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Hi All,

I've been diagnosed with Graves now for 6 weeks. Before that I thought that I was just having nerves for an important training course I was going on, went to the GP about it thinking I had something else and she noticed the swelling in my throat and tested me for over active thyroid.

Was initally put on 30mg Carbimazole & beta blockers until I saw the specialist at the hospital who has now put me on 5 mg Carbimazole. The beta blockers have stopped now. Both doctors were really nice and explained all the technical stuff about my TSH, T4 and antibody levels. They didn't explain all the other stuff about the anxiety, mood swings etc.

I'm so glad to have found this forum and so many seem to be experiencing the same things as me. My beta blockers stopped last week and I feel all trembly again. I had an anxiety attack at work last week. I haven't stopped working and at the moment it's been pretty full on with late night call outs and being short staffed. Normally I would coast along but I'm very touchy about things and snap at the drop of a hat. I know it's part of the condition but it seems so hard sometimes to get that into my head. My friends & colleagues just look at me as if to say ' You've got your meds now there can't be problem'.

I feel that I'm going on a bit now but I thought I would share with others who have probably experienced the same thing. I'm waiting for my next appointment at the hospital. Hopefully I'll start to feel human again soon cause right now I'm like a zombie.

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  • Posted

    Hi! Welcome to the forum. Did your GP and specialist at the hospital tell you what your TSH and T4 levels are? 5 mgms. of Carbimazole seems a low dose which suggests that your T4 leve lhas come down. Beta blockers are prescribed to slow your heart down and make you calmer until the carbimazole takes effect, but if you're feeling trembly and you felt better on the beta blockers then maybe it would be a good idea to ask if you can go back on them for a while. I was on them for a long time.

    As you say it's a normal part of the condition to feel ratty and touchy., and it's also normal not to get a lot of sympathy. I think because we look normal, friends and colleagues think 'what's all the fuss about'. This is a good forum, everyone is lovely and I don't know how I'd have got through without the support I've had. We all help each other.

    My Graves flared up in May last year, I had radioactive iodine in November last year and my bloods have been normal for the last two months. I had another blood test this morning, so fingers crossed. It all takes time, you'll not feel better overnight, but you will feel better soon and get your life back.

    Take care and keep in touch.

    Marigold

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  • Posted

    Hello Marigold,

    The specialist gave me details of my first blood test which had TSH at 0.02 & T4 at 30.4. They took more bloods when I was there & then issued me with the prescription but I didn't find out what the results were from that test. I'm waiting for my next appointment when I've to get more bloods taken a couple of days before I go. Fortunately our health centre and hospital work very closely together as we're on a remote island. I do know that my antibody count was around 1500 and my heart rate was 120 when I first went in. My heart rate is now around 80 & I think the trembly feelings are like when you're nervous or excited about something. It varies throughout the day.

    On the last blood test and the next 1 that gets taken they are wanting to check my T3 levels which I haven't heard anything about yet.

    I must say that I am almost sleeping through the night now which is an improvement. smile

    Once I hear any results I'll post them.

    Thanks for getting back to me.

    Babs.

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  • Posted

    Hi Babs.

    My first T4 was 61, but I was on 40 mgms. of carbimazole and it came down quickly. My blood test yesterday came back normal, so I don't need another blood test for six months. I feel fine now, but it's taken about eighteen months. It's a long, slow process, but you will start to feel better and you'll get there in the end. smile

    It's good that your health centre and hospital work together.

    I still don't sleep that well. Some nights I'm ok, but others I wonder why I bothered going to bed. I'm a bit of a worrier and things start going round in my head.

    Let us know when you get your results.

    Take care,

    Marigold

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  • Posted

    hi babs ,come onto page 25 where we can all talk together,marigold has been a real treasure for us all.My thyroid problem has left me with terrible memory problems but i am having a short synacthen test in the morning to test my adrenals (I think its that or it could be my cortisol) smile anyway what it means i havent done aswell on thyroxine .

    take care

    sue xx

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