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New here...panicking a bit!!!!

Posted , 10 users are following.

Lillychiff
Lillychiff

Hi everyone, I would be really grateful if someone would reply to me. I was diagnosed about 6 months ago ,but I think I've had it for many years. I seem unable to take any of the drugs,as the side effects are as bad as the complaint. My dr won't prescribe Valium for muscle relaxation,but seems perfectly happy to prescribe high dosage codine,to be taken up to 4!times a day.( please anyone does this make sense? I'm very much aware you have to be careful!! But for short periods and to relax chronically tense muscles they work!)  my question is how do any of you judge if you should go to the Drs? Every time I feel really bad I am tempted to go ,then I think what's bathe point? As there's often so many things wrong and how do you explain it all.and do they care really? Just feel so isolated with it sometimes. They diagnose you and you get on with it. You feel like saying " please help me" and it's very depressing to know that they probably can't! Major flare up at the moment and weird new symptoms,it gets scarey!...anyone else feel like this???

 

2 likes, 23 replies

23 Replies

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  • sukest
    sukest Lillychiff

    Posted

    Hi Lynda I've got fibro, arthritis and herniated discs in my spine. I'm taking morphine, paracetamol, Pregabalin, clonedine, Dosulipin and robaxin which is a muscle relaxant and it works! I've eventually found a gp that I can trust so I've had a monthly appointment for the last few months, I make notes of what is bothering me that particular month and I tell her. I write down any new things that I come across on here and another site that I'm involved with. I know that im lucky, but it didn't fall into my lap it took a bit of work. I started looking for a doctor that was good for me, I didn't compromise or make do, I knew what type of a doctor that I needed and thank God I found her! Working with your gp is a two way street where you're both learning new things, I really hope that you find 'your' doctor. As for different symptoms omg I could go on forever ask my doctor haha! Whatever is bothering you write it down, which is in itself cathartic and discuss with your doctor and voilà hopefully!! Good luck with everything, huge hugs. S xx
  • heidi02380
    heidi02380 Lillychiff

    Posted

    Yes! I've been to a million Dr.si can't stand them all they want to do is give you tons of poisonous drugs that as you said cause more problems. I don't know why your Dr. Won't orescribe muscle relaxers though if they're so willing to prescribe addicting strong meds! That's ridiculous.

    I know they're expensive and I don't know how your insurance is, but I would try a natural path...it has helped me a lot! I'll never be back to normal, but they've helped more in a year than Dr.s have in ten! sad

    Sorry you're going through this, it is painful, depressing and scary like you stated. It sucks. sad

    • tiswas24537
      tiswas24537 heidi02380

      Posted

      i am glad you have had the same sort of experinces then me [well not glad] but you know what i mean ,i have very little faith in doctors .

      and get shot down a lot on here for saying so .

      just because i dont want to put poisons in my body

      that wont do anything except hide the symptoms .and cause me other problems that the doctors will give more drugs to sort out ,its endless  spirel staircase .that i dont want to start on.

       

  • Lillychiff
    Lillychiff

    Posted

    Thank you so much all of you.I was SO pleased to hear from you. A while ago I joined the UK Fibro site and posted more or less the same question..not one reply! So thank you,its helped a lot just knowing I can post and someone replies.

    I have been and bought some magnesium this morning.

    • sukest
      sukest Lillychiff

      Posted

      Hi Lynda I'm the same, having someone reply to you is wonderful, I'm here with my cup of mint tea replying to all of you, or reading your different posts which are really helpful and I feel so much better, not alone for one. I too am going to get some Magnesium hope we both get the results that we want, good luck, huge hugs. S xx
    • christine26761
      christine26761 Lillychiff

      Posted

      It's really good to talk to people who are also going through the Fibro struggle, soooo much support and encouragement..just read that you have adverse sude effects to Magnesium...if it's not listed as a side effect..it maybe the Fibro...chat to your pharmacist..I'm in Australia and it's very easy-our pharmacists are part of our community...not sure if the same thing happens in other countries though..keep blogging...Lynda...be blessed..:-) xxxx
  • Lillychiff
    Lillychiff

    Posted

    Oh help!!! I bought the magnesium (same sort Bluesman recommended) I took the recommended dose of 2 a day. I know I am sometimes very sensitive to things,but after 5 days I stopped taking them. I was so,so tired almost drugged. I have tried Magnesium before and it had the same effect. Thing is I don't cope well when I'm that tired,if I'm that tired I get depressed.,negative and tearful. But I found while I was taking them the GERD I had hbeen suffering with for a few weeks went away.the day I stopped it came back.do you think if I persevere the tiredness will lessen? Don't know which is worse the drugged feeling or the GERDGERD!
    • bluesman
      bluesman Lillychiff

      Posted

      So sorry to hear that. What seems clear is that either the calcium or magnesium has had an effect on you. The tablets have certainly helped me sleep better but I have been less tired during the day.
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