New here...panicking a bit!!!!

Posted , 10 users are following.

Hi everyone, I would be really grateful if someone would reply to me. I was diagnosed about 6 months ago ,but I think I've had it for many years. I seem unable to take any of the drugs,as the side effects are as bad as the complaint. My dr won't prescribe Valium for muscle relaxation,but seems perfectly happy to prescribe high dosage codine,to be taken up to 4!times a day.( please anyone does this make sense? I'm very much aware you have to be careful!! But for short periods and to relax chronically tense muscles they work!)  my question is how do any of you judge if you should go to the Drs? Every time I feel really bad I am tempted to go ,then I think what's bathe point? As there's often so many things wrong and how do you explain it all.and do they care really? Just feel so isolated with it sometimes. They diagnose you and you get on with it. You feel like saying " please help me" and it's very depressing to know that they probably can't! Major flare up at the moment and weird new symptoms,it gets scarey!...anyone else feel like this???

 

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  • Posted

    Hi there. You doctor doesn't appear to be very useful. I had to go through 4 doctors at the same practice before I found one that would take me seriously.

    I was also put on a pain management course which covered types of meds and how they work, pacing, relaxation , physio and meditation.

    Keep pushing, doctors are there to serve their patients not the other way round.

    I know it is hard but, we are all here to support each other. If you get no joy at your current practice then move.

    take care

    shazmill

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  • Posted

    Thanks for replying. I have actually changed Drs. This one is really lovely,but I don't think many of them have a clue what to do with you! 
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  • Posted

    Lynda, I reckon I had fibro for more than ten years before being diagnosed. When eventually I was diagnosed, I was prescribed Paroxetene, an anti depressant which killed the pain but gave me an a la carte selection of nasty symptoms that I couldn't live with. I came off them and by that time I had learned the secret of magnesium. I had started taking Boots Calcium and Magnesium tablets with vitamin D. By the time I had been taking them for two months, I would say the pain an stiffness is controlled by 80-90%. I take double the RDA of two tablets (I take four per day). I also bathe regularly in Magnesium sulphate (Epsom Salts) - two cups full in a nice hot bath. For sleep I take valerian - again at higher than the recommended dose. These things won't work for everyone but most fibro sufferers are deficient in magnesium so nothing to be lost trying. It can take a while to build up in your system. My sleep pattern has improved greatly. I also liten to a lot of relaxation/meditation stuff. There is a great one hour countdown to sleep by 'The Honest Guys' available free on youtube and spotify which you can listen to via earphones. On the question of Doctors, I found mine pretty hopeless really. He recommented CBT and anti-depressants. He dismissed the magnesium route - indeed scoffed at it. Although I have had a lot of stress, I have never been depressed so I always felt there was a physical solution and that's how it has turned out for me. Good luck.
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    • Posted

      I meant to say that when I do take pain killers I take Naproxen. Again no thanks to my doc. My daughter has this drug for migraine. I tried it and it worked so asked doc to prescribe. It's kind of like industrial strength ibuprofen.
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    • Posted

      Should also say, 25kg of Epsom Salts is about £20 on Ebay. Also Valerian tabs available there very reasonably. Valerian is marketed as Kalms nighttime. Much better going for the non-brand but make sure it is valerian root.
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  • Posted

    all of us i think hun 

    i to wont use perscription drugs because of the side effects 

    and due to also suffering with Aspergers syndrom as well i am very drug sensistive

    try magneisum oil on your limbs and magneisum flakes in your bath really takes the edge of the pain and restless legs , 

    if you can manage a magneisum supplement that will help to 

    and i find collidual gold helps to .some people find D-mannose helpful 

    and of course find a good self hypnoses relaxtion cd and do at least once a day .

    hope some thing here helps

    .il p/m you with a new product i am going to try .you cant do brands on this page 

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  • Posted

    Thank you so much both of you. It makes you feel better to know you're not on your own too! I will try the magnesium !!!! These are all things I've considered. Let's face it you could go into Holland and Barrett and buy up the shop,so it's so helpful to hear what works for others. I'm fed up and lost at the moment,so I'm very grateful. Thanks again
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  • Posted

    Hi

    valium is so addictive with terrible withdrawal effects

    the only things I find work are

    tramadol paracetamol

    anti inflammatory

    vit d

    b complex

    magnesium

    rest sleep and regular excercise but not enforced excercise swimming good doggy walking pottering in the garden keeping up to date with housework so you don't have to do mega busy days

    cut out repetitive work ie ironing lots of vacuming polishing anything that uses the arm and thigh muscles a lot

    the nhs does fibromyalgia classes and sessions in hydrotherapy pools they're brilliant, see if you have a pool that's extra warm for arthritis groups etc

    I also find coconut water good full of potassium

    ensure you walk well and good posture

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  • Posted

    I had xrays done on my hands and feet after i first saw a rheumatologist he thought i had fibromyglia as well as havinga ultra sound scan on my hand he thinks i have rheumatoid arthritis im in so much pain ive seen so many doctors and taken all different painkillers im on morphine with zapain at mo i will be glad when he does a proper diagnosis
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  • Posted

    Hello Lynda, I reckon I've suffered for 20 years, and I've only just been diagnosed. I've had umpteen bouts of depression and had anti depressants each time, and I have had panic attacks and anxiety for the past 2 years, which led me to believe I was seriously ill, and was going insane. I was diagnosed last month, and didn't know which way to turn, so I resorted to the web, and I have recently started taking Vitamin D3, Magnesium/Calcium ( I have osteo in my hands ), B complex and Propranalol, as I have palpitations ( probably caused by Magnesium deficiency). I have stopped smoking, and have recently found that I cannot drink alcohol as much as I used to - my 3 bottles per week has dropped drastically to one, and if I have more than one or two glasses in an evening, I feel dreadful the following day. I am also Dairy intolerant, cannot touch caffeine any more, and am starting to find that wheat upsets my stomach. My body has changed so much over the past couple of years since finishing the menopause, I am now struggling to lose weight. I also suffer vaginal dryness, very painful, dry mouth and also dry eyes, so they have diagnosed Sjogren's syndrome as well. Everything is treated with seperate treatments, eye drops, lubricants etc., so I tend to buy them over the counter, because they tend to be cheaper that way. It IS very scary, I agree, especially when we have a bad day or two, but I just try and plod along as best I can. You aren't alone, we are all scared - but I will try anything if I think it can make me feel better, and I have learned so much just by reading some of the posts on here today - there's some brilliant advice from other ladies.
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  • Posted

    I have been diagnosed 22 yrs niw but prob had it years befire..I only take Amithriptilyne at bedtime it gives me a good nights painless sleep-was an old anti-depressant, but they found it really good for for pain management as they numb the nerve end where the pain travels to the next nerve, travelling through your whole body..if you get a good nights sleep, you really can handle the next day well...they make you a bit numb if taken in the day..so mine us taken at night,.I  also take Osteo Panadol...2 x three times a day..recommended from the specialist ithey are slow release stronger paracetamol..and if course double dies if magnesium soooo important and vit d3...using Valium etc..only builds up in your body and us very addictive....try something else...:-) xx
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  • Posted

    Ooooops me again.,forgot, very important...stress free is our key..:-) xxxxx
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  • Posted

    Hi Lynda I'm 45, I was diagnosed about 6 years ago but was back & fore doctor for at least 10 year before .... Because I've got under active thyroid ( was over ... Was given to much radium iodine) also got osteroparouis  & osterparthtitis finally rheumatologist consultant  done  x Rays  on my knees  then on my hands and feet  he thought i had reheumatoid arthritis & may be  fibromyglia as well  & I did....... Only thing they  say now is its a flare up & rest ... But it's easier said than done when u got to go to work.... Some days my 80 yr old aunt walks faster than me 😢 .... A lot of what other people written in regards to taking I do

    i totally agree with blues man with regards to mag

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