New to this disease and this forum

hi chele59

I was diagnosed with DD two years ago and all the advice I was given at the hospital was don't eat seeds. so, I thought nothing of this disease if that is all the advice I was given.

last week I was told the disease was much worse and the computer generated print out from the hospital showed my sigmoid area to be completely full of swollen diverticula. (if that is the right word).

Still no help apart from eat we wheat bran, two tablespoons per day. so I do.

My consultant said he was very surprised that I wasn't in considerable pain.

Have very little pain just a foul smell in my mouth if I am thirsty and awful nausea in the morning with dizziness.

My doctor was reluctant to take about my swollen gallbladder without telling me why, now I know why, when your gallbladder packs in DD sets in. I went to her surgery and sobbed my heart out in front of her, I felt so embarrassed but with no one else to talk to I need someone. I sobbed and sobbed. I don't know if I can look at her again.

I have been trying to find foods which suit. I eat steamed vegetables, no sauce and only chicken as red meat is a nono. (my fave was homemade chilli sauce) Obviously I am not allowed fats so everything fatty has been COMPLETELY removed, except 0.01 milk and fat free yogurt. I take a calcium supplements Osteocare . alcohol is out as is Indian food, cheese and chocolate. what sort of life is without chocolate? sorry, my pathetic attempt at a joke.

I still get this mouldy taste and smell, what's the hell is that?

my consultant told me Iwill be in awful pain in the future. nothing like constructive help eh? Oh boy, a hot flush, hang on.......

I walk my neighbours dogs who keep me running for an hour, do kettle bell for 10 mins every other days and adhesion hoop and have a gazelle air walker.

if anybody has any suggestions fo nqnythingelsen to help

If anyone has any suggestions to help, please post as it looks like we are on our own coping with this disease.

Stupid iPad....for 'adhesion hoop' read hula hoop

Hi,

I am new to this site - have just been diagnosed with Diverticular Disease after being rushed into hospital just before Christmas with rectal bleeding and the most awful pain. Have had every test possibel since then - at least it feels like it!!

Any suggestions as to how other sufferers have dealt with this unpleasant disease and the best way to control the flareups when they start?

I have found that when I feel I am getting a flare up I take the tabs the doc gave me - mebeverine. to be honest flare ups are few and far between since I did a food diary and found what upsets the system! Anything with seeds basically and peanuts so far! I really empathise with you as it is really painful when you get it!

I am sorry designerlady as I have only just seen your response from last year! I thought I was alone with this awful disease! I have also bought a juicer and juice everything so that I don't get any seeds in anything! It has really helped and I would recommend it without hesitation.

Hi Amaranth, Hope you are coping ok? I currently have a flare up and to be totally honest I don't think there is anything you can do except I have found it quite comforting putting my feet up with a hotwater bottle on my tummy. My other half is absolutely brilliant when I get it and very supportive so I am very lucky. I knew when this flare up was building up but couldn't do anything about it - that's what I find frustrating - you know it's coming and there's nothing u can do to stop it? there doesn't seem to be much online to help you either. I bought a book on it but sent it back because it was no help at all! So hopefully we will all be able to help and support each other on this forum.

Hi chele59, Thanks you for your response. Touch wood everything seems to be ok except now I am developing a distaste for ilk and yogurt is a complete no-no. I cut all acid foods form my diet and I fell ok. Pains in upper arms and across chest but I find that is liver, according to the forums. I try to keep off foods that start any reaction.

Yes all very strange - we think this bout started with broad beans as it is the only thing we could think of that I had eaten and hadn't eaten for a very long time? So yet another thing to cut out of diet! A never ending learning curve! And a painful one at that!

Oh Lord, I have two allotments and am growing broad bean by the hundreds,, AAARGGHH!! My main problem is wind!! It is so embarrassing and sometimes leaves me quite sore in places I don't want to be. I seem to be alright with green vegetable except sprouts and cabbage which I LOVE. But I still get this mouldy taste in my mouth form time to time. Yuck!!

I don't get any pain, just a little discomfort now and again with the DD but the gallbladder causes more pain. I don't know how much longer I can keep it maybe that was what my consultant, god bless his soul, meant by saying I will be in awful pain later on.

Chele have you seen this forum?

www.end-diverticulitis.com/forum2/viewforum.php?f=5

it seems to be very good and look up Sherry Bressica too. She is a sufferer who has posted loads of stuff online. She is not on the forum she is an independent.

www.greattastenopain.com/

I think people need to keep in touch as we need support form all sorts of places since we don't get it from the medical proffession.

Oh goodness - what's one man's pleasure is another man's poison as they say so don't stop growing the broad beans! All other veg I seem to be ok with! Gosh you are lucky if you don't get any pain - it is debilitating for me!

I don;t know how I am pain free. I feel it when I sit awkwardly as in not sitting up straight, I don;t know how it is. Someone 'up there' must be watching out for me. I eat a bowl of oatbran every morning to keep things going and I am on Thyroxine, for an underactive Thyroid, which keeps things going too. I don;t know, I'm not waiting for the bubble to burst, I'm just glad of every day.

I am waiting for my post to be approved above, as I included to links to other sites - one is end-diverticulitis and the other is for Sherry Bressica's no pain book. I'm sure that passing round other site links can only be beneficial for sufferes of DD.

BTW how old is everyone on here I am 58.

Yes thank you for the thought of passing on links and you are right I am sure these will be helpful - we shall see if they are allowed?

I am 63.