Yeah I didn't have any knowledge of this or any std's before. I have never had anything else. My ex was caught off guard and was distant for alittle while but then after a day or so he came around. He went and got tested and he doesn't have it. I had another partner since we broke up so that is where I got it from. I didn't tell him that there was someone else because I don't want to hurt him. If he truley loves you he will be there for you within time. Just let him know that hsv1 is the most common because most of the time you don't have any symptoms. So neither one of you would know you have it. My partner didn't have any signs of it and when I told him he was scared and apologized because he didn't know about it either. He jas never had an outbreak or anything on his mouth. Trust me when the shock wears off he will be better
  • Posted

    I too am I. The healing stage of my outbreak. I was diagnosed alittle over two weeks ago as well. I just took my last pill. Had to take it for 10 days. I take the same as you. I also have the same tingling and itching sensation you do. It has caused me so many sleepless nights. Last night was the first night I slept more than two hours in like 4 days. The itching has almost stopped all together and I am able to wipe normally again. Without having to dab but still sore from the itching so I am very careful. I still see the blisters. They are faint but still there. I was worried that I was having another outbreak bit read on the internet that the itching is normal when you are healing. It's the same with any type of infection. So don't worry it will pass. I also have two kids. I've been washing my hands non stop. I have almost become ocd about it in a way afraid that I will spread it somewhere else on me or my children. I won't share a drink with them even though I don't have it on the mouth just genital. I have hsv1 also. My dr told me that usually it's just the one outbreak that 90% of people never have another one. That's why it is better than having type 2. They say that because it oral even though I have it in the genitals that it's harder to pass to your partner. In a way it seemed like it just goes away. You carry the antibodies still bit being type 1 it is way better to deal with. That is what helped me get through this. I have been so scared to pass it on to someone especially my kids. I don't let anyone go to the bathroom right away after I do because I get scared. I have read that it doesn't live outside the body so passing it from a toilet or anything like that is nearly impossible but when it comes to my kids I'm not taking any chances. I'm still angry that I was stupid and got this but this board has helped ease my mind a lot. I hope this has helped you. You will get through this. As far as the fiancé just have him get tested. It is a shock for him just as much as it is for you and he may be distant but you need to let him so that way he can deal with it. Just from the perspective that my ex gave me is that it is hard to watch me be in pain and he can't do anything about it. So that's probably what he is feeling as well. Not to mention he's probably just as scared as you are. Give it time and he will come around. Have him read about it and then he will realize that it's not so bad. I'm sorry this is so long but we pretty much have the same exact thing going at the same time so I thought I would share from my perspective on things. All you can do at this point is be honest with him have him ask any questions he has and share what you have learned. He needs his mind at ease just as much as you do. I hope this helps
    • Posted

      Amy07772,

      Thank you so much. This was extremely helpful in easing my mind a bit. I have been so worried about getting it anywhere else on my body. I feel like my lips have been tingling but I also feel like this is my mind get the best of me. That is also another thing I've read and keep hearing in the support groups is that the recurrence of hsv1 outbreaks in the genital area is not very high.. I couldn't imagine going through this pain again. It really had me ready to put it all to an end it was just too much. Thank you for sharing. It means a lot to me.

    • Posted

      Yeah I was thinking that I was getting it on my lips as well. I tend to freak myself out the same way you did. But once I reminded myself I don't have it on my mouth it went away. But I also have very sensitive skin so if I touch my face in the shower I usually get a pimple anywhere I touched which is weird but I told myself that is what it was. My outbreak was also so severe. I would be in tears for the first week until the medicine started working. My dr gave me lidocaine gel so that helped so much. I didn't want to go to the bathroom because it hurt so bad just like razor blades that were cutting me as I peed. I also got my period during the outbreak which made it even harder. I felt like I would just rather die than deal with this. The pain was right up there with labor pains except you feel that way for over a week instead of a day. It is mentally hard to deal with. But we are both at the end and since you are at the itchy phase give it a few days and it should go away. They say the itchy phase lasts about 3 days mine was more like 4-5 but was bad for three of them. I can't imagine ever going through this again. But if you do get another outbreak it won't be nearly as bad and it only lasts for like 3 days instead of 2-3 weeks. Thank you for sharing because you helped me as well because you have the exact symptoms that I do/did and you are the only one that I have read that was exactly my story.
    • Posted

      How bizarre! I got my period as well and it aggravated everything. I basically sat on a bed pad because pads made me itch when I had to wear them and I was way too scared to even attempt a tampon.. But I had the catheter in so I was limited in my options anyways. I was prescribed the lidocaine gel and only got to use it once because the pain during irination caused me to pass out and that was when my second trip to the ER came about where I basically begged to have a catheter put in. I'm so grateful to have posted my story and got your response. My spirits are probably the highest they've been since being diagnosed.
    • Posted

      I am glad that i have helped you. We seem to freak out the same way lol. I actually got my period the day before my appointment to have the dr look at what I have and being it just started it was heavier than normal too so they would have wanted me to wait. So I put a tampon in so they would see me and it was the worst pain. I was in pain the whole time but wanted to know what was going on. I was so raw and sore down there. As soon as he was done I took it out and put on a pad. Pads irritate me too and even though I don't have my period anymore I still wear a pad because the gel would get all over my underwear so I think that's what I'm dealing with now is the irritation from that. So now that I don't have to use the gel I'm going to get rid of the pads and start to heal from that now lol. It seems like this is never ending but I am already 90% better than what I was two weeks ago at this time
    • Posted

      I totally agree. Two weeks ago I literally thought it was the end for me! I also was wishing for it too, just wanted it to be over. I'm still not completely comfortable but I'm hoping to be soon. Glad you're feeling better! Hopefully we won't have to deal with further outbreaks or if we do they'll be minimal in severity. It was great talking with you today!
    • Posted

      It was great talking to you too. I'm not 100 comfortable yet but I do see light at the end of the tunnel. Talking with you has helped me too. I'm glad I found this board
  • Posted

    Rest assured that the measures you are taking to prevent possible transmission to your kids are more than enough, if not a tad excessive! Your infection is genital, not oral, and HSV doesn't survive long outside of the body. But if it brings you better peace of mind, then by all means continue.

    I have read that genital HSV-1 may sometimes cause a worse primary outbreak than HSV-2, but after the initial outbreak, genital HSV-1 typically recurs and sheds a lot less. Genital-to-genital transmission of HSV-1 is low and most unlikely if your fiance already has oral HSV-1 (I'm assuming that's how you got it, from oral sex, as that's the most common transmission route).

    As a result of the above, you are unlikely to need daily suppressive therapy and may wish to first observe how your body handles the infection without antiviral meds, or only take them in the event of a recurrent outbreak, which should be much milder than this one.

    Oral HSV-1 can pass to the genitals during oral sex, sometimes without noticeable symptoms (asymptomatic shedding). I am assuming you are mad at your fiance for giving you this, so just pointing this out, as he may not have known. And, yes, in many ways genital HSV-1 is much better than HSV-2.

    Take care!

    • Posted

      Thank you! That information is very helpful. Im not exactly sure what to think about how I contracted it. My doctor told me I may have had it for a long time and something triggered me to have an outbreak.. Or he very well may have had it orally and passed it to me unbeknownst to him. If he did give it to me he really had no idea.. So I'm not mad.. He's a little upset because there's nothing he can do to help with pain and he really isn't sure how to handle this. He's been very quiet and distant and I can respect that because I myself haven't been very pleasant to be around since I've been extremely uncomfortable.. It's just been a lose lose situation for us.

      Thanks again!!

    • Posted

      Yeah no matter who gave it to who I don't think either of you would know. You could still have it even though you have never had an outbreak. You just carry the antibodies. That's how I got it. No I wasn't very pleasant either. I kind of stayed quiet and to myself and was cranky because of the pain. He will come around. You're welcome and thank you. You helped me too because we have the exact same situation so it has eased my mind
    • Posted

      Ah, my bad! I wrongly assumed you were having issues with your fiance because you thought he might have given it to you. Sorry.

      If you'd like more useful info regarding genital herpes, feel free to check out my discussion thread: https://patient.info/forums/discuss/genital-herpes-useful-info-for-those-looking-for-answers-like-me--482438

      I have tirelessly researched nearly everything you could possibly want to know about GH these past few weeks and summarised everything in the one thread as a resource for others, as most websites don't address everything, I've noticed. Links to the info will be added later. Hope you find it helpful!

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