Newly diagnosed

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Have just found this site after recently being diagnosed with diverticular disease. The information given here seems well worth a try as l would agree there is little on offer from Drs in this country. I started with real problems last Sept & it's taken until last month to get a diagnosis. In Feb l was in so much pain my husband took me to our local A & E sept only to be told to go home & take more painkillers. At least l know the problem now & it's apparently very common, doesn't make it any less painfully does it. My thanks for all your posts & l plan to try to include some of the dietary suggestions as l guess that's what l just concentrate on.

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  • Posted

    Hi jasmine, I'm guessing you were put on antibiotics as well as taking pain killers? Were you diagnosed via CT scan ? I was diagnosed in Jan this year and yes it can be painful but I had complications with a hole in bowel so hard to tell if that level of pain will be with all flare ups ..I've just been noting down food particularly in relation to symptoms to avoid in the future.. example bloating, loose bowel movements, constipation, pain ....drink loads of water !

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    • Posted

      I was diagnosed at the end of April after a camera examination so still very new to this & looking for advice from those who have to live with this problem. The Drs l saw in February seemed to have no idea how to treat me & didn't give antibiotics. I searched the internet for advice etc & was lucky to find this site. I am due to see my GP tomorrow to discuss the findings of the camera examination but have been looking at my diet &, as you advised, trying to drink lots.

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    • Posted

      Yes l am. Have had symptoms for a number of years now which make sense now given the diagnosis I've been given. Have to say though l seem to be getting off very lightly so far, the posts I've read from other people show they are much worse than me. It's good to get advice from them & really helpful. One example l would give is that when at my worst l was advised to eat a higher fibre diet, needless to say it did not help at all. Am learning each day though & presently also keeping a dietary diary.

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  • Posted

    Hi Jasmine,

    I am 39 and was diagnosed accidentally 3 weeks ago when i was having investigations for kidney stones and the consultant ordered a CT scan which revealed i had this disease. I had never head of it but have always had trouble with my bowels so wasn't too surprised. 4 days after i had my CT scan i had to be admitted to hospital - i had bloating, cramping pain in my lower back and abdomen, high fever and very fast hear rate. I was in hospital for 3 days and luckily the antibiotics did the trick. It turns out i had a urinary tract infection but i wonder if i also had diverticulatis and whether one caused the other - it is so confusing! Anyway, now back at work but i still get these cramping pains down my lower back (left side) which i can only assume is related to the DD. This is really stressing me out! All i have been doing is eating really bland stuff which appears to help - i can only recomment natural yogurt as that has been a life saver for me...Hope you keep your DD under control. Dan 

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    • Posted

      Hi Dan,

      Thanks for that advice, l check this site regularly now for help & tips. Have been taking things very slowly as sudden changes to my diet seem to make things worse. These last few days have been a little uncomfortable again so l've stopped the porridge which l was having for breakfast ( the only thing l had changed around my diet ), not sure if l need to be having soluble/ insoluble fibre or a mix of both, just trying to stop this becoming a real flare up again. The pain l get is on my lower left side abdomen. I stuck to fluids only when really bad last time ( following advice from others on this site ) with really bland foods as l was getting better. If this doesnt settle down soon will try fluids only for a while to rest my bowel. Good to hear from you.

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    • Posted

      One other bit of advice - apparently this thing called keffir is really helpful for bowel issues like DD, it is meant to supply loads of good bacteria which should restore the bowel flora.
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    • Posted

      Have read about it on this site but am finding impossible to get, have tried health food shops in my area with no luck. At the moment l take Aloe Vera juice x 3 daily & am trying Sourdough bread instead of wholemeal, anything to keep things calm inside.

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  • Posted

    Hi all 

    I was diagnosed last week with this and am currently on Amoxicillin and Metronidazole.  The pain was so unbearable which prompted me to go see my GP.  I've had similar pain on and off for years and thought it was a gynae thing so had all that investigated but last week it didn't go away and also have a history of IBS so am on Omeprazole (which actually I haven't been taking much recently so wonder did that contribute to this?).  

    I can't say which foods affect me but my symptoms wipe me out so much and I feel also like I have flu to the point where I look and feel shattered.  Is this common?  I'm not entirely sure I have DD as I also have glands swell up in my throat at the same time as I get these episodes that wipe me out for a week or so but this one is now going on for longer and most depressing.  

    Any comments/thoughts would be appreciated.  Thank you 

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    • Posted

      Hi Anna, like you I'm just beginning to learn how to manage this disease. When at my worst l found keeping to fluids only for a few days was a great help. Perhaps best to see your GP again for further tests etc. Hope you feel better soon.

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    • Posted

      Hi Jasmine 

      Thanks and I have been drinking lots of water today and yesterday and whilst I was in pain this afternoon, I'm finding it's eased off this evening.  I hope I'm getting through it as it's just unbearable.  How are you ?

       

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    • Posted

      Been having pain on & off for the last couple of days, trying to drink more & have the probiotic yoghurt as often as possible. Have no idea what's set it off again but will switch to bland diet if this continues. Think this becomes our way of life with DD, constantly watching what we eat.

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