New to this, any insight will be gratefully received.
Posted , 4 users are following.
Hi, I'm after a little knowledge on this subject. Here's a small outline of my situation, back in October I started feeling really down in the dumps, heart palpitations and racing pulse, dizzy spells like I've never known, jerky muscle spasms and restless sleeping patterns. I popped to the doctor who did a couple of blood tests and my thyroid levels were slightly high. The only result I was given at this point was my T4 was 24.5 and I had a suppressed tsh?. These symptoms persisted for a couple of weeks and the doctor started me on carbimazole, a daily dose of 5mg once a day, I took this for less than a week mainly because the pharmacist had panicked me by saying it has huge side effects and whilst suffering from health anxiety (I.e the thought of having any illness scares me) at the beginning of December I had to go back for another blood test and actually by this time my symptoms had completely disappered to my relief and was forever hopeful my thyroid results had returned to normal. Anyway a phone call from the receptionist had confirmed my thoughts as she said my T4 was back within range at 18.1. Forward a month to January and still feeling normal I had my appt with the endocrinologist who then put the fear of god in me by saying yes my T4 was 18.1, a free T3 of 5.8, TSH continues to be suppressed but strangely (her words) my TPO was >600 so apparently I'm making 20x the amount of antibodies than I should be, she informed me the range is between 0-38. So now I have to have 3 monthly blood tests for a year as she suspects I will swing between hyper and hypo before settling on the hypo side and I have to watch for coeliac, anaemia and low cortisol levels. No medication has been given until she knows what it's going to do. Since last week I have felt dizzy with palpitations but I suspect that is my anxiety kicking !!!! I'm not sure if it's relevant but I take 20mg of citalopram and 40mg of propranolol as and when I need it. Apologies for the very long post but any insight would be gratefully received. Thank you.
1 like, 9 replies
jamesodono
Posted
I suffer really bad from anxiety, lack of sleep & severe depression I also have had a panic attack & heart palpitations in the past & it was the worst experience of my life. I can be very bi polar as well and I personally believe its down to my thyroid problem. There isn't much good advice on the web. With the medication you are given does it seem to work at all? as ive been very hesitant to take it off the doctor and try and fight through it but it does cause me many problems in everyday life especially my work life. I feel this problem is noted as serious enough as it personally has such big effects on life. To stop your thyroid swelling don't eat brocolli or strawberrys apparently there is something in them that causes the thyroid to inflate. As for being scared of ilness I seem to constantly finding myself looking up things and its ruining my life and people around me because i'm constantly anxious and start fearing the worst. Fortunately im not usually a worried person im a very down to earth 'whatever happens happens' sorta guy
linda187
Posted
You sound like you developed Graves disease like I did, in that your levels though high are not seriously elevated but you developed symptoms like I did. I think because your dose is low, you will not experience side effects to the drug unless you are allergic to it. I don't notice any side effects at the low dose of 5 mg that I am on. And my T4 and T3 returned to the normal range once I was on a low dose of Tapazole which is the drug methimazole which I am assuming Carbimazole is. Before my diagnosis was confirmed, I was taking Propranolol for the rapid heart beat and I was told it was not to be taken p.r.n. but rather to be on a regular dose until my diagnosis was confirmed. Though my T3 and T4 returned to normal immediately once I was on 5 mg of Tapazole, my TSH remained at 0 until I added L-Carnitine to my treatment regimen. I found regular L-Carnitine did not work as well as Acetyl-L-Carnitine which brings my TSH up astoundingly well. So well in fact, that I think even a low dose of 250 mg per day would do that. I think it would also help to get rid of the antibodies. He told me mine are gone now. This is available here in Canada in Health Food and Nutritional stores.
But I would heed your doc's advice and get your blood results done very frequently. I am going to do mine once a month and adjust my L-carnitine accordingly, i.e. if it goes up too high, I stop taking it, if my TSH falls too low, I start taking it again. I stay on the same dose of 5 mg of Tapazole.
mymalo
Posted
I can't help with advice but I hope your blood tests come back as you want them to be and wish you well.
Good tip about strawberries and brocolli! I'm going to try Acetyl-L-Carnitine and see if it helps, too
Jacky
jamesodono
Posted
Ad_Astra
Posted
I have not felt any side-effects from the carbimazole and I hope there will not be any.
jamesodono
Posted
linda187
Posted
mymalo
Posted
It might be anxiety causing the tightness? I'm guessing Citalopram would help as well? I used to take it but stopped but am thinking I should go back on it
mymalo
Posted
It says 'if you are told that you have Graves' Disease or hyperthyroidism, and are rushed to have RAI, insist on blood tests for various antibodies, as well as imaging tests, to demonstrate that you do indeed have Graves'/hyperthyroidism, and are not just experiencing temporary Hashitoxicosis'. I thought of your symptoms and wondered if that was what was happening in your case? That it's Hashimoto's father than Graves? It'll be intersesting to see what my next blood test reveals :-)