New UK guidelines for HRT - and a personal perspective

Posted , 9 users are following.

I've been taking HRT for around 9 years now - estrogen only, as I had a hysterectomy years ago (ovaries not removed).  Tablets didn't suit me and made me feel nauseous, so I tried patches and eventually settled on 80mcg Elleste solo patches, applied twice a week.  These relieved all the horrible symptoms and I felt normal again.

For the last couple of years my doctor has been hassling me to come off HRT, as I've been on it for over 5 years and am approaching 60 - I am currently 59.  Last year, I decided to try to bite the bullet and gradually reduce my dose.  I literally cut down by gradually cutting off a section of patch, until I was down to half a 80mcg patch.  The doctor  then prescribed me 40mcg patches.  I'd had a few symptoms but these seemed to wear off after a time.  I then started to cut down the 40 mcg patches and eventually moved onto a 25mcg patch (Estradot) .  My night sweats started to return and I definitely didn't feel myself - more emotional and worryingly more aches and pains.  I stuck with it, hoping the symptoms would fade with time and trying to do what my doctor thought was the right thing.  Then earlier this year, I started with a frozen shoulder.  I didn't know that's what it was at first - just thought I'd pulled a muscle and it would go away on it's own.  It got worse, rather than better and eventually drove me to the doctors to get the diagnosis.  The lack of sleep from the pain of the frozen shoulder was made worse by the return of the night sweats and feeling generally not myself.  I'd also read some views that there could be some sort of a link between menopause and frozen shoulder.  This isn't proven but needs some proper research, taking into account the sex and age profile of the majority of cases.  It is apparantly a very common symptoms in menopausal women in Japan.

Taking all this into account, I decided to approach my GP with a view to increasing my HRT dose again.  I was expecing resistance, so did some research in advance, trying to avoid the more cranky sites.  I actually found the latest NICE  draft guidelines - the National Institute for Health and Care Excellence are the body that gives advice to UK doctors.  They have re-examined the evidence from various studies and come up with new guidelines, weighing up the benefits as well as risks of HRT.  Yes, there are some risks but these seem to have been over-played to the extent of frightening many women off HRT.  There also seems to be a lower risk for Estrogen only HRT - and when applied as patches rather than taken orally.

My doctor didn't seem convinced - he hadn't read the draft guidelines (which have been officially published today) and trotted out the usual list of reasons why I shouldn't take HRT.  He even suggested I take antidepressants (SSRi) which can apparantly help stop night sweats but seemed to ignore my other symptoms and concerns.  Reading the possible side-effects of these, I really don't want to go down that route and they don't address my other issues.  I'd gone in rather determined (which isn't really me) and in the end persuaded him to give me a month's supply of the 40mcg patches, obviously against his better judgement!

After a couple of weeks back on the 40mcg patches, I'm already feeling more like my old self and don't think I'll need a higher dose to keep my symptoms at bay.  My skin feels better as does my mood and the night sweats seem to have subsided.  I'm not expecting it to cure my frozen shoulder, which I'm having physio and considering other treatment for.  Some of the other aches and pains seem to be subsiding though.  After reading all the pros and cons, I'm happy to stay on the HRT for the foreseeable future.  Lack of sleep due to night sweats alone, must be a heath risk in itself. 

Anyone considering taking HRT should read the new guidelines for themself - if you Google NICE's website you can find public information or read the full draft guidelines (long and technical).  You might find the benefits outweigh the risks for you.  I'd personally rather have a good quality of life than put up with horrible symptoms for fear of what may be very small risks that may never materialise.  

1 like, 15 replies

15 Replies

  • Posted

    Well done Maria for sticking to your guns as I did.

    I am hoping that the new Nice report which has been published today will help doctors to offer more women the chance of a better later life

    • Posted

      Hello Dorothy

      Male GP's are not really experienced enough in the area of Menopause for women....we are just experiemental mice to them.. Go girl you sound gutzy...I admire you because I would do the same.  

      Take care 

      dianna

  • Posted

    Hi couldn't believe what I was reading: re link between frozen shoulder and the menopause .  I didn't mention I had experienced shoulder impingement  when I wrote my first comments a few days ago, thinking, such aspecific condition  was not relevant and probably due to old age( soon to be 70 )- but  not  to  the reduced frequency I am struggling to acheive with my  HRT  pills due to  my present  G.P wanting to stop my prescription.   Would be interested in  reading any research on this link  . Will be wading through the NICE guidelines   as soon as I get a minute spare . maggie47657

    Maggie 

  • Posted

    Well done for taking control of your health decisions. I have been on HRT for over a year now and I would highly recommend to any woman suffering the terrible symptoms of the menopause. I believe it is very important to live your lift for the now and feel healthy and happy and not have to worry about any possible future side affects which may never happen.
  • Posted

    Brilliant Maria, well done. Going back to my doctor next week & will look at the Nice report before I go!
  • Posted

    Hi, notice it was mentioned on tv tonight  wanting docotrs to  be more possitive on people taking hrt x

     

    • Posted

      Melody its like no other medication for other diseases..at the end of the day no matter what we take everything has side efffect...gee if you read what they are we wouldnt swallow anything " laughs"

       

  • Posted

    Maria I compliment you. 

    Hope you get back to yourself soon.

    Dianna

  • Posted

    We all know our bodies and I sometime wonder aboiut these doctors. 

    Good luck to all you women who are suffering something with HRT and menopause.

    dianna

  • Posted

    Thanks for your replies and support.  I found this site after researching my frozen shoulder and it's great to find others experiences and advice.  I've lost faith in GPs - gone are the days of my childhood when we had a family doctor who knew all the family history and had visited us at home.  With constant staff changes at our practice, I rarely see the same GP twice and they don't have chance to get to know most of their patients.  I'm not saying that some aren't very good - but they are "General" Practitioners - if they can't give you a prescription or some basic advice, they refer you to a specialist.  With the internet, we have the ability to become the "experts" in our own conditions - always being careful not to believe everything out there either, as there are some very cranky sites too!

    For many conditions there is a lot of conflicting advice.  From what I've read, some of the research into HRT has been poor or seriously flawed, so to base public advice on these findings can be misleading.  The new guidelines seen to have gone over a lot of different studies over the years and reached a better informed conclusion.  I'm sticking with my HRT for the moment - or as long as I can persuade my doctor to prescribe it anyway.  Now do I give up sugar, sausages and bacon or whatever the next health scare is that the press get hold of...

    • Posted

      Maria I totally agree with you.... well said. It is like that over here also (Australia). Our goverment is sacking 2,000 doctors and nurses in our public hospitals.  Amazing....I could ramble but wont.

      Everything in moderation is what I think if we listen to the media or scientific issues relating to anything from breast feeding to what you should do an not do, we wouldnt eat or breath our polluted air.  

      I love hearing about other peoples experience because that is where knowledge on reality woman experience same sypmtoms or similar. HRT works for me so I with you on that, I will take for as long as it takes to eliviate my hot flushes which are horrid..

  • Posted

    Omg! thank you for taking the time to write your message Maria. It's really helped me. I'm considering taking it for vag dryness and was encouraged recently by the new guidelines. But if I start taking it I won't want to come off in 5 years because vag dryness isn't something that goes away. I'm 55, think I'll go for it.
    • Posted

      Hey Susan

      Have you considered using a gel for vagina dryness it does help in more ways than one.  

      xx

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.