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Hi.. I was diagnosed two weeks and two days ago on Friday.. I've been really both mentally and emotionally unstable (I guess you could say) since the results were given to me. I decided to join some support groups and came across this one this morning in my seemingly endless search on the topic. I have genital HSV1. I've told only 1 person of my diagnosis and that is my fiancé.. Or was.. Not really sure where we stand at the moment. He's been supportive but he's also hurt and upset and I get that.. I'm towards the end of my first outbreak.. Or so I hope.. Still in discomfort and still healing. I'm really just at s loss for anything. We have 3 small children who I've been terrified to even be around since learning I have this virus. The hand washing is endless. Even though I don't have it orally I don't let them drink or eat after me.. It's all I can do to hug them because I'm so scared to potentially infect them. I give them kisses on top of their heads now.. I just couldn't bare the thought of passing this to one of them. I even disinfect the toilet seat every time I go. Maybe I'm taking it to far.. Anyways, my main concern is caring for my children in a safe manner. Could anyone share experiences with me or offer some guidence as to if I'm being safe enough or if I'm going about this right as far as caring for my kids.. Any other support or information would be greatly appreciated as well.
Also, I'm 3 weeks into this outbreak still in discomfort and have notice my butt and thighs have been aching and also have been having tingling sensations in them. I'm on the tenth day of my 2x a day dose of valacyclovir and will continue a daily dose for a year to help suppress. I've been told my doctors though having gHSV1 is somewhat "lucky" compared to having hsv2 or having hsv1.. Even though I don't see anything lucky about the situation. Anyways.. Thank you..
1 like, 31 replies
supersad jordan86846
Posted
I have two small children and feel exactly the same as you. I am awaiting cultures back and the last week has been a living hell. My "outbreak" if that is what is was has been mild and is already gone but I am terrified of touching my children. I disinfect the bath, my hands, the toilet constantly. I am so terrified and the mental pain is killing me. My doctor suspects that I self innoculated as I had a recent coldsore and I am in a long term stable relationship.
I can't offer any advice but just let you know that I am in the same situation.
jordan86846 supersad
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Thank you for your response.. It's somewhat comforting knowing I'm not feeling these things alone. I'm so sorry you are experiencing this too though.. My outbreak was extremely severe. I had a catheter in for 7 days to let things heal. Urinating felt like I was peeing razor blades. This whole ordeal is just completely horrific. It is exactly like a nightmare. Also, the fact that this is for life has really got me down. I've been trying to be positive about things but I can't seem to get out of this funk no matter how I try..
supersad jordan86846
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DeBruce supersad
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Keep well and keep posative.
noelle2212 jordan86846
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jordan86846 noelle2212
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amy07772 jordan86846
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amy07772 jordan86846
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jordan86846 amy07772
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Thank you so much. This was extremely helpful in easing my mind a bit. I have been so worried about getting it anywhere else on my body. I feel like my lips have been tingling but I also feel like this is my mind get the best of me. That is also another thing I've read and keep hearing in the support groups is that the recurrence of hsv1 outbreaks in the genital area is not very high.. I couldn't imagine going through this pain again. It really had me ready to put it all to an end it was just too much. Thank you for sharing. It means a lot to me.
amy07772 jordan86846
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jordan86846 amy07772
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amy07772 jordan86846
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jordan86846 amy07772
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amy07772 jordan86846
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FelizCastus jordan86846
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I have read that genital HSV-1 may sometimes cause a worse primary outbreak than HSV-2, but after the initial outbreak, genital HSV-1 typically recurs and sheds a lot less. Genital-to-genital transmission of HSV-1 is low and most unlikely if your fiance already has oral HSV-1 (I'm assuming that's how you got it, from oral sex, as that's the most common transmission route).
As a result of the above, you are unlikely to need daily suppressive therapy and may wish to first observe how your body handles the infection without antiviral meds, or only take them in the event of a recurrent outbreak, which should be much milder than this one.
Oral HSV-1 can pass to the genitals during oral sex, sometimes without noticeable symptoms (asymptomatic shedding). I am assuming you are mad at your fiance for giving you this, so just pointing this out, as he may not have known. And, yes, in many ways genital HSV-1 is much better than HSV-2.
Take care!
jordan86846 FelizCastus
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Thanks again!!
amy07772 jordan86846
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FelizCastus jordan86846
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If you'd like more useful info regarding genital herpes, feel free to check out my discussion thread: https://patient.info/forums/discuss/genital-herpes-useful-info-for-those-looking-for-answers-like-me--482438
I have tirelessly researched nearly everything you could possibly want to know about GH these past few weeks and summarised everything in the one thread as a resource for others, as most websites don't address everything, I've noticed. Links to the info will be added later. Hope you find it helpful!